The Effectiveness of Social Media in the Dissemination of Knowledge About Pain in Dementia
Abstract Objectives Traditional knowledge dissemination methods have been ineffective in leading to timely and widespread changes in clinical practice. Social media has the potential to reach broader audiences than more traditional methods to disseminate research findings. We evaluated the effectiveness of using social media to mobilize knowledge about pain in dementia. Methods We developed an online repository of evidence-based content (e.g., guidelines, assessment approaches) and a video about pain in dementia. The video was uploaded on YouTube, a video sharing platform. We collaborated with stakeholder organizations on a 5-month social media campaign (#SeePainMoreClearly) on Twitter, a social networking site, to disseminate digital content about pain in dementia. The response to our initiatives was evaluated using web/social media metrics, a video questionnaire, and by comparing the extent of Twitter discussions about pain in dementia before and during the campaign period. Results Web metrics showed a great reach of the initiative: the #SeePainMoreClearly hashtag received over 5,000,000 impressions and was used in 31 countries. The online repository was viewed by 1,218 individuals from 55 countries and the video resulted in 51,000 views. Comparisons between the pre-campaign and campaign periods demonstrated a higher number of posts about pain in dementia during the campaign period. Conclusion Findings have implications for closing the knowledge-to-practice gap in dementia care through faster mobilization of scientific findings. Our campaign compares favorably to other health information dissemination initiatives. The methodologies used in the study could serve as a framework for the development of social media initiatives in other health disciplines.