scholarly journals A survey of ovarian reserve and quality of life in female survivors of pediatric cancer

2021 ◽  
Author(s):  
Sofia Nilsson ◽  
Marianne Jarfelt ◽  
Stina Järvholm ◽  
Linda Kluge ◽  
Ann Thurin‐Kjellberg
Keyword(s):  
Quality Of Life ◽  
Pediatric Cancer ◽  
Ovarian Reserve ◽  
Female Survivors

Quality of life in school-age pediatric cancer patients

2013 ◽  
Author(s):  
Fransisca M. Sidabutar ◽  
Anggie Regia Anandari ◽  
Ingrid Karli ◽  
Yusnita Katagori ◽  
Henny E. Wirawan
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
School Age ◽  
Pediatric Cancer Patients

Estudio del arte de calidad de vida en salud. / Study of the art of quality of life in health.

2015 ◽  
Vol 4 (08) ◽  
pp. 111-135
Author(s):  
Isabel Pérez Bescanza
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Pediatric Cancer ◽  
Growth And Development ◽  
Assessment Instruments ◽  
Calidad De Vida ◽  
Pediatric Cancer Patients ◽  
Minimum Requirements ◽  
Mere Presence

El presente artículo está enfocado hacia el Estudio del Arte de Calidad de Vida desde el área de la Salud, específicamente tomando en cuenta las investigaciones realizadas con niños(as) y adolescentes en cáncer y su Calidad de Vida; para ello se realizó una revisión de los últimos diez años, después de un arqueo bibliográfico se consideraron aproximadamente 80 artículos para su revisión y discusión. De acuerdo a la revisión realizada se enfocó en tres aspectos: a) Elementos conceptuales relacionados con la Calidad de Vida(CV) y la Calidad de Vida relacionada con Salud (CVRS); b) la medición de la CVRS específicamente en niños(as) y adolescentes y c) Los diferentes instrumentos de evaluación creados para medir la CVRS en niños(as) y adolescentes. En relación con el primer aspecto, este constructo ha sido más fácil medirlo que definirlo, es un concepto extenso y ambiguo. En relación con la medición, uno de los problemas es el relacionado con las dificultades inherentes a su evaluación, debido a la naturaleza bipolar objetiva-subjetiva y su multidimensionalidad, compleja e indeterminada, y esto le da a la evaluación un problema adicional, aunado también que los instrumentos elaborados para tal fin, en ocasiones no cumplen los requisitos mínimos de construcción y generalización de resultados. La mayoría de las investigaciones concluyen que es muy importante la evaluación de la CVRS en el paciente pediátrico con cáncer, ya que la sola presencia de una enfermedad crónica desestabiliza la emocionalidad del paciente. Se concluye la importancia de la medida de CVRS en pacientes pediátricos, para uso en la práctica clínica y en la salud pública, considerar el proceso de crecimiento y desarrollo físico, cognitivo, intelectual y afectivo del niño/a ya que es continuo y representa un reto captar los aspectos positivos y los que afectan negativamente en la calidad de vida del paciente. The present article is focused towards the study of the art of quality of life from the area of the health, specifically taking in has them research made with children (as) and adolescents in cancer and its quality of life; for this is performed a review of them last ten years, after a tonnage bibliographic is considered approximately 80 articles for your review and discussion. In accordance the review focused on three aspects: to) conceptual elements related to quality of life (HP) and the quality of life related with health (HRQOL); b) the measurement of HRQOL in children and adolescents and c specifically) the different assessment instruments designed to measure HRQOL in children and adolescents. Regarding the first aspect, this construct has been easier to measure it to define it, is a lengthy and ambiguous concept. In relation to the measurement, one of the problems is related to the difficulties inherent in their assessment, due to the bipolar nature and its multidimensionality, complex and indeterminate, and this gives the assessment an additional problem, also joined that elaborate instruments for that purpose, sometimes do not meet the minimum requirements of construction and generalizability of results. The majority of the investigations conclude that assessment of HRQL in pediatric cancer patients is very important since the mere presence of a chronic disease disrupts the emotionality of the patient. Is concludes the importance of the measure of HRQOL in patients Pediatric, for use in the practice clinical and in the health public, consider the process of growth and development physical, cognitive, intellectual and affective of the child / to since is continuous and represents a challenge capture them aspects positive and which affect negatively in the quality of life of the patient.

Results of a Pilot Yoga Intervention to Improve Pediatric Cancer Patientsʼ Quality of Life and Physical Activity and Parentsʼ Well-being

2017 ◽  
Vol 35 (1) ◽  
pp. 15-23 ◽  
Author(s):  
Andrea D. Orsey ◽  
Crystal L. Park ◽  
Regan Pulaski ◽  
Nilani L. Shankar ◽  
Jill M. Popp ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Pediatric Cancer ◽  
Well Being ◽  
Yoga Intervention

scholarly journals A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

2016 ◽  
Vol 15 (1) ◽  
pp. 110-124 ◽  
Author(s):  
Kimberson Tanco ◽  
Ji Chan Park ◽  
Agustina Cerana ◽  
Amy Sisson ◽  
Nikhil Sobti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Literature Search ◽  
Healthcare Delivery ◽  
Self Report ◽  
Caregiver Distress ◽  
Pediatric Cancer Patients ◽  
Cancer Caregiver

AbstractObjective:Caregivers of cancer patients face intense demands throughout the course of the disease, survivorship, and bereavement. Caregiver burden, needs, satisfaction, quality of life, and other significant areas of caregiving are not monitored regularly in the clinic setting, resulting in a need to address the availability and clinical effectiveness of cancer caregiver distress tools. This review aimed to determine the availability of cancer caregiver instruments, the variation of instruments between different domains of distress, and that between adult and pediatric cancer patient populations.Method:A literature search was conducted using various databases from 1937 to 2013. Original articles on instruments were extracted separately if not included in the original literature search. The instruments were divided into different areas of caregiver distress and into adult versus pediatric populations. Psychometric data were also evaluated.Results:A total of 5,541 articles were reviewed, and 135 articles (2.4%) were accepted based on our inclusion criteria. Some 59 instruments were identified, which fell into the following categories: burden (n = 26, 44%); satisfaction with healthcare delivery (n = 5, 8.5%); needs (n = 14, 23.7%); quality of life (n = 9, 15.3%); and other issues (n = 5, 8.5%). The median number of items was 29 (4–125): 20/59 instruments (33.9%) had ≤20 items; 13 (22%) had ≤20 items and were psychometrically sound, with 12 of these 13 (92.3%) being self-report questionnaires. There were 44 instruments (74.6%) that measured caregiver distress for adult cancer patients and 15 (25.4%) for caregivers of pediatric patients.Significance of results:There is a significant number of cancer caregiver instruments that are self-reported, concise, and psychometrically sound, which makes them attractive for further research into their clinical use, outcomes, and effectiveness.

scholarly journals Strategies to improve success of pediatric cancer cooperative group quality of life studies: a report from the Children’s Oncology Group

2014 ◽  
Vol 24 (6) ◽  
pp. 1297-1301 ◽  
Author(s):  
Puja G. Whitlow ◽  
Mae Caparas ◽  
Patricia Cullen ◽  
Christine Trask ◽  
Fiona Schulte ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Cancer ◽  
Cooperative Group ◽  
Oncology Group
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