The personalisation of dementia services and existential realities: understanding Sikh carers caring for an older person with dementia in Wolverhampton

2009 ◽  
Vol 2 (4) ◽  
pp. 10-21 ◽  
Author(s):  
Karan Jutlla ◽  
Neil Moreland
Keyword(s):  
Older Person ◽  
Person With Dementia ◽  
Dementia Services

scholarly journals How do lesbian and gay people experience dementia?

Dementia ◽  
2016 ◽  
Vol 17 (4) ◽  
pp. 452-477 ◽  
Author(s):  
James McParland ◽  
Paul M Camic
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Subjective Experience ◽  
Dyadic Relationships ◽  
Heterosexual Couples ◽  
Structured Interviews ◽  
Inclusive Practice ◽  
Lesbian And Gay ◽  
Psychosocial Influences ◽  
Person With Dementia ◽  
Dementia Services

Introduction The subjective experience of dementia for lesbian and gay individuals is largely absent from the extant literature. This study aimed to explore what it means to experience dementia in this context given the documented psychosocial influences facing this population. A second aim was to develop understanding of these experiences within dyadic relationships. Method Ten semi-structured interviews were conducted with lesbian and gay individuals with dementia and people with whom they had a significant relationship and analysed using interpretative phenomenological analysis. Results Three superordinate themes, reflecting characteristics of participants’ experience, were identified: duality in managing dementia, giving yourself away vs. holding onto yourself and relationships as sheltered harbours. Ten subthemes indicated the processes that were adopted to adjust and make sense of the experience of dementia. These included decisions around concealment, ensuring safety and the promotion of personhood and couplehood. In line with findings for heterosexual couples, partners had an important role in maintaining the identity of the person with dementia. Conclusions Results suggest additional and distinct challenges, including experienced and perceived discrimination and heterosexism. In response to these conditions, interviewees worked to resist a ‘double stigma’ of dementia and sexuality. Findings indicated areas of improvement for dementia services, including training in inclusive practice.

scholarly journals Caring for an older person with dementia in the Emergency Department (ED): An Appreciative Inquiry exploring family member and ED nurse experiences

2019 ◽  
Vol 28 (15-16) ◽  
pp. 2801-2812
Author(s):  
Sarah Watkins ◽  
Fiona Murphy ◽  
Catriona Kennedy ◽  
Belinda Dewar ◽  
Margaret Graham
Keyword(s):  
Emergency Department ◽  
Family Member ◽  
Appreciative Inquiry ◽  
Older Person ◽  
Person With Dementia

scholarly journals But when can I go home?

2015 ◽  
Vol 21 (5) ◽  
pp. 313-314
Author(s):  
David J. Findlay
Keyword(s):  
Clinical Practice ◽  
Perceived Risk ◽  
Case Law ◽  
Mental Capacity ◽  
Older Person ◽  
General Hospitals ◽  
Ethical Duty ◽  
Return Home ◽  
Person With Dementia ◽  
Professional Judgement

SummaryAssessment of mental capacity is, or should be, a regular part of daily clinical practice in general hospitals. It is both particularly important and potentially complex in relation to an older person with dementia wishing to return home despite concern over perceived risk. Case law provides some guidance, but an ethical duty remains for clinicians to develop and hone their professional judgement in this increasingly important area of practice.

A person-centred communication approach to working with older people who have dementia

2020 ◽  
Vol 14 (11) ◽  
pp. 575-579
Author(s):  
Deborah June Coleman ◽  
Nawal Ali S Asiri
Keyword(s):  
Problem Solving ◽  
Older People ◽  
Patient Care ◽  
Cognitive Abilities ◽  
Signs And Symptoms ◽  
Healthcare Setting ◽  
Older Person ◽  
Problem Solving Skills ◽  
Communication Approach ◽  
Person With Dementia

Dementia is prevalent among the older population, especially people over 65 years, and is characterised by deterioration in a person's cognitive abilities ( NHS, 2017 ). The main signs and symptoms of dementia include loss of memory, impaired thinking and problem-solving skills, and difficulties with communication. Effective communication in the healthcare setting will ensure patient care is safe and enable support workers to understand the needs of the older person with dementia. Communication is a vital aspect of healthcare, making it essential for support workers to be aware of challenges that may hinder communication and to identify strategies to enable the person to communicate their needs for as long as possible.

scholarly journals Capacity to give evidence in court: issues that may arise when a client with dementia is a victim of crime

2005 ◽  
Vol 29 (9) ◽  
pp. 324-326 ◽  
Author(s):  
Rowena Jones ◽  
Tony Elliott
Keyword(s):  
Mental Illnesses ◽  
Older Person ◽  
Legal Proceedings ◽  
The Individual ◽  
Serious Mental Illnesses ◽  
Person With Dementia ◽  
At Home

There are a number of issues that arise when an older person with dementia is a victim of crime. The safety of the individual and how to prevent further such incidents occurring is a clear priority. There may be considerations such as whether the person can continue to live safely at home. In addition, there is the prospect of future legal proceedings, and concerns such as the person's capacity to give evidence, and whether they will be able to cope with the pressures of attending court. Similar issues are also pertinent to younger people with serious mental illnesses living in the community.

scholarly journals Strategies to support engagement and continuity of activity during mealtimes for families living with dementia; a qualitative study

2021 ◽  
Author(s):  
Heather H. Keller ◽  
Lori Schindel Martin ◽  
Sherry Dupuis ◽  
Holly Reimer ◽  
Rebecca Genoe
Keyword(s):  
Qualitative Study ◽  
Social Engagement ◽  
Family Care ◽  
Further Education ◽  
Older Person ◽  
Care Partners ◽  
The Moment ◽  
Person With Dementia ◽  
Family Mealtimes

Background Mealtimes are an essential part of living and quality of life for everyone, including persons living with dementia. A longitudinal qualitative study provided understanding of the meaning of mealtimes for persons with dementia and their family care partners. Strategies were specifically described by families to support meaningful mealtimes. The purpose of this manuscript is to describe the strategies devised and used by these families living with dementia. Methods A longitudinal qualitative study was undertaken to explore the meaning and experience of mealtimes for families living with dementia over a three-year period. 27 families [older person with dementia and at least one family care partner] were originally recruited from the community of South-Western Ontario. Individual and dyad interviews were conducted each year. Digitally recorded transcripts were analyzed using grounded theory methodology. Strategies were identified and categorized. Results Strategies to support quality mealtimes were devised by families as they adapted to their evolving lives. General strategies such as living in the moment, as well as strategies specific to maintaining social engagement and continuity of mealtime activities were reported. Conclusions In addition to nutritional benefit, family mealtimes provide important opportunities for persons with dementia and their family care partners to socially engage and continue meaningful roles. Strategies identified by participants provide a basis for further education and support to families living with dementia.

scholarly journals Repelling neoliberal world-making? How the ageing–dementia relation is reassembling the social

2018 ◽  
Vol 66 (4) ◽  
pp. 832-856 ◽  
Author(s):  
Joanna Latimer
Keyword(s):  
Everyday Life ◽  
Later Life ◽  
The Other ◽  
Older Person ◽  
Root Cause ◽  
Film And Television ◽  
The Social ◽  
The Many ◽  
Person With Dementia ◽  
Modes Of Ordering

Growing old ‘badly’ is stigmatizing, a truism that is enrolled into contemporary agendas for the biomedicalization of ageing. Among the many discourses that emphasize ageing as the root cause of later life illnesses, dementia is currently promoted as an epidemic and such hyperbole serves to legitimate its increasing biomedicalization. The new stigma however is no longer contained to simply having dementia, it is failing to prevent it. Anti-ageing cultures of consumption, alongside a proliferation of cultural depictions of the ageing–dementia relation, seem to be refiguring dementia as a future to be worked on to eliminate it from our everyday life. The article unpacks this complexity for how the ageing–dementia relation is being reassembled in biopolitics in ways that enact it as something that can be transformed and managed. Bringing together Bauman’s theories of how cultural communities cope with the otherness of the other with theories of the rationale for the making of monsters – such as the figure of the abject older person with dementia – the article suggests that those older body-persons that personify the ageing–dementia relation, depicted in film and television for example, threaten the modes of ordering underpinning contemporary lives. This is not just because they intimate loss of mind, or because they are disruptive, but because they do not perform what it is to be ‘response-able’ and postpone frailty through managing self and risk.

Rethinking dementia: how autonomy and control can be fostered through the development of person centred services

2014 ◽  
Vol 18 (2) ◽  
pp. 82-89 ◽  
Author(s):  
Hugo de Waal
Keyword(s):  
Lived Experience ◽  
Service Design ◽  
System Level ◽  
Care Planning ◽  
Planning Tool ◽  
Content Type ◽  
Brain Functions ◽  
Person With Dementia ◽  
And Control ◽  
Dementia Services

Purpose – The purpose of this paper is to describe the loss of autonomy and control as the core problem in dementia and highlights the individuality of the lived experience of dementia. It analyses the failure of dementia services to keep the individual central to their design and identifies that failure as the unavoidable result of methodological error. Design/methodology/approach – The paper guides the reader through the conceptual error in dementia service design and highlights the disconnect between clinical symptomatology and the lived experience of the person with dementia. The analysis continues with the fact that dementia diminishes those brain functions central to the lived individuality, a characteristic which should inform service design. Findings – The paper proposes an approach, building on these insights, to build a personalised care plan and resource centre, thus filling the gap system-level design of dementia services are bound to leave open. Practical implications – The paper presents a pragmatic approach using a digital, portable and editable care planning tool and personalised resource centre, which can be populated by the person with dementia and/or carer(s) with facilitation from, e.g. trained volunteers or others. Social implications – The care planning tool will have a range of functions, including facilities to aid staying in touch with relatives or peers (or anyone else, dependent on personal preferences), enable building peer-to-peer support networks and thus minimise social isolation and loneliness. Originality/value – There is limited understanding of the reasons why dementia services struggle to be user-friendly, accessible, transparent and responsive. The paper provides new insight into why this is comprehensively the case and its description of a digital healthcare platform, owned and formulated by the person with dementia, directly builds upon this insight and identifies how such a device can form part of a solution.

scholarly journals Caring for older people with dementia in the emergency department

2020 ◽  
Vol 29 (12) ◽  
pp. 692-699
Author(s):  
Sarah Watkins ◽  
Fiona Murphy ◽  
Catriona Kennedy ◽  
Margaret Graham ◽  
Belinda Dewar
Keyword(s):  
Emergency Department ◽  
Older People ◽  
Negative Consequences ◽  
Older Person ◽  
Primary Research ◽  
Exclusion Criteria ◽  
People With Dementia ◽  
Need Support ◽  
Person With Dementia ◽  
Partnership Approach

Background: Admission to an emergency department (ED) may expose the older person with dementia to a range of negative consequences, including a deterioration in their behavioural symptoms. The authors conducted a review of primary research relating to the experiences of older people with dementia, their carers and ED nurses, to understand how these experiences might inform nursing practice. Methods: Integrative review with a search of the electronic databases of Medline, CINAHL and PSYCHINFO using specified inclusion and exclusion criteria. Results: Three themes were identified: carers and older people with dementia—waiting and worrying; nurses juggling priorities; and strategies for improvement—taking a partnership approach. Conclusion: Older people with dementia may be exposed to disparities in treatment in the ED. A practice partnership between carers and ED nurses may help to prevent this. ED nurses need support to blend technical- and relationship-centred care. Participatory research exploring the experiences of older people with dementia, their carers and ED nurses is needed.

Sign in / Sign up

Export Citation Format

Share Document