To track or not to track? Employees’ data privacy in the age of corporate wellness, mobile health, and GDPR†

2020 ◽  
Vol 10 (3) ◽  
pp. 236-252 ◽  
Author(s):  
Céline Brassart Olsen
10.2196/21795 ◽  
2021 ◽  
Vol 9 (3) ◽  
pp. e21795
Author(s):  
Aline Sarradon-Eck ◽  
Tiphanie Bouchez ◽  
Lola Auroy ◽  
Matthieu Schuers ◽  
David Darmon

Background Mobile health (mHealth) apps are a potential means of empowering patients, especially in the case of multimorbidity, which complicates patients’ care needs. Previous studies have shown that general practitioners (GPs) have both expectations and concerns regarding patients’ use of mHealth apps that could impact their willingness to recommend the apps to patients. Objective The aim of this qualitative study is to investigate French GPs’ attitudes toward the prescription of mHealth apps or devices aimed toward patients by analyzing GPs’ perceptions and expectations of mHealth technologies. Methods A total of 36 GPs were interviewed individually (n=20) or in a discussion group (n=16). All participants were in private practice. A qualitative analysis of each interview and focus group was conducted using grounded theory analysis. Results Considering the value assigned to mHealth apps by participants and their willingness or resistance to prescribe them, 3 groups were defined based on the attitudes or positions adopted by GPs: digital engagement (favorable attitude; mHealth apps are perceived as additional resources and complementary tools that facilitate the medical work, the follow-up care, and the monitoring of patients; and apps increase patients’ compliance and empowerment); patient protection (related to the management of patient care and fear of risks for patients, concerns about patient data privacy and security, doubt about the usefulness for empowering patients, standardization of the medical decision process, overmedicalization, risks for individual freedom, and increasing social inequalities in health); doctor protection (fear of additional tasks and burden, doubt about the actionability of patient-gathered health data, risk for medical liability, dehumanization of the patient-doctor relationship, fear of increased drug prescription, and commodification of patient data). Conclusions A deep understanding of both the expectations and fears of GPs is essential to motivate them to recommend mHealth apps to their patients. The results of this study show the need to provide appropriate education and training to enhance GPs’ digital skills. Certification of the apps by an independent authority should be encouraged to reassure physicians about ethical and data security issues. Our results highlight the need to overcome technical issues such as interoperability between data collection and medical records to limit the disruption of medical work because of data flow.


Author(s):  
Christine Jacob ◽  
Antonio Sanchez-Vazquez ◽  
Chris Ivory

BACKGROUND Although there is a push toward encouraging mobile health (mHealth) adoption to harness its potential, there are many challenges that sometimes go beyond the technology to involve other elements such as social, cultural, and organizational factors. OBJECTIVE This review aimed to explore which frameworks are used the most, to understand clinicians’ adoption of mHealth as well as to identify potential shortcomings in these frameworks. Highlighting these gaps and the main factors that were not specifically covered in the most frequently used frameworks will assist future researchers to include all relevant key factors. METHODS This review was an in-depth subanalysis of a larger systematic review that included research papers published between 2008 and 2018 and focused on the social, organizational, and technical factors impacting clinicians’ adoption of mHealth. The initial systematic review included 171 studies, of which 50 studies used a theoretical framework. These 50 studies are the subject of this qualitative review, reflecting further on the frameworks used and how these can help future researchers design studies that investigate the topic of mHealth adoption more robustly. RESULTS The most commonly used frameworks were different forms of extensions of the Technology Acceptance Model (TAM; 17/50, 34%), the diffusion of innovation theory (DOI; 8/50, 16%), and different forms of extensions of the unified theory of acceptance and use of technology (6/50, 12%). Some studies used a combination of the TAM and DOI frameworks (3/50, 6%), whereas others used the consolidated framework for implementation research (3/50, 6%) and sociotechnical systems (STS) theory (2/50, 4%). The factors cited by more than 20% of the studies were usefulness, output quality, ease of use, technical support, data privacy, self-efficacy, attitude, organizational inner setting, training, leadership engagement, workload, and workflow fit. Most factors could be linked to one framework or another, but there was no single framework that could adequately cover all relevant and specific factors without some expansion. CONCLUSIONS Health care technologies are generally more complex than tools that address individual user needs as they usually support patients with comorbidities who are typically treated by multidisciplinary teams who might even work in different health care organizations. This special nature of how the health care sector operates and its highly regulated nature, the usual budget deficits, and the interdependence between health care organizations necessitate some crucial expansions to existing theoretical frameworks usually used when studying adoption. We propose a shift toward theoretical frameworks that take into account implementation challenges that factor in the complexity of the sociotechnical structure of health care organizations and the interplay between the technical, social, and organizational aspects. Our consolidated framework offers recommendations on which factors to include when investigating clinicians’ adoption of mHealth, taking into account all three aspects.


2015 ◽  
Vol 28 (3) ◽  
pp. 439-456 ◽  
Author(s):  
Vanja Miskovic ◽  
Djordje Babic

One of the most promising applications of sensor networks is mobile health monitoring. The key concept of New Generation Networks (NGN) is IP Multimedia Subsystem (IMS). The possibility of using mobile devices as gateways between sensor networks and IMS has led to the development of integrated solutions such as the one proposed in this paper. Event-based SIP for Instant Messaging and Presence Leveraging Extensions (SIMPLE) architecture is considered as the best solution for IMS based mobile health monitoring. This paper also describes usage of the Session Initiation Protocol (SIP) protocol to communicate with the IMS core, whereas data are transmitted within the body of SIP messages. Thus there is no need for additional transport protocol. Presence Information Data Format (PIDF) is used as data format and data privacy is controlled by XML Configuration Access Protocol (XCAP), which also provides the ability to manage groups of patients.


2020 ◽  
Vol 38 (5) ◽  
pp. 217-223
Author(s):  
Jana M. Pownell ◽  
Leslie Larson ◽  
Darcy H. Neago ◽  
Mary S. Pesch ◽  
Sara J. Ayres ◽  
...  

2020 ◽  
Vol 29 (01) ◽  
pp. 032-043 ◽  
Author(s):  
Hannah K. Galvin ◽  
Paul R. DeMuro

Objectives: To survey international regulatory frameworks that serve to protect privacy of personal data as a human right as well as to review the literature regarding privacy protections and data ownership in mobile health (mHealth) technologies between January 1, 2016 and June 1, 2019 in order to identify common themes. Methods: We performed a review of relevant literature available in English published between January 1, 2016 and June 1, 2019 from databases including PubMed, Google Scholar, and Web of Science, as well as relevant legislative background material. Articles out of scope (as detailed below) were eliminated. We categorized the remaining pool of articles and discrete themes were identified, specifically: concerns around data transmission and storage, including data ownership and the ability to re-identify previously de-identified data; issues with user consent (including the availability of appropriate privacy policies) and access control; and the changing culture and variable global attitudes toward privacy of health data. Results: Recent literature demonstrates that the security of mHealth data storage and transmission remains of wide concern, and aggregated data that were previously considered “de-identified” have now been demonstrated to be re-identifiable. Consumer-informed consent may be lacking with regard to mHealth applications due to the absence of a privacy policy and/or to text that is too complex and lengthy for most users to comprehend. The literature surveyed emphasizes improved access control strategies. This survey also illustrates a wide variety of global user perceptions regarding health data privacy. Conclusion: The international regulatory framework that serves to protect privacy of personal data as a human right is diverse. Given the challenges legislators face to keep up with rapidly advancing technology, we introduce the concept of a “healthcare fiduciary” to serve the best interest of data subjects in the current environment.


2020 ◽  
Author(s):  
Aline Sarradon-Eck ◽  
Tiphanie Bouchez ◽  
Lola Auroy ◽  
Matthieu Schuers ◽  
David Darmon

BACKGROUND Mobile health (mHealth) apps are a potential means of empowering patients, especially in the case of multimorbidity, which complicates patients’ care needs. Previous studies have shown that general practitioners (GPs) have both expectations and concerns regarding patients’ use of mHealth apps that could impact their willingness to recommend the apps to patients. OBJECTIVE The aim of this qualitative study is to investigate French GPs’ attitudes toward the prescription of mHealth apps or devices aimed toward patients by analyzing GPs’ perceptions and expectations of mHealth technologies. METHODS A total of 36 GPs were interviewed individually (n=20) or in a discussion group (n=16). All participants were in private practice. A qualitative analysis of each interview and focus group was conducted using grounded theory analysis. RESULTS Considering the value assigned to mHealth apps by participants and their willingness or resistance to prescribe them, 3 groups were defined based on the attitudes or positions adopted by GPs: <i>digital engagement</i> (favorable attitude; mHealth apps are perceived as additional resources and complementary tools that facilitate the medical work, the follow-up care, and the monitoring of patients; and apps increase patients’ compliance and empowerment); <i>patient protection</i> (related to the management of patient care and fear of risks for patients, concerns about patient data privacy and security, doubt about the usefulness for empowering patients, standardization of the medical decision process, overmedicalization, risks for individual freedom, and increasing social inequalities in health); <i>doctor protection</i> (fear of additional tasks and burden, doubt about the actionability of patient-gathered health data, risk for medical liability, dehumanization of the patient-doctor relationship, fear of increased drug prescription, and commodification of patient data). CONCLUSIONS A deep understanding of both the expectations and fears of GPs is essential to motivate them to recommend mHealth apps to their patients. The results of this study show the need to provide appropriate education and training to enhance GPs’ digital skills. Certification of the apps by an independent authority should be encouraged to reassure physicians about ethical and data security issues. Our results highlight the need to overcome technical issues such as interoperability between data collection and medical records to limit the disruption of medical work because of data flow.


10.2196/18072 ◽  
2020 ◽  
Vol 8 (7) ◽  
pp. e18072 ◽  
Author(s):  
Christine Jacob ◽  
Antonio Sanchez-Vazquez ◽  
Chris Ivory

Background Although there is a push toward encouraging mobile health (mHealth) adoption to harness its potential, there are many challenges that sometimes go beyond the technology to involve other elements such as social, cultural, and organizational factors. Objective This review aimed to explore which frameworks are used the most, to understand clinicians’ adoption of mHealth as well as to identify potential shortcomings in these frameworks. Highlighting these gaps and the main factors that were not specifically covered in the most frequently used frameworks will assist future researchers to include all relevant key factors. Methods This review was an in-depth subanalysis of a larger systematic review that included research papers published between 2008 and 2018 and focused on the social, organizational, and technical factors impacting clinicians’ adoption of mHealth. The initial systematic review included 171 studies, of which 50 studies used a theoretical framework. These 50 studies are the subject of this qualitative review, reflecting further on the frameworks used and how these can help future researchers design studies that investigate the topic of mHealth adoption more robustly. Results The most commonly used frameworks were different forms of extensions of the Technology Acceptance Model (TAM; 17/50, 34%), the diffusion of innovation theory (DOI; 8/50, 16%), and different forms of extensions of the unified theory of acceptance and use of technology (6/50, 12%). Some studies used a combination of the TAM and DOI frameworks (3/50, 6%), whereas others used the consolidated framework for implementation research (3/50, 6%) and sociotechnical systems (STS) theory (2/50, 4%). The factors cited by more than 20% of the studies were usefulness, output quality, ease of use, technical support, data privacy, self-efficacy, attitude, organizational inner setting, training, leadership engagement, workload, and workflow fit. Most factors could be linked to one framework or another, but there was no single framework that could adequately cover all relevant and specific factors without some expansion. Conclusions Health care technologies are generally more complex than tools that address individual user needs as they usually support patients with comorbidities who are typically treated by multidisciplinary teams who might even work in different health care organizations. This special nature of how the health care sector operates and its highly regulated nature, the usual budget deficits, and the interdependence between health care organizations necessitate some crucial expansions to existing theoretical frameworks usually used when studying adoption. We propose a shift toward theoretical frameworks that take into account implementation challenges that factor in the complexity of the sociotechnical structure of health care organizations and the interplay between the technical, social, and organizational aspects. Our consolidated framework offers recommendations on which factors to include when investigating clinicians’ adoption of mHealth, taking into account all three aspects.


Author(s):  
Patrick Liu ◽  
Katia Astudillo ◽  
Damaris Velez ◽  
Lauren Kelley ◽  
Darcey Cobbs-Lomax ◽  
...  

ABSTRACTBackgroundMobile applications (apps) are increasingly popular in healthcare. For low-income populations, barriers exist, yet limited data are available about the challenges and catalysts for adoption.Methods and ResultsWe partnered with a primary care center and a community organization and recruited patients to use a health app. A community health worker (CHW) consented participants, downloaded the app and instructed on its use, and provided ongoing technical support. Bi-weekly surveys for three months were sent via email/text to assess participant experiences and perceptions.The majority (81 of 108 [75.0%] English language-preferred and 50 of 52 [96.2%] Spanish language-preferred) of patients approached were enrolled. Common reasons for declining were: did not own a smartphone (13.8%), did not have email (20.7%), and not interested (58.6%). Enrollment challenges included: insufficient storage, unfamiliarity with downloading apps, forgotten passwords to email accounts, and slow/absent WiFi connection – which the CHW and the app company were able to address. Most participants, English and Spanish language-preferred respectively, were interested in monitoring their health through an app (74.4%; 70.4%), connecting devices such as FitBits© and blood pressure cuffs (78.9%; 50.0%), and being the owner of their health records (83.6%; 95.6%). There were concerns about sharing health information with research teams (66.7%; 51.9%), and data being sold (83.0%; 70.4%). However, many (58.6%; 87.2%) reported being likely to share health data with a trusted research team. Compared with before the study, most felt more comfortable using health apps (67.4%; 82.1%) and more likely to participate in research using apps (76.2%; 72.4%).ConclusionsThe assistance of a CHW facilitated the enrollment of low-income individuals in a mobile health app by fostering trust and sustained engagement. Participants were interested in having several app features. Despite concerns about data privacy, they demonstrated greater interest in mobile health app use and research participation at study conclusion.


2021 ◽  
Author(s):  
Najd Alfawzan ◽  
Markus Christen ◽  
Giovanni Spitale ◽  
Nikola Biller-Andorno

BACKGROUND Women’s mobile health (mHealth) is a growing phenomenon in the mobile applications (apps) global market. An increasing number of women around the globe use apps with so-called female technology (femtech). Given the often private and sensitive nature of the data collected by such apps an ethical assessment from the perspective of data privacy, sharing, and security policies is warranted. OBJECTIVE The purpose of this scoping review and content analysis is to assess the privacy policy, data sharing and security policies of women’s mobile health apps current on the international market (AppStore’s on IOS system and GooglePlay’s on Android system). METHODS We reviewed 23 most popular women’s mHealth Apps on the market, we focused on publicly available apps on both Apple AppStore and GooglePlay. The 23 downloaded apps were assessed manually by two independent reviewers against mix of users’ data privacy and data sharing and security assessment criteria. RESULTS All of the 23 apps collected personal health-related data. 23 (100%) allowed behavioural tracking and 14 (61%) allowed location tracking. Only 16 apps (69.5%) displayed a privacy policy, and 12 apps (56.5%) requested consent from users, one app had a pseudo-consent. 3 apps collected data before obtaining conscnt. 20 apps (87%) shared users’ data with a third party, and for the remaining 3 apps it is not known if they shared data or not. Only 13 apps (56.5%) provided information to users about data security. CONCLUSIONS A large part of the most popular women’s mHealth apps on the market have poor data privacy, sharing, and security standards. Even though regulations exist, such as the EU General Data Protection Regulation (GDPR), current practices do not follow them. The failure standards of the assessed women’s mHealth apps to meet basic data privacy and security is unacceptable both ethically and legally.


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