Health‐related quality of life in necrotising soft tissue infection survivors: perspective from an Australian tertiary referral centre

2021 ◽  
Author(s):  
Patrick Lu ◽  
Margaret Angliss ◽  
Eldho Paul ◽  
Frank Bruscino‐Raiola
Keyword(s):  
Quality Of Life ◽  
Soft Tissue ◽  
Soft Tissue Infection ◽  
Health Related Quality ◽  
Referral Centre ◽  
Tertiary Referral ◽  
Tertiary Referral Centre ◽  
Related Quality ◽  
Health Related

Health Related Quality of Life of a Tertiary Referral Center Population With Urinary Incontinence Using the DCGM-10 Questionnaire

2009 ◽  
Vol 182 (4S) ◽  
pp. 2000-2006 ◽  
Author(s):  
Christian Bachmann ◽  
Dirk Lehr ◽  
Ellen Janhsen ◽  
Heike Sambach ◽  
Holger Muehlan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Urinary Incontinence ◽  
Health Related Quality ◽  
Tertiary Referral ◽  
Tertiary Referral Center ◽  
Referral Center ◽  
Related Quality ◽  
Health Related

scholarly journals Health-related quality Of Life In patients with advanced Soft TIssue sarcomas treated with Chemotherapy (The HOLISTIC study): protocol for an international observational cohort study

BMJ Open ◽  
2020 ◽  
Vol 10 (6) ◽  
pp. e035171 ◽  
Author(s):  
Eugenie Younger ◽  
Robin L Jones ◽  
Ingrid M E Desar ◽  
Clare Peckitt ◽  
Winette T A van der Graaf ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Soft Tissue ◽  
Soft Tissue Sarcomas ◽  
Health Related Quality ◽  
First Line ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Line Chemotherapy

IntroductionChemotherapy is the mainstay of treatment for patients with advanced soft tissue sarcomas (STS). Treatment intent is usually palliative, aiming to improve symptoms, stabilise or reduce tumour burden and extend life. Clinical trials have traditionally used radiological response, time to progression and survival as measures of treatment efficacy. Health-related quality of life (HRQoL) is at least equally important or more important than survival for many patients with advanced cancer. Systematically collecting HRQoL data during chemotherapy can provide greater insight into treatment efficacy from the patient perspective.The primary aims of this study are to evaluate HRQoL in patients with advanced STS treated with chemotherapy over time, explore the decision-making process and patient reflection post-treatment.Methods and analysisThis is an observational, international cohort study for 132 patients aged ≥18 years with advanced STS treated at eight centres (three in the UK, five in the Netherlands). Patients will be recruited prior to starting first-line or third-line chemotherapy and invited to complete questionnaires using the Patient-Reported Outcomes Following Initial treatment and Long-term Evaluation of Survivorship registry (PROFILES); an established international registry for collection of cancer patient-reported outcomes. Online (or paper) questionnaires will be completed at baseline, each cycle of chemotherapy and 2–3 monthly during follow-up. The questionnaire package includes the Decisional Conflict Scale, Control Preferences Scale, Quality–Quantity Questionnaire, treatment expectations, European Organisation for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC-QLQ-C30), EORTC financial toxicity items, Work Ability Index, Functional Assessment of Cancer Therapy-General (FACT-G) items and Decisional Regret Scale. Clinical data will be extracted from patient records and linked with questionnaire responses. The primary outcome measure is the change in global HRQoL from baseline to after cycle 4 of first-line chemotherapy (based on published data showing that patients with advanced STS complete a median number of four cycles of first-line chemotherapy).Ethics and disseminationHeath Research Authority and Research Ethics Committee (REC 17/NI/0197). Results from the Health-related quality Of Life In patients with advanced Soft TIssue sarcomas treated with Chemotherapy (HOLISTIC) study will be published in peer-reviewed journals and disseminated at local, national and international conferences. We will also present our findings at any appropriate patient meetings and involve patients in study-related publications.Trial registration numberNCT03621332.

Evaluating Function and Health Related Quality of Life in Patients Treated for Extremity Soft Tissue Sarcoma

2006 ◽  
Vol 15 (9) ◽  
pp. 1439-1446 ◽  
Author(s):  
Daphne Schreiber ◽  
Robert S. Bell ◽  
Jay S. Wunder ◽  
Brian O’Sullivan ◽  
Robert Turcotte ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Soft Tissue ◽  
Soft Tissue Sarcoma ◽  
Health Related Quality ◽  
Extremity Soft Tissue Sarcoma ◽  
Related Quality ◽  
Health Related

Health-Related Quality of Life Is Decreased After Necrotizing Soft-Tissue Infections

2020 ◽  
Vol 245 ◽  
pp. 516-522 ◽  
Author(s):  
Jaco Suijker ◽  
Annebeth de Vries ◽  
Vincent M. de Jong ◽  
Tim Schepers ◽  
Kees J. Ponsen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Soft Tissue ◽  
Soft Tissue Infections ◽  
Health Related Quality ◽  
Related Quality ◽  
Necrotizing Soft Tissue Infections ◽  
Health Related

Health-related quality of life following treatment for extremity soft tissue sarcoma

2016 ◽  
Vol 114 (7) ◽  
pp. 821-827 ◽  
Author(s):  
Darin Davidson ◽  
Ronald D. Barr ◽  
Soha Riad ◽  
Anthony M. Griffin ◽  
Peter W. Chung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Soft Tissue ◽  
Soft Tissue Sarcoma ◽  
Health Related Quality ◽  
Extremity Soft Tissue Sarcoma ◽  
Related Quality ◽  
Health Related
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