scholarly journals The Israeli Rett Syndrome Center. Evaluation and Transdisciplinary Play-Based Assessment

2006 ◽  
Vol 6 ◽  
pp. 1302-1313 ◽  
Author(s):  
Meir Lotan ◽  
Iris Manor-Binyamini ◽  
Cochavit Elefant ◽  
Judy Wine ◽  
Einat Saraf ◽  
...  
Keyword(s):  
Rett Syndrome ◽  
Potential Model ◽  
Medical Center ◽  
Genetic Origin ◽  
Rehabilitation Team ◽  
Residential Settings ◽  
Functional Difficulties ◽  
The Individual ◽  
Similar Evaluation

Rett syndrome (RS) is a neuro-developmental syndrome of genetic origin, which mainly affects women. Individuals diagnosed with RS exhibit a variety of functional difficulties, which impair their quality of life. The variety of impairments and the differences between each child makes it necessary to administer skilled treatment, individually tailored to each client. Since the foundation of proper treatment is based on a structured, well administered, insightful assessment, the individual with RS with her complex array of difficulties should benefit from such a procedure. This notion has led to the establishment of the Israel Rett Syndrome Center. The center includes a medical branch located at the Safra Shildren's Medical Center at Tel Hashomer and an education/rehabilitation team, who performs assessments in special education facilities and residential settings throughout Israel. The assessment team works by means of arena assessment according to the concept of play-based assessment. This article presents the working model used by the education/rehabilitation team at the Israeli Rett Syndrome Center. The principles and working characteristics of the Israel Rett Syndrome Center team are suggested here as a potential model for establishing additional teams, presenting similar evaluation services for other individuals with RS as well as for analogous populations.

scholarly journals The Digestive System and Nutritional Considerations for Individuals with Rett Syndrome

2006 ◽  
Vol 6 ◽  
pp. 1737-1749 ◽  
Author(s):  
Meir Lotan ◽  
Lilit Zysman
Keyword(s):  
Quality Of Life ◽  
Gastroesophageal Reflux ◽  
Rett Syndrome ◽  
Functional Ability ◽  
Digestive System ◽  
Failure To Thrive ◽  
Genetic Origin ◽  
Functional Difficulties

Rett syndrome (RS) is a neurodevelopmental syndrome of genetic origin that mainly affects females. Individuals diagnosed with RS exhibit a variety of functional difficulties that impair their quality of life. One of the affected systems is the digestive system, where 74% of persons with RS have abnormal functioning. The affected digestive system causes this population to present an array of problems, such as gastroesophageal reflux (GER), constipation, and malnutrition, leading to failure to thrive (FTT), which resolves in reduced functional ability. Due to the severe effects of the dysfunctional digestive system of individuals with RS, this article will describe the problems common to this population, as well as propose some clinical suggestions for intervention. .

scholarly journals Osteoporosis in Rett Syndrome: A Study on Normal Values

2006 ◽  
Vol 6 ◽  
pp. 1619-1630 ◽  
Author(s):  
Lilit Zysman ◽  
Meir Lotan ◽  
Bruria Ben-Zeev
Keyword(s):  
Rett Syndrome ◽  
Bone Strength ◽  
Significant Positive Correlation ◽  
Normal Values ◽  
Current Knowledge ◽  
Young Age ◽  
Pathological Fractures ◽  
Primary Caretakers ◽  
The Individual

Osteoporosis is the reduction of calcium density in bones, usually evident in postmenopausal females, yet the tendency for osteoporosis can also be identified at a young age, especially in patients with chronic diseases, disabilities, and on chronic anticonvalsant treatment. Individuals with Rett syndrome (RS) have been found to show signs of osteoporosis at a young age. This condition may cause pathological fractures, inflict pain, and seriously damage mobility. In such cases, the quality of life of the individual and her primary caretakers will be severely hampered. This article reviews the current knowledge of the phenomenon and suggests some clinical directions for the individual with RS who shows signs of osteoporosis. The article also presents novel findings from a screening test of bone strength in 35 individuals with RS at different ages using the Sunlight Omnisense 7000P ultrasound apparatus. The primary results from this investigation showed a strong and significant positive correlation between calcium intake and bone strength (p< 0.0001) as well as bone density Z values (p< 0.005). The occurrence and frequency of fractures were found connected with reduced bone strength in measurements of both the radius (p< 0.0001) and the tibia (p< 0.004) as well as with negative bone strength Z values (p= 0.03). Other findings specified within the content of the article support the implementation of a comprehensive antiosteoporotic preventive management for this population.

scholarly journals Alternative Therapeutic Intervention for Individuals with Rett Syndrome

2007 ◽  
Vol 7 ◽  
pp. 698-714 ◽  
Author(s):  
Meir Lotan
Keyword(s):  
Rett Syndrome ◽  
Daily Living ◽  
Cognitive Rehabilitation ◽  
Hyperbaric Chamber ◽  
Craniosacral Therapy ◽  
Relevant Case ◽  
Auditory Integration Training ◽  
Auditory Integration ◽  
The Individual

The individual with Rett syndrome (RS) displays an array of challenging difficulties in all areas of daily living. Since there is no cure for the disorder at this moment, parents of the individual with Rett search for different interventional modalities that will improve the condition and quality of life for their child. During the last few years, many individuals with RS have experienced different kinds of interventions. This paper presents these methods with relevant case stories for others to share the possibilities. This paper reviews the following interventions: animal-assisted therapy, such as dolphin therapy and dog-assisted therapy; auditory integration training; hyperbaric chamber; manual therapy, such as acupuncture/acupressure, aromatherapy, craniosacral therapy, Mayo facial release, Treager massage, chiropractor, and Reiki; mental modification techniques, such as Lovas and cognitive rehabilitation; motoric interventions, such as advanced biomechanical rehabilitation, patterning/Doman-DeLacato approach, and yoga. The present paper is not a recommendation for any of the above-mentioned techniques, but merely a review of different interventions available for the inquisitive parent of the individual with RS.

scholarly journals Dynamics of quality of life in orthopedic patients during an outpatient physical therapy program

2020 ◽  
pp. 175-182
Author(s):  
S. Fedorenko ◽  
О. Lazarieva ◽  
V. Vitomskyi ◽  
M. Vitomska
Keyword(s):  
Quality Of Life ◽  
Physical Therapy ◽  
Medical Center ◽  
Life Assessment ◽  
International Classification Of Functioning ◽  
Therapy Program ◽  
Quality Of Life Indicators ◽  
The Individual ◽  
Orthopedic Patients

Quality of life indicators are key in assessing the effectiveness of physical therapy now, as they reflect the physical, psychological and social functioning of the individual. Objective: to determine the dynamics of quality of life in outpatients with disorders of orthopedic profile during a course of physical therapy, depending on the type of attitude to the disease. Research methods: quality of life assessment was conducted using the internationally standardized Health Status Survey. Patient grouping was performed using the International Classification of Functioning and the method of determining types of attitudes to the disease. The obtained results were processed by methods of mathematical statistics. The study involved 113 patients who underwent a course of physical therapy at FESCO Medical Center during 2013-2015. Results. The analysis revealed a number of features of the dynamics of quality of life depending on the localization of damage to the musculoskeletal system and the type of attitude to the disease. In particular, among lower-impaired patients group with irrational attitude to the disease had worse dynamics in the scales “physical functioning”, “role limitations due to physical health”, “pain”, “vitality”, “mental health” and "physical status". Because the dynamics in the groups with irrational attitude to the disease were statistically worse in a significant number of indicators, no comparison of the final indicators with the groups of patients with the rational attitude to the disease was observed. Conclusion. The existence of statistically significant differences in the dynamics of quality of life among patients with orthopedic profile during physical therapy at the outpatient stage was confirmed, depending on the type of attitude to the disease. The results obtained should be considered to improve the physical therapy system and increase its effectiveness. This is necessary first of all for patients with irrational attitude to the disease, as a significant number of the studied indicators were worse in these patients, and also had less pronounced dynamics compared to patients with rational psychotypes. This requires identifying the characteristics of managing such patients and improving management in the physical therapy system.

scholarly journals Quality of Life of Women from Families of Martyred Individuals in the Kurdistan Region of Iraq as a Conflict Area in the Middle East 

2020 ◽  
Author(s):  
Hamdia Mirkhan Ahmed
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Medical Center ◽  
Cross Sectional Study ◽  
Kurdistan Region ◽  
Chi Square ◽  
Cross Sectional ◽  
Kurdish Women ◽  
The Individual

Abstract Background: Quality of life (QOL) research develops data and insight into issues that pertain not only to the individual, but that can also apply to the population as a whole. This study aimed to analyze the QOL of Kurdish women from families of martyred individuals in the Kurdistan region of Iraq. Methods: A cross-sectional study of 380 women from families of martyred individuals was conducted. All women were patients at the Medical Center of Martyr Families in Erbil City from January 2018 to April 2019. Data were collected through interviews and the WHOQOL-BREF scale was used to measure QOL. The women’s QOL scores were divided into four categories (i.e., quartiles): 1st, 2nd, 3rd and 4th quartile. Kruskal-Wallis and Chi-Square tests were used for data Analysis. Results: The women’s QOL scores fell into the following quartiles: Overall QOL and General Health (n=66.6%) in the 1st quartile, Physical and Psychological Health (n=56.9%) in the 2nd quartile, Social Relationships (n=47.9%) in the 3rd quartile, Environmental health (n=85.6%) in the 2nd and 3rd quartile. The total QOL of more than half (n=52.1%) of the women studied were in 1st and 2nd quartiles. Conclusion: Women from families of martyred individuals were not satisfied with their QOL, especially in terms of Physical and Psychological Domains. International political and humanitarian actions are needed to reduce the destructive consequences of war and conflict on these suffering women.

scholarly journals Quality of life of women from families of martyred individuals in the Kurdistan region of Iraq as a conflict area in the Middle East

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Hamdia Mirkhan Ahmed
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Medical Center ◽  
Cross Sectional Study ◽  
Kurdistan Region ◽  
Chi Square ◽  
Cross Sectional ◽  
Kurdish Women ◽  
The Individual

Abstract Background Quality of life (QOL) research develops data and insight into issues that pertain not only to the individual, but that can also apply to the population as a whole. This study aimed to analyze the QOL of Kurdish women from families of martyred individuals in the Kurdistan region of Iraq. Methods A cross-sectional study of 380 women from families of martyred individuals was conducted. All women were patients at the Medical Center of Martyr Families in Erbil City from January 2018 to April 2019. Data were collected through interviews and the WHOQOL-BREF scale was used to measure QOL. The women’s QOL scores were divided into four categories (i.e., quartiles): 1st, 2nd, 3rd and 4th quartile. Kruskal-Wallis and Chi-Square tests were used for data Analysis. Results The women’s QOL scores fell into the following quartiles: Overall QOL and General Health (n = 66.6%) in the 1st quartile, Physical and Psychological Health (n = 56.9%) in the 2nd quartile, Social Relationships (n = 47.9%) in the 3rd quartile, Environmental health (n = 85.6%) in the 2nd and 3rd quartile. The total QOL of more than half (n = 52.1%) of the women studied were in 1st and 2nd quartiles. Conclusion Women from families of martyred individuals were not satisfied with their QOL, especially in terms of Physical and Psychological Domains. International political and humanitarian actions are needed to reduce the destructive consequences of war and conflict on these suffering women.

scholarly journals Quality of Life of Women from Families of Martyred Individuals in the Kurdistan Region of Iraq as a Conflict Area in the Middle East 

2020 ◽  
Author(s):  
Hamdia Mirkhan Ahmed
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Medical Center ◽  
Cross Sectional Study ◽  
Kurdistan Region ◽  
Chi Square ◽  
Cross Sectional ◽  
Kurdish Women ◽  
The Individual

Abstract Background: Quality of life (QOL) research develops data and insight into issues that pertain not only to the individual, but that can also apply to the population as a whole. This study aimed to analyze the QOL of Kurdish women from families of martyred individuals in the Kurdistan region of Iraq. Methods: A cross-sectional study of 380 women from families of martyred individuals was conducted. All women were patients at the Medical Center of Martyr Families in Erbil City from January 2018 to April 2019. Data were collected through interviews and the WHOQOL-BREF scale was used to measure QOL. The women’s QOL scores were divided into four categories (i.e., quartiles): 1st, 2nd, 3rd and 4th quartile. Kruskal-Wallis and Chi-Square tests were used for data Analysis. Results: The women’s QOL scores fell into the following quartiles: Overall QOL and General Health (n=66.6%) in the 1st quartile, Physical and Psychological Health (n=56.9%) in the 2nd quartile, Social Relationships (n=47.9%) in the 3rd quartile, Environmental health (n=85.6%) in the 2nd and 3rd quartile. The total QOL of more than half (n=52.1%) of the women studied were in 1st and 2nd quartiles. Conclusion: Women from families of martyred individuals were not satisfied with their QOL, especially in terms of Physical and Psychological Domains. International political and humanitarian actions are needed to reduce the destructive consequences of war and conflict on these suffering women.

Semi-automated methods for 3-D reconstruction of macromolecular complexes

1995 ◽  
Vol 53 ◽  
pp. 42-43
Author(s):  
B. Carragher ◽  
M. Whittaker
Keyword(s):  
Three Dimensional ◽  
Time Saving ◽  
Macromolecular Complexes ◽  
Symmetry Properties ◽  
Dimensional Reconstruction ◽  
Experienced Operator ◽  
Projection Images ◽  
The Individual ◽  
Natural Symmetry

Techniques for three-dimensional reconstruction of macromolecular complexes from electron micrographs have been successfully used for many years. These include methods which take advantage of the natural symmetry properties of the structure (for example helical or icosahedral) as well as those that use single axis or other tilting geometries to reconstruct from a set of projection images. These techniques have traditionally relied on a very experienced operator to manually perform the often numerous and time consuming steps required to obtain the final reconstruction. While the guidance and oversight of an experienced and critical operator will always be an essential component of these techniques, recent advances in computer technology, microprocessor controlled microscopes and the availability of high quality CCD cameras have provided the means to automate many of the individual steps.During the acquisition of data automation provides benefits not only in terms of convenience and time saving but also in circumstances where manual procedures limit the quality of the final reconstruction.

AAC Supports for Individuals With Rett Syndrome Across the Lifespan

2015 ◽  
Vol 24 (3) ◽  
pp. 74-85
Author(s):  
Sandra M. Grether
Keyword(s):  
Rett Syndrome ◽  
Communication Skills ◽  
Preliminary Analysis ◽  
Multidisciplinary Approach ◽  
Motor Deficits ◽  
Complex Profile ◽  
Communication Behaviors ◽  
The Individual

Individuals with Rett syndrome (RS) present with a complex profile. They benefit from a multidisciplinary approach for diagnosis, treatment, and follow-up. In our clinic, the Communication Matrix © (Rowland, 1990/1996/2004) is used to collect data about the communication skills and modalities used by those with RS across the lifespan. Preliminary analysis of this data supports the expected changes in communication behaviors as the individual with RS ages and motor deficits have a greater impact.

Manageable Self in the Early Hellenistic Era

2010 ◽  
Vol 39 (2) ◽  
pp. 34-36
Author(s):  
Vaia Touna
Keyword(s):  
Social Economic ◽  
Ancient Greece ◽  
The Self ◽  
Hellenistic Period ◽  
Political Conditions ◽  
The Individual

This paper argues that the rise of what is commonly termed "personal religion" during the Classic-Hellenistic period is not the result of an inner need or even quality of the self, as often argued by those who see in ancient Greece foreshadowing of Christianity, but rather was the result of social, economic, and political conditions that made it possible for Hellenistic Greeks to redefine the perception of the individual and its relationship to others.

Sign in / Sign up

Export Citation Format

Share Document