scholarly journals The national comprehensive cancer network distress thermometer as a screening tool for the evaluation of quality of life in uveal melanoma patients

2019 ◽  
Vol 98 (3) ◽  
Author(s):  
Annemarie Klingenstein ◽  
Christina Samel ◽  
Aylin Garip‐Kuebler ◽  
Christina Miller ◽  
Raffael G. Liegl ◽  
...  
Keyword(s):  
Quality Of Life ◽  
National Comprehensive Cancer Network ◽  
Uveal Melanoma ◽  
Screening Tool ◽  
Distress Thermometer ◽  
Melanoma Patients ◽  
Cancer Network

scholarly journals Quality of Life in Uveal Melanoma Patients in Ireland: A Single-Centre Survey

2019 ◽  
Vol 6 (2) ◽  
pp. 99-106
Author(s):  
Olya Scannell ◽  
Valerie O’Neill ◽  
Mary Dunne ◽  
Caroline Baily ◽  
Amira Salih ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Uveal Melanoma ◽  
Psychosocial Support ◽  
Well Being ◽  
Disease Recurrence ◽  
The Body ◽  
Treatment Groups ◽  
Significant Difference ◽  
Melanoma Patients

Background: Uveal melanoma and its treatment can influence the physical and psychological well-being of patients in a way that differs from other cancers. Factors influencing quality of life (QOL) include visual impairment, changes in appearance, day-to-day functioning, ocular discomfort, and worry regarding disease recurrence. Objective: We aimed to study both general and disease-specific QOL in uveal melanoma patients in Ireland and compare QOL between a plaque radiotherapy group and an enucleation treatment group. This information was sought to enhance our understanding of QOL issues for uveal melanoma patients, in the context of improving care and providing appropriate psychosocial support. Method: The European Organisation for Research and Treatment of Cancer (EORTC) QOL questionnaires QLQ-C30 and QLQ-OPT30 were completed by patients with uveal melanoma treated by enucleation or brachytherapy. Results: 138 of 206 patients completed the questionnaires. There was no significant difference in QOL scores between treatment groups. Thirty-two percent of patients reported concerns about tumour recurrence elsewhere in the body. The brachytherapy group had a significantly higher “role functioning” score (p = 0.030). Enucleation patients were more likely to have problems with appearance (p < 0.0005). Younger patients (12–54 years of age) were more likely to report headaches (p < 0.0005) and problems with reading (p = 0.042), and they had a lower cognitive functioning score (p = 0.003) than those aged ≥55 years. Conclusions: There was no significant difference in reported QOL between treatment groups. Our data identified a number of vulnerable patient subgroups. By anticipating which patients are more likely to suffer in terms of certain aspects of their QOL, we are better able to provide appropriate and timely psychosocial support.

Adult Cancer Pain

2007 ◽  
Vol 5 (8) ◽  
pp. 824
Author(s):  
_ _
Keyword(s):  
Quality Of Life ◽  
Clinical Practice ◽  
Cancer Pain ◽  
National Comprehensive Cancer Network ◽  
Cancer Patients ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Cancer Network ◽  
Recent Version

Pain is one of the most common symptoms associated with cancer and one of the symptoms patients fear most; unrelieved pain denies them comfort and greatly affects their activities, motivation, interactions with family and friends, and overall quality of life. The importance of relieving pain and availability of effective therapies make it imperative that clinicians caring for cancer patients to be adept at assessing and treating cancer pain. The National Comprehensive Cancer Network Adult Cancer Pain Clinical Practice Guidelines in Oncology acknowledge the range of complex decisions faced in caring for these patients. As a result, they provide dosing guidelines for NSAIDs, opioids, and adjuvant analgesics. They also provide specific suggestions for escalating opioid dosage, managing opioid toxicity, and when and how to proceed to other techniques to manage cancer pain. For the most recent version of the guidelines, please visit NCCN.org

Assessing distress in patients with gastrointestinal tumors during radiotherapy.

2016 ◽  
Vol 34 (4_suppl) ◽  
pp. 524-524
Author(s):  
Laeticia Hollant ◽  
Megan Paige Single ◽  
Katherine Gaines ◽  
Bridget Smart ◽  
Jacob Habboush ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Distress Thermometer ◽  
Gastrointestinal Tumors ◽  
Psychosocial Stressors ◽  
Medical Providers ◽  
Loved One ◽  
Patient Reported ◽  
Cancer Network ◽  
Physical Care

524 Background: Psychosocial distress during radiotherapy (RT) for gastrointestinal tumors is poorly characterized. Since 2012, patients receiving RT in our clinic have been prospectively screened for causes of distress. The results of our screening were reviewed in order to elucidate concerns of GI cancer patients and to delineate patterns within patient reported distress (PRD). Methods: Patients treated with RT at our institution receive a 30 question PRD survey that also includes a linear analog measure of overall distress at the start and during RT. The PRD survey asks patients to rate forms of distress on a scale of 1 to 5 (5 being the most distressed). The survey also asks patients to rate overall distress according to the National Comprehensive Cancer Network (NCCN) Distress Thermometer on a scale 0 to 10. The reported results were retrospectively reviewed in patients receiving definitive RT for GI cancers from 04/02/2012 to 08/05/2015. Results: PRD surveys were completed by 113 patients, 55 (48.7%) male and 58 (51.3%) female. Median age was 65 years (range 28 to 93). The most common tumor histology was adenocarcinoma, 67 (59.3%). 105 patients (93.0%) received chemotherapy and 66 (58.4%) underwent surgery. Overall, NCCN distress thermometer results ranged from 0 to 10, with a median of 4.3. The mean distress scores for the top five complaints ranged from 1.27 to 2.63. Top distresses were “How will I feel during treatment” (2.63), “Fatigue” (2.45), “Pain that affects daily functioning” (2.35), “Out of pocket medical costs” (2.31), and “Sleep difficulties” (2.31). The least concerning complaints were “Housing during treatment” (1.27), “A loved one relying on me for their physical care” (1.30), “Spirituality” (1.33),“Family communication about my illness”(1.37), and “Transportation” (1.38). Conclusions: Patients’ major concerns were aligned with daily quality of life, such as fatigue, pain and insomnia. Highest reported distress was linked with the process of RT and side effects associated with treatment. Medical expenses were also perceived as a burden. Medical providers should identify psychosocial stressors during RT in order to effectively communicate and provide resources to improve quality of life.

scholarly journals Quality of life in the follow-up of uveal melanoma patients after CyberKnife treatment

2013 ◽  
Vol 23 (6) ◽  
pp. 481-488 ◽  
Author(s):  
Annemarie Klingenstein ◽  
Christoph Fürweger ◽  
Martin M. Nentwich ◽  
Ulrich C. Schaller ◽  
Paul I. Foerster ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Uveal Melanoma ◽  
Melanoma Patients

Quality of life considerations in uveal melanoma patients: a systematic review

2020 ◽  
Vol 55 (5) ◽  
pp. 413-423
Author(s):  
Sonia Anchouche ◽  
Jiaru Liu ◽  
Fatma Zaguia ◽  
Georges Nassrallah ◽  
Jean Deschênes
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Uveal Melanoma ◽  
Melanoma Patients

scholarly journals Quality of life: fractionated stereotactic radiotherapy versus enucleation treatment in uveal melanoma patients

2018 ◽  
Vol 96 (8) ◽  
pp. 841-848 ◽  
Author(s):  
Jackelien G.M. van Beek ◽  
Gabrielle H.S. Buitendijk ◽  
Reinier Timman ◽  
Karin Muller ◽  
Gregorius P.M. Luyten ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Uveal Melanoma ◽  
Stereotactic Radiotherapy ◽  
Fractionated Stereotactic Radiotherapy ◽  
Melanoma Patients

Quality of life in the follow-up of uveal melanoma patients after enucleation in comparison to CyberKnife treatment

2015 ◽  
Vol 254 (5) ◽  
pp. 1005-1012 ◽  
Author(s):  
A. Klingenstein ◽  
C. Fürweger ◽  
A. K. Mühlhofer ◽  
S. F. Leicht ◽  
U. C. Schaller ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Uveal Melanoma ◽  
Melanoma Patients

scholarly journals Prediction of all-cause mortality from 24 month trajectories in patient-reported psychological, clinical and quality of life outcomes in uveal melanoma patients

2021 ◽  
Author(s):  
Stephen L. Brown ◽  
Peter L. Fisher ◽  
Laura Hope-Stone ◽  
Heinrich Heimann ◽  
Rumana Hussain ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Expectancy ◽  
Uveal Melanoma ◽  
Cox Regression ◽  
Multivariate Analyses ◽  
Tumor Diameter ◽  
Control Variables ◽  
Patient Reported ◽  
All Cause Mortality

AbstractA number of patient-reported outcomes (PROs) predict increased mortality after primary cancer treatment. Studies, though, are sometimes affected by methodological limitations. They often use control variables that poorly predict life expectancy, examine only one or two PROs thus not controlling potential confounding by unmeasured PROs, and observe PROs at only a single point in time. To predict all-cause mortality, this study used control variables affording good estimates of life expectancy, conducted multivariate analyses of multiple PROs to identify independent predictors, and monitored PROs two years after diagnosis. We recruited a consecutive sample of 824 patients with uveal melanoma between April 2008 and December 2014. PROs were variables shown to predict mortality in previous studies; anxiety, depression, visual and ocular symptoms, visual function impairment, worry about cancer recurrence, and physical, emotional, social and functional quality of life (QoL), measured 6, 12 and 24 months after diagnosis. We conducted Cox regression analyses with a census date of December 2018. Covariates were age, gender, marital and employment status, self-reported co-morbidities, tumor diameter and thickness, treatment modality and chromosome 3 mutation status, the latter a genetic mutation strongly associated with mortality. Single predictor analyses (with covariates), showed 6-month depression and poorer functional QoL predicting mortality, as did 6–12 month increases in anxiety and 6–12 month decreases in physical and functional QoL. Multivariate analyses using all PROs showed independent prediction by 6-month depression and decreasing QoL over 6–12 months and 12–24 months. Elevated depression scores six months post-diagnosis constituted an increased mortality risk. Early intervention for depressive symptoms may reduce mortality.

Assessing pelvic floor quality of life in postpartum women-KHPQ, a novel screening tool

2016 ◽  
Vol 200 ◽  
pp. 128-129
Author(s):  
G. Thiagamoorthy ◽  
D. Robinson ◽  
L. Cardozo ◽  
H. Sekar ◽  
N. Bosompra
Keyword(s):  
Quality Of Life ◽  
Pelvic Floor ◽  
Screening Tool ◽  
Postpartum Women
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