scholarly journals Factors During Pregnancy, Delivery and Birth Affecting Global Quality of Life of the Adult Child at Long-term Follow-up. Results from the Prospective Copenhagen Perinatal Birth Cohort 1959-61

2005 ◽  
Vol 5 ◽  
pp. 933-941 ◽  
Author(s):  
Søren Ventegodt ◽  
Trine Flensborg-Madsen ◽  
Niels Jørgen Andersen ◽  
Joav Merrick
Keyword(s):  
Quality Of Life ◽  
Birth Cohort ◽  
Adult Child ◽  
Well Being ◽  
Global Quality ◽  
Global Quality Of Life ◽  
Pregnancy And Delivery ◽  
In Pregnancy

This paper presents a prospective cohort study, where we explore associations between pregnancy, delivery and the global quality of life (QOL) of the adult child 31-33 years later. The data is from the Copenhagen Perinatal Birth Cohort 1959-61 using two sets of questionnaires send to 7,222 persons: one filled out by physicians during pregnancy and delivery, while the follow-up questionnaire was completed by the adult children 31-33 years later. The main outcome measures were objective factors describing pregnancy and delivery along with global quality of life, including: Well-being, life satisfaction, happiness, fulfilment of needs, experience of life's temporal and spatial domains, expression of life's potentials and objective measures. Results showed two main factors in pregnancy that seemed to be associated with a reduced quality of life for the child 31-33 years later: the mother's smoking habits and the mother's medication–especially painkillers and different psychopharmacological drugs with the association being most prevalent early in pregnancy. Considering what can and do go wrong during the various stages of labour and delivery and considering how few connections we found between the factors examined and the later global QOL, it seems that the child is remarkably resilient to external influences during pregnancy and delivery concerned with global QOL, as an adult.

scholarly journals The health and social situation of the mother during pregnancy and global quality of life of the child as an adult. Results from the prospective Copenhagen Perinatal Cohort 1959-1961

2005 ◽  
Vol 5 ◽  
pp. 950-958 ◽  
Author(s):  
Søren Ventegodt ◽  
Trine Flensborg-Madsen ◽  
Niels Jørgen Andersen ◽  
Joav Merrick
Keyword(s):  
Quality Of Life ◽  
Adult Child ◽  
Social Situation ◽  
Well Being ◽  
Global Quality ◽  
Global Quality Of Life ◽  
Common Notion ◽  
Spatial Domains ◽  
Health Situation

A prospective cohort study (Copenhagen Perinatal Birth Cohort 1959-61) of 7,222 persons was used in order to explore the association between the social and health situation during pregnancy and the global quality of life (QOL) of the adult child 31-33 years later. Two sets of questionnaires were used with one filled out by physicians during pregnancy and one filled out by the adult children 31-33 years later. The questionnaires included mother's situation during pregnancy and global QOL of the child at follow-up: Well-being, life satisfaction, happiness, fulfilment of needs, experience of life’s temporal and spatial domains, expression of life’s potentials and objective measures. The only indicators to have clear connections with a reduced quality of life were the cases of mother's with syphilis (8.5%), mother's congenital malformations (8.8%), low social group (6.9%) and failing contraception (3.8%). The results obtained repudiate the common notion and hypothesis that the mother's situation during pregnancy is highly important for the quality of life that the child experience as an adult. This suggest that the aspects important for quality of life later on are not found solely in early conditions, but instead more dependent on later attitude towards life of that specific person.

Quality of Life After Transhiatal Compared With Extended Transthoracic Resection for Adenocarcinoma of the Esophagus

2004 ◽  
Vol 22 (20) ◽  
pp. 4202-4208 ◽  
Author(s):  
A.G.E.M. de Boer ◽  
J.J.B. van Lanschot ◽  
J.W. van Sandick ◽  
J.B.F. Hulscher ◽  
P.F.M. Stalmeier ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Symptoms ◽  
Well Being ◽  
Physical Symptoms ◽  
Activity Level ◽  
Gradual Improvement ◽  
Global Quality ◽  
Global Quality Of Life ◽  
Generic Quality

PurposeTo assess 3 years of quality of life in patients with esophageal cancer in a randomized trial comparing limited transhiatal resection with extended transthoracic resection.Patients and MethodsQuality-of-life questionnaires were sent at baseline and at 5 weeks; 3, 6, 9, and 12 months; and 1.5, 2, 2.5, and 3 years after surgery. Physical and psychological symptoms, activity level, and global quality of life were assessed with the disease-specific Rotterdam Symptom Checklist. Generic quality of life was measured with the Medical Outcomes Study Short Form-20.ResultsA total of 199 patients participated. Physical symptoms and activity level declined after the operation and gradually returned toward baseline within the first year (P < .01). Psychological well-being consistently improved after baseline (P < .01), whereas global quality of life showed a small initial decline followed by continuous gradual improvement (P < .01). Quality of life stabilized in the second and third year. Three months after the operation, patients in the transhiatal esophagectomy group (n = 96) reported fewer physical symptoms (P = .01) and better activity levels (P < .01) than patients in the transthoracic group (n = 103), but no differences were found at any other measurement point. For psychological symptoms and global quality of life, no differences were found at any follow-up measurement. A similar pattern was found for generic quality of life.ConclusionNo lasting differences in quality of life of patients who underwent either transhiatal or transthoracic resection were found. Compared with baseline, quality of life declined after the operation but was restored within a year in both groups.

scholarly journals FACTORS AFFECTING QUALITY OF LIFE AND LEVEL OF SOCIAL SUPPORT IN CANCER PATIENTS

2017 ◽  
Vol 3 (2) ◽  
pp. 54-64 ◽  
Author(s):  
Ayse Berivan BAKAN ◽  
Asuman GURAKSIN
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cancer Patients ◽  
Social Relations ◽  
Perceived Social Support ◽  
Well Being ◽  
Global Quality ◽  
Quality Of Life Scale ◽  
Global Quality Of Life

Background: When people face health problems, their life satisfaction levels and social relations could be ruined. When it comes to an eerie, deadly and chronic disease like cancer, the individual is much more likely to be affected by it.Objective: This descriptive study aims to identify quality of life and level of social support and the affecting factors in cancer patients.Methods: The sample included 170 patients who applied to Internal Diseases, Radiation Oncology, Thorax diseases clinics and Chemotherapy polyclinic in a university hospital in Turkey between March and August, 2005, who met the research criteria, and who volunteered to participate in the study. The sample represented 20 % of the target population. Data were collected through SF-36 Quality of Life Scale and Multidimensional Scale of Perceived Social Support.Results: The patients’ Global Quality of Life mean score was found 38.67 ± 13.64, and mean score for the Perceived Social Support was found 59.19 ± 17.5. Global Quality of Life score was higher in those who underwent an operation and who received ambulatory health care. Although Global Quality of Life was not influenced by the gender variable, male patients’ level of well-being was found to be higher. Perceived Social Support total score was found to be higher in those who knew about their disease. Family support was found to be higher in those who were married and who lived in town; it was found to be low in those who had low socio-economic level and who received inpatient treatment. Friend support was found to be high in those who knew about their disease.Conclusion: There was a linear relationship between Perceived Social Support and Quality of Life. It is recommended that more studies with wider groups of participants would shed more light to the issue of identifying quality of life, social support level and the relationships between them in cancer patients.

scholarly journals Quality of Life Theory I. The IQOL Theory: An Integrative Theory of the Global Quality of Life Concept

2003 ◽  
Vol 3 ◽  
pp. 1030-1040 ◽  
Author(s):  
Soren Ventegodt ◽  
Joav Merrick ◽  
Niels Jorgen Andersen
Keyword(s):  
Quality Of Life ◽  
Meaning In Life ◽  
Good Life ◽  
Satisfaction With Life ◽  
Well Being ◽  
Biological Information ◽  
Integrative Theory ◽  
Global Quality ◽  
Global Quality Of Life

Quality of life (QOL) means a good life and we believe that a good life is the same as living a life with a high quality. This paper presents the theoretical and philosophical framework of the Danish Quality of Life Survey, and of the SEQOL, QOL5, and QOL1 questionnaires.The notion of a good life can be observed from subjective to the objective, where this spectrum incorporates a number of existing quality of life theories. We call this spectrum the integrative quality-of-life (IQOL) theory and discuss the following aspects in this paper: well being, satisfaction with life, happiness, meaning in life, the biological information system (�balance�), realizing life potential, fulfillment of needs, and objective factors.The philosophy of life outlined in this paper tries to measure the global quality of life with questions derived from the integrative theory of the quality of life. The IQOL theory is an overall theory or meta-theory encompassing eight more factual theories in a subjective-existential-objective spectrum. Other philosophies of life can stress other aspects of life, but by this notion of introducing such an existential depth into the health and social sciences, we believe to have taken a necessary step towards a new humility and respect for the richness and complexity of life.

scholarly journals Long-Term Effects of Maternal Medication on Global Quality of Life Measured with SEQOL. Results from the Copenhagen Perinatal Birth Cohort 1959�61

2003 ◽  
Vol 3 ◽  
pp. 707-713 ◽  
Author(s):  
Soren Ventegodt ◽  
Joav Merrick
Keyword(s):  
Quality Of Life ◽  
Birth Cohort ◽  
Long Term Effects ◽  
Follow Up Study ◽  
Global Quality Of Life ◽  
Maternal Medication ◽  
Prospective Longitudinal

The Copenhagen Perinatal Birth Cohort 1959�61 is a prospective longitudinal perinatal study that included all deliveries (over 20 weeks gestation, birthweight over 250 g) that took place at the University Hospital (Rigshospitalet) in Copenhagen, Denmark during the period of September 21, 1959 to December 21, 1961 and used in this follow-up study to investigate the connection between maternal medication during pregnancy and the quality of life of the child 31 to 33 years later. The latest follow-up study from the cohort was performed in 1993 and 7,222 of the surviving children were identified (now aged between 31 and 33 years) and contacted with a nonanonymous questionnaire on several aspects of quality of life issues.There were 4,626 usable responses (f = 2,489, m = 2,131) corresponding to a response rate of 64.1%. Of the 12 groups of medication taking during pregnancy we found, before controlling (using multiple linear regression), that analgesics, chemotherapy, and psychopharmacologica showed links with the quality of life in the child 31 to 33 years later. Barbiturate use (95% was phenemal) showed significant connection to quality of life. After controlling for social and pregnancy factors there was no correlation between quality of life and medication taken by the mother during pregnancy. From this study it is concluded the fetal exposure to the drugs examined showed no measurable long-term effects on quality of life.

scholarly journals “Song of Life”: Results of a multicenter randomized trial on the effects of biographical music therapy in palliative care

2021 ◽  
pp. 026921632110103
Author(s):  
Marco Warth ◽  
Friederike Koehler ◽  
Martin Brehmen ◽  
Martin Weber ◽  
Hubert J Bardenheuer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Music Therapy ◽  
Well Being ◽  
Ego Integrity ◽  
Global Quality ◽  
Global Quality Of Life ◽  
Spiritual Well Being ◽  
Therapy Intervention

Background: Awareness for the importance of psychological and spiritual needs in patients with terminal diseases has increased in recent years, but randomized trials on the effects of psychosocial interventions are still rare. Aim: To investigate the efficacy of the “Song of Life” music therapy intervention regarding the emotional and psycho-spiritual dimensions of quality of life. Design: Patients were randomly assigned to either “Song of Life” or a relaxation intervention. “Song of Life” is a novel three-session music therapy intervention working with a biographically meaningful song. Primary outcome was the improvement in psychological quality of life. Secondary outcomes included spiritual well-being, ego-integrity, momentary distress, and global quality of life and the explorative assessment of treatment satisfaction (patient and family member version). Intention-to-treat analysis was conducted including adjustment for multiple testing in secondary outcomes. Setting/participants: Between December 2018 and August 2020, 104 patients receiving specialized palliative care were recruited from two palliative care wards. Results: No significant differences were found regarding psychological and global quality of life, but “Song of Life” participants reported significantly higher spiritual well-being ( p = 0.04) and ego-integrity ( p < 0.01), as well as lower distress ( p = 0.05) than patients in the control group. Both patients’ and family members’ treatment satisfaction was higher after “Song of Life” with large between-group effect sizes on items asking for meaningfulness ( d = 0.96) and importance ( d = 1.00). Conclusions: Our findings provide evidence that “Song of Life” is an effective and meaningful biographical music therapy intervention to facilitate psycho-spiritual integration in terminally ill patients. Trial Registration: German Clinical Trials Register (DRKS)—DRKS00015308 (date of registration: September 7th 2018).

scholarly journals Changes in Health-Related Quality of Life During Rehabilitation in Patients With Operable Lung Cancer: A Feasibility Study (PROLUCA)

2016 ◽  
Vol 17 (2) ◽  
pp. 388-400 ◽  
Author(s):  
Maja S. Sommer ◽  
Karen Trier ◽  
Jette Vibe-Petersen ◽  
Karl B. Christensen ◽  
Malene Missel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Well Being ◽  
Rehabilitation Program ◽  
Health Related Quality ◽  
Global Quality ◽  
Global Quality Of Life ◽  
Related Quality ◽  
Health Related

Introduction: Surgical resection in patients with non–small cell lung cancer (NSCLC) may be associated with significant morbidity, functional limitations, and decreased quality of life. Objectives: The objective is to present health-related quality of life (HRQoL) changes over time before and 1 year after surgery in patients with NSCLC participating in a rehabilitation program. Methods: Forty patients with NSCLC in disease stage I to IIIa, referred for surgical resection at the Department of Cardiothoracic Surgery RT, Rigshospitalet, were included in the study. The rehabilitation program comprised supervised group exercise program, 2 hours weekly for 12 weeks, combined with individual counseling. The study endpoints were self-reported HRQoL (Functional Assessment of Cancer Therapy–Lung, European Organization for Research and Treatment in Cancer–Quality of Life Questionnaire-QLQ-C30, Short-Form-36) and self-reported distress, anxiety, depression, and social support (National Comprehensive Cancer Network Distress Thermometer, Hospital Anxiety and Depression Scale, Multidimensional Scale of Perceived Social Support), measured presurgery, postintervention, 6 months, and 1 year after surgery. Results: Forty patients were included, 73% of whom completed rehabilitation. Results on emotional well-being ( P < .0001), global quality of life ( P = .0032), and mental health component score ( P = .0004) showed an overall statistically significant improvement during the study. Conclusion: This feasibility study demonstrated that global quality of life, mental health, and emotional well-being improved significantly during the study, from time of diagnosis until 1 year after resection, in patients with NSCLC participating in rehabilitation.

scholarly journals Clinical setting-based smoking cessation programme and the quality of life in people living with HIV in Austria and Germany

2017 ◽  
Vol 26 (9) ◽  
pp. 2387-2395 ◽  
Author(s):  
Igor Grabovac ◽  
Helmut Brath ◽  
Horst Schalk ◽  
Olaf Degen ◽  
Thomas E. Dorner
Keyword(s):  
Quality Of Life ◽  
Smoking Cessation ◽  
Well Being ◽  
People Living With Hiv ◽  
Smoking Cessation Programme ◽  
Global Quality Of Life ◽  
Living With Hiv ◽  
Short Intervention

Abstract Purpose To report on the global quality of life (QOL) in people living with HIV (PLWHIV) and how a smoking cessation intervention influences the changes in QOL. Methods Participants were asked to fill out a questionnaire during visits to their HIV outpatient clinic consisting of sociodemographic information, general health data and the WHOQOL HIV-Bref. Exhaled carbon monoxide measurements were used to confirm the smoking status, based on which participants classified as smokers received a short 5 min structured intervention and were offered participation in a full smoking cessation programme consisting of five sessions. Follow-up was done 8 months after the baseline. Results Overall 447 (mean age = 45.5) participants took part with 221 being classified as smokers. A total of 165 (74.6%) participants received a short intervention and 63 (29.4%) agreed to participate in the full program. At baseline, differences in QoL were observed, where smokers had lower QoL in domains of physical (M = 16.1 vs. 15.3, p = 0.009) and psychological (M = 15.3 vs. 14.6, p = 0.021) well-being, independency level (M = 16.1 vs. 15.2, p = 0.003) and environment (M = 16.5 vs. 16.0, p = 0.036). At study end, 27 (12.2%) participants quit smoking; 12 (19.0%) participants of the full programme and 15 (14.7%) that received the short intervention. There were no significant differences in QoL between those that continued to smoke and quitters at follow-up. Conclusion Quality of life results may be used to better understand the underlying motivation of PLWHIV who start cessation programs. In order to reduce the high prevalence and health burden that smoking causes in PLWHIV, it is necessary to introduce effective interventions that can be used in the clinical settings.

Quality of Life Assessment for Patients with Multiple Myeloma after Tandem Autologous Stem Cell Transplantation

Blood ◽  
2008 ◽  
Vol 112 (11) ◽  
pp. 2398-2398
Author(s):  
Alhossain Khalafallah ◽  
Kristina McDonnell ◽  
Susie Shaw ◽  
Hizb Dawar ◽  
Michael Beamish ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Myeloma ◽  
Stem Cell ◽  
Stem Cell Transplantation ◽  
Post Transplant ◽  
Global Quality ◽  
Global Quality Of Life ◽  
The Mean

Abstract Background: A sole focus on life prolongation does not adequately reflect the tolerability and acceptability of a proposed intervention on the patient’s perceived quality of life. As healthcare providers, our primary concern is to our patients and therefore, we should utilise measures of overall survival in conjunction with quality of life in order to deliver the best possible patient outcomes as guided by an individualised approach. Patients and methods: We assessed patients diagnosed with multiple myeloma who were undergoing tandem autologous stem cell transplantation (ASCT) according to our protocol at the Launceston General Hospital (LGH) from March 2006 to March 2008. Patients aged below 60 years received a conditioning regimen with 140mg/m2 Melphlan, while patients above 60 years received 100mg/m2 Melphalan. Of the twenty recruited patients with multiple myeloma undergoing tandem ASCT, 17 were eligible for assessment of quality of life. The median age was 49 years (range 37–70 years). A full patient profile was collected including demographic and medical data and risk factors for multiple myeloma. Assessment of quality of life was made using The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life QLQ-C30 questionnaire, conducted via interviews directly after each transplant and regularly thereafter every 3 months. The tandem transplants were well tolerated without any reported cases of mucositis or nausea or vomiting that requires parenteral nutrition. Results: Assessment of the gastrointestinal symptoms during both transplants showed that about 70% of the patients suffered from some degree of nausea and vomiting as well as loss of appetite compared to only 6–10% post transplant on further follow up. About 57% of patients suffered mild to moderate constipation and 35% complained of diarrhoea during both transplants. In the first quarterly follow up post transplant 45% of the patients had mild constipation most likely related to ongoing medication for myeloma and pain and no patients complained of diarrhoea. Assessment of patient role showed that 90% of patients had moderate to severely-affected normal social activities during both transplants with an improvement to 20–40% impairment after transplant in further quarterly follow up mainly due to chronic disease. Approximately 55% of patients experienced emotional disability during both transplants compared to 20% post transplant. None of them required specific treatment. Interestingly, about 70% reported significant financial difficulties during transplants compared to 40% after transplant follow up. About 50% of patients after each transplant have experienced moderate fatigue, mild dyspnoea and mild physical impairment. In the 3 monthly follow up this declined to 20%. Also, 50% of patients did complain to some degree of insomnia during both transplants with further improvement to 13 % after transplant. Assessment of quality of life revealed that the mean Global Health measure to be 3.44 (1=very poor, 7=excellent), and a mean Global Quality of Life of 3.61. There were no statistical differences in both scores between both transplants. However, the mean Global Health score significantly improved to 4.50 and the mean Global Quality of Life to 4.71 at quarterly follow-up. In summary, our analysis shows that dose-modified tandem transplant therapy is well tolerated with acceptable toxicity and side effects albeit the significant changes in quality of life during both transplants. Nevertheless, the post transplant follow up showed significant improvement in the quality of life that certainly reflects positively in the overall disease outcome.

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