scholarly journals Brief Report: Family-Based Group Intervention for Young Siblings of Children with Chronic Illness and Developmental Disability

2005 ◽  
Vol 30 (8) ◽  
pp. 678-682 ◽  
Author(s):  
Debra J. Lobato ◽  
Barbara T. Kao
PEDIATRICS ◽  
2013 ◽  
Vol 131 (4) ◽  
pp. e1196-e1203 ◽  
Author(s):  
L. Scholten ◽  
A. M. Willemen ◽  
B. F. Last ◽  
H. Maurice-Stam ◽  
E. M. van Dijk ◽  
...  

2011 ◽  
Vol 37 (1) ◽  
pp. 53-63 ◽  
Author(s):  
Ric G. Steele ◽  
Brandon S. Aylward ◽  
Chad D. Jensen ◽  
Christopher C. Cushing ◽  
Ann M. Davis ◽  
...  

2021 ◽  
pp. 100447
Author(s):  
Miriam Douma ◽  
Heleen Maurice-Stam ◽  
Bianca Gorter ◽  
Bregje A. Houtzager ◽  
Hestien J.I. Vreugdenhil ◽  
...  

2014 ◽  
Vol 9 (2) ◽  
Author(s):  
Elfy Syahreni ◽  
Siti Chodidjah

AbstrakPenelitian ini bertujuan untuk menggali respon ibu yang mempunyai anak dengan gangguan kesehatan kronik. Manfaat penelitian ini adalah sumber pengetahuan baru bagi perawat tentang pengalaman, arti pengalaman tersebut bagi ibu dan pengaruhnya pada ibu. Pengetahuan ini akan dapat digunakan untuk meningkatkan kemampuan perawat dalam melakukan pengkajian dan memberikan asuhan keperawatan kepada ibu. Pengambilan sampel menggunakan teknik “purposive sample”, yaitu ibu yang memiliki anak dengan gangguan kesehatan kronis. Jumlah sampelnya adalah lima orang, yang diwawancara dengan mendalam selama satu jam. Metode penelitian yang digunakan adalah fenomenologi, yang merupakan metoda yang paling sesuai untuk menggali pengalaman seorang ibu tentang suatu kejadian. Data dikumpulkan melalui wawancara semi terstruktur dengan menggunakan beberapa pertanyaan tentang bagaimana perasaan, pikiran dan perasaan menjadi ibu dari seorang anak yang mengalami gangguan perkembangan atau menderita penyakit kronis. Hasil wawancara direkam dengan menggunakan tape recorder dan kemudian dibuat transkripnya. Setelah itu data tersebut dianalisa dengan menggunakan “Colaizzi’s phenomenology methods”. Hasil analisa data menggambarkan lima kategori yaitu respon emosi, keyakinan atau spiritual, kerja keras, sistim pendukung, dan interaksi dengan tenaga kesehatan. Abstract:The objective of the research is to identify mother’s experiences related to having child with chronic illness and developmental disability. This study used a phenomenology method to explore mother’s experience. Five mothers whose children with chronic illness and developmental disorder participated in two audio-taped interviews. Data were collected through seme-structured interview. Colaizzi’s phenomenology method was used to analyse the transcripts of the interviews. Five main categories were coded, which each category containing a number of themes. Five main categories were found including emotions, beliefs or spiritual responses, interaction with staffs, support systems, and work hard.


2019 ◽  
Vol 7 (1) ◽  
pp. 79-92 ◽  
Author(s):  
Miriam Douma ◽  
Mala M. H. Joosten ◽  
Linde Scholten ◽  
Heleen Maurice-Stam ◽  
Martha A. Grootenhuis

2021 ◽  
pp. 136749352110334
Author(s):  
Lauren Kelada ◽  
Claire E Wakefield ◽  
Donna Drew ◽  
Chee Y. Ooi ◽  
Elizabeth E Palmer ◽  
...  

Siblings of young people with chronic illness commonly undertake caring responsibilities for their affected brother/sister, which may encourage maturation, yet may also be perceived as a burden. Our study determined (1) siblings’ caring responsibilities, (2) siblings’ current emotional distress and psychosocial functioning, and (3) how siblings’ caring responsibilities and psychosocial functioning related to familial relationships and coping strategies. Siblings completed questionnaires which contained Sibling Inventory of Behavior, Sibling Inventory of Differential Experiences, PedsQL, emotion thermometers, Brief COPE, and a checklist of caregiving responsibilities. We analyzed the data with t-tests and multi-level models. Forty-five siblings (mean age = 15.40 years, SD = 3.31 years; 60.0% female) participated. Siblings who had caring responsibilities ( n = 26, 57.8%) reported lower anxiety symptoms, lower need for help, greater use of problem-focused coping, and more companionship and teaching/directiveness with their affected brother/sister than siblings without caring responsibilities. Siblings reported lower psychosocial and physical functioning when they perceived their parents provided them with less affection than their affected brother/sister. Family-based psychosocial interventions may aim to improve the sibling–parent relationship (including expressing affection) and the sibling–sibling relationship. Future interventions may also focus on increasing siblings’ use of problem-focused coping strategies.


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