scholarly journals Evaluation of a young adult renal and transplant transition clinic in a regional setting: Supporting young adults and parents' transition to self‐management

2021 ◽  
Vol 29 (1) ◽  
pp. 83-91
Author(s):  
Kim Jose ◽  
Anneke Le Roux ◽  
Lisa Jeffs ◽  
Matthew Jose
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Self Management ◽  
Regional Setting ◽  
Transition Clinic

scholarly journals Transitioning behaviourally infected HIVpositive young people into adult care: Experiences from the young person’s point of view

2013 ◽  
Vol 14 (1) ◽  
pp. 20-24 ◽  
Author(s):  
C Katusiime ◽  
R Parkes-Ratanshi ◽  
A Kambugu
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Young People ◽  
Best Practice ◽  
Sub Saharan Africa ◽  
Hiv Care ◽  
People Living With Hiv ◽  
Care Providers ◽  
Adult Care ◽  
Transition Clinic

Background. There is limited literature on the transition of young people living with HIV/AIDS (YPLHIV) from adolescent/young adult HIV care to adult HIV care in sub-Saharan Africa. Objective. We aimed to share the experiences of HIV-seropositive young adults transitioning into adult care, to inform best practice for such transitioning. Methods. We conducted a retrospective evaluation of the transition of 30 young adults aged ≥25 years from our adolescent/young adult HIV clinic at the Infectious Diseases Institute, Makerere University, Kampala, Uganda, to adult HIV healthcare services between January 2010 and January 2012. Results. Six major themes emerged from the evaluation: (i) adjustment to adult healthcare providers, (ii) the adult clinic logistics, (iii) positive attributes of the adult clinic, (iv) transfer to other health centres, (v) perceived sense of stigma, and (vi) patient-proposed recommendations. A model for transitioning YPLHIV to adult care was proposed. Conclusion. Th ere is a paucity of evidence to inform best practice for transitioning YPLHIV to adult care in resource-limited settings. Ensuring continuity in HIV care and treatment beyond young adult HIV programmes is essential, with provision of enhanced support beyond the transition clinic and youth-friendly approaches by adult-oriented care providers. S Afr J HIV Med 2013;14(1):20-23. DOI:10.7196/SAJHIVMED.885

scholarly journals Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study

2018 ◽  
Vol 1 ◽  
pp. 8 ◽  
Author(s):  
Deirdre M.J. Walsh ◽  
Lisa Hynes ◽  
Mary Clare O'Hara ◽  
Jenny Mc Sharry ◽  
Séan F. Dinneen ◽  
...  
Keyword(s):  
Systematic Review ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Young Adult ◽  
Service Providers ◽  
Phase 1 ◽  
Self Management ◽  
Theoretical Frameworks ◽  
Complex Behaviour

Background: Type 1 diabetes (T1D) is an auto-immune condition which requires intensive self-management. Diabetes self-management is challenging, especially during young adulthood. Effective interventions to improve outcomes for young adults (18-30 year olds) with T1D are needed. This paper describes the development of the D1 Now intervention, employing a user-centred approach to engage with stakeholders in parallel with the application of theory. Methods: Intervention development consisted of 4 phases: 1) the formation of a public and patient involvement (PPI) Young Adult Panel (YAP); 2) a systematic review to synthesise evidence regarding the effectiveness of interventions aimed at improving outcomes for young adults with T1D; 3) understand young adults’ diabetes self-management behaviour through engagement with key stakeholders; and 4) an expert consensus meeting to discuss self-management strategies identified in Phase 1 and 3 that would form the core components of the D1 Now intervention. Results: The YAP resulted in meaningful involvement between young adults, researchers and service providers. The systematic review highlighted a lack of quality intervention studies. Qualitative findings highlighted how young adult self-management is driven by complex interactions between external resources, which influence capability, and motivation. The expert panel in Phase 4 highlighted focus areas to improve outcomes for young adults and implementation strategies. Subsequent to these 4 phases, 3 intervention components have been identified: 1) a key worker to liaise with the young adult; 2) an online portal to facilitate relationship building between staff and young adults; and 3) an agenda setting tool to facilitate joint decision-making. Conclusions: This study described the systematic development of an intervention underpinned by theoretical frameworks and PPI, and has identified components for the D1 Now intervention. The resulting intervention content will now be subject to an intervention optimisation process.

Factors associated with self-management independence and quality of life for adolescents and young adults with spina bifida engaged in a guideline-based transition clinic

2021 ◽  
pp. 1-11
Author(s):  
Ellen Fremion ◽  
Rachel Madey ◽  
Kristen A. Staggers ◽  
Melissa Morrison-Jacobus ◽  
Larry Laufman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Spina Bifida ◽  
Self Report ◽  
Life Assessment ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Transition Clinic ◽  
Bladder Management

PURPOSE: To determine characteristics associated with self-management independence and quality of life (QOL) among adolescents and young adults with spina bifida (AYASB) engaged in a spina bifida (SB) health care transition clinic. METHODS: During SB transition visits, Eighty-eight AYASB ages 14-20 completed the Adolescent/Young Adult Self-management and Independence Scale II Self-Report/SB (AMIS II-SR/SB), scores ranging from 1–7 with 7 indicating full independence in activities, and the QUAlity of Life Assessment in Spina bifida for Teens (QUALAS-T), which has two subscales, family/independence (QFI) and bowel/bladder (QBB), with scores ranging from 0-100 with 100 indicating maximal QOL score. Demographic and clinical variables were collected from the electronic medical record. RESULTS: The baseline AMIS II-SR/SB score was 3.3 (SD 1.0). Baseline scores for QUALAS-T QFI and QBB subscales were 73.8 (SD 19.9) and 63.8 (SD 25.8). Older age was associated with a higher baseline AMIS II-SR/SB score (p = 0.017). Over time, AMIS II-SR/SB total significantly improved (p <  0.001), but QFI and QBB did not. AYASB not on chronic intermittent catheterization (CIC) and those using urethral CIC significantly improved in AMIS II-SR/SB total scores (p = 0.001), but those using abdominal channel CIC did not. CONCLUSION: Baseline bladder management method was associated with self-management improvement for AYASB engaged in a SB-specific transition clinic.

scholarly journals Supporting self-management and clinic attendance in young adults with type 1 diabetes: development of the D1 Now intervention

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Eimear C. Morrissey ◽  
Bláthín Casey ◽  
Lisa Hynes ◽  
Sean F. Dinneen ◽  
Molly Byrne ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Young Adult ◽  
Behaviour Change ◽  
Design Process ◽  
Self Management ◽  
Behaviour Change Techniques ◽  
Support Worker ◽  
High Blood Glucose

Abstract Background Self-management of type 1 diabetes (T1D) is complex and can be particularly challenging for young adults. This is reflected in the high blood glucose values and rates of clinic non-attendance in this group. There is a gap for a theory-based intervention informed by key stakeholder opinions to support and improve self-management in young adults with T1D. Purpose The aim of the work was to systematically co-develop an evidence-based and stakeholder-led intervention to support self-management and clinic engagement in young adults living with T1D in Ireland. Co-development was led by the Young Adult Panel. Methods The Behaviour Change Wheel was used to guide the development. Five evidence sources were used to inform the process. An iterative co-design process was used with the Young Adult Panel. Initial intervention components were refined and feasibility tested using qualitative methods. Results Environmental restructuring, education and training were selected as appropriate intervention functions. The co-design process, along with qualitative refinement and feasibility work, led to the final intervention content which consisted of 17 behaviour change techniques. The final D1 Now intervention consists of three components: a support worker, an agenda setting tool and an interactive messaging service. Conclusions The D1 Now intervention is now at pilot evaluation stage. Its transparent and systematic development will facilitate evaluation and future replications.

scholarly journals The adolescent and young adult self-management and independence scale (AMIS-II): Expanding evidence for validity and reliability

2021 ◽  
pp. 1-14
Author(s):  
Monique M. Ridosh ◽  
Colleen Stiles-Shields ◽  
Alexa Stern ◽  
Adrien M. Winning ◽  
Lara Anderson ◽  
...  
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Spina Bifida ◽  
Construct Validity ◽  
Internal Consistency ◽  
Internal Consistency Reliability ◽  
Assessment System ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Adaptive Behaviors

PURPOSE: The purpose of this longitudinal study was to evaluate the internal consistency reliability and construct validity of the Adolescent/Young Adult Self-Management and Independence Scale-II (AMIS-II), an interview-based measure of self-management for youth with chronic health conditions. METHODS: A diverse sample of adolescents and young adults (AYA) with spina bifida (SB) (n = 64 AYA; mean 20.88; age range 18–25 years) completed an AMIS-II interview. Six years earlier, parents from 55 families completed questionnaires that assessed children’s responsibility for SB-related care (Sharing of Spina Bifida Management Responsibilities) and their ability to perform skills across condition-related tasks (The Spina Bifida Independence Survey). Parents also reported on child’s communication skills, adaptive behaviors, and independent management of finances (Adaptive Behavior Assessment System-Second Edition; Scales of Independent Behavior-Revised). Descriptive and correlational analyses were conducted to assess the construct validity and the internal consistency reliability of the AMIS-II. RESULTS: The AMIS-II demonstrated excellent internal consistency reliability (AMIS-II total scale α= 0.95; subscales α= 0.90 –0.91). Evidence in support of construct validity was found in associations between the AMIS-II and measures of child responsibility for SB-related care, ability to perform condition-related skills, and adaptive behaviors (r’s = 0.378 –0.777; p’s <  0.05). CONCLUSION: This study provides further evidence of strong reliability and validity for the AMIS-II. Additional research with this measure will facilitate a better understanding of factors related to self-management behaviors in adolescents and young adults with spina bifida.

scholarly journals Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study

2018 ◽  
Vol 1 ◽  
pp. 8 ◽  
Author(s):  
Deirdre M.J. Walsh ◽  
Lisa Hynes ◽  
Mary Clare O'Hara ◽  
Jenny Mc Sharry ◽  
Séan F. Dinneen ◽  
...  
Keyword(s):  
Systematic Review ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Young Adult ◽  
Service Providers ◽  
Phase 1 ◽  
Self Management ◽  
Theoretical Frameworks ◽  
Complex Behaviour

Background: Type 1 diabetes (T1D) is an auto-immune condition which requires intensive self-management. Diabetes self-management is challenging, especially during young adulthood. Effective interventions to improve outcomes for young adults with T1D are needed. This paper describes the development of the D1 Now intervention, employing a user-centred approach to engage with stakeholders in parallel with the application of theory. Methods: Intervention development consisted of 4 phases: 1) the formation of a public and patient involvement (PPI) Young Adult Panel (YAP); 2) a systematic review to synthesise evidence regarding the effectiveness of interventions aimed at improving outcomes for young adults with T1D; 3) understand young adults’ diabetes self-management behaviour through engagement with key stakeholders; and 4) an expert consensus meeting to discuss self-management strategies identified in Phase 1 and 3 that would form the core components of the D1 Now intervention. Results: The YAP resulted in meaningful involvement between young adults, researchers and service providers. The systematic review highlighted a lack of quality intervention studies. Qualitative findings highlighted how young adult self-management is driven by complex interactions between external resources, which influence capability, and motivation. The expert panel in Phase 4 highlighted focus areas to improve outcomes for young adults and implementation strategies. Subsequent to these 4 phases, 3 intervention components have been identified: 1) a key worker to liaise with the young adult; 2) an online portal to facilitate relationship building between staff and young adults; and 3) an agenda setting tool to facilitate joint decision-making. Conclusions: This study described the systematic development of an intervention underpinned by theoretical frameworks and PPI, and has identified components for the D1 Now intervention. The resulting intervention content will now be subject to an intervention optimisation process.

Predictors of Health Self-Management in Young Adult Survivors of Childhood Cancer

2018 ◽  
Author(s):  
Jennifer L. Lee ◽  
Gunan R. Ganju ◽  
Jordan G. Marchak ◽  
Ronica Nanda ◽  
Mehul M. Shah ◽  
...  
Keyword(s):  
Young Adult ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Self Management ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

Sexual Dimorphism among the Kathmandu University Students Assessed by Anthropometric Studies

2018 ◽  
Vol 9 (05) ◽  
pp. 20469-20472
Author(s):  
Shakya R ◽  
Bhattacharya SC ◽  
Shrestha R
Keyword(s):  
Young Adults ◽  
Sexual Dimorphism ◽  
Young Adult ◽  
University Students ◽  
Plastic Surgery ◽  
Age Group ◽  
Adult Age ◽  
Clinically Normal ◽  
Crime Detection ◽  
Males And Females

Objectives: To observe the sexual dimorphism among the young adult age group ranging from 18-21 years, of Kathmandu University students by measuring craniofacial circumference and canthal distances. Rationale of the study: These data could be useful for establishing the craniofacial standards and adds an implementation on plastic surgery, crime detection as well as in the industrial field. Method: 300 clinically normal students of Kathmandu University aged between 18-21 years were examined for the study. Fronto-occipital circumference, outer and inner canthal distances were measured. All the parameters were compared between males and females. Result: The cranial circumference as well as the inner and outer canthal distance in males was found to be significantly higher as compared to the females. Conclusion: The results concluded that sexual dimorphism remarkably exists in young adults of Kathmandu University students.

JUVENTUDE, TRABALHO INFORMAL E SAÚDE MENTAL

2020 ◽  
pp. 126-144
Author(s):  
Marina Batista Chaves Azevedo de Souza ◽  
Isabela Aparecida de Oliveira Lussi
Keyword(s):  
Mental Health ◽  
Young Adults ◽  
Young Adult ◽  
Informal Sector ◽  
Informal Work ◽  
Informal Workers

Estudos apontam que jovens podem exercer trabalhos informais por necessidade não por desejo pessoal, o que pode acarretar impactos negativos na saúde mental. O objetivo do artigo foi apontar abordagens, destacar problemáticas e realizar reflexões sobre juventude, trabalho informal e saúde mental, através do mapeamento de estudos científicos. Realizou-se uma revisão de escopo pelo modelo de Arksey e O’Malley para mapear/sintetizar os estudos. Foram encontrados 51 artigos com a expressão: "informal work" OR "informal workers" OR "informal sector" OR "informal job" OR informality AND "mental health" AND "young adult" OR "young adults" OR young OR youth e 2640 teses e dissertações. Após as exclusões das duplicações, ensaios teóricos, revisões, trabalhos indisponíveis e estudos em que os títulos e resumos não abordavam a temática central, analisou-se 6 artigos científicos e 3 dissertações na íntegra. Os estudos são de anos diversos, a maioria quantitativos e investigam associações entre trabalhos informais/precários/desemprego e sintomas psiquiátricos. Questões geracionais não foram consideradas indicadoras de peculiaridades sobre o assunto nos artigos, mas duas dissertações trouxeram essa discussão. Foram inexistentes artigos que priorizam percepções do trabalhador sobre sua condição de trabalho/saúde, todavia, uma das dissertações analisadas abordou as condições sociais e o trabalho precário como sugestivos a problemas de saúde. Indica-se como necessário realizar reflexões que articulem saúde mental a condições políticas/socioeconômicas, considerando o trabalho como determinante de saúde/doença e a juventude como detentora de idiossincrasias que influenciam nas reflexões sobre o tema.

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