Family-Centered Care in the Transition to Early Hearing Intervention

2020 ◽  
Vol 26 (1) ◽  
pp. 21-45
Author(s):  
Mansoureh Nickbakht ◽  
Carly Meyer ◽  
Nerina Scarinci ◽  
Rachael Beswick

Abstract This study aimed to explore and compare families’ and professionals’ perspectives on the implementation of family-centered care (FCC) (Moeller, Carr, Seaver, Stredler-Brown, & Holzinger, 2013) during the period between diagnosis of hearing loss (HL) and enrollment in early intervention (EI). A convergent mixed-methods study incorporating self-report questionnaires and semistructured in-depth interviews was used. Seventeen family members of children with HL and the 11 professionals who support these families participated in this study. The results suggested that the services engaged during the transition period partially adhered to the principles of FCC, including the provision of timely access to EI services and provision of emotional and social support. However, areas for improvement identified include strengthening family/professional partnerships, shared decision-making processes, collaborative teamwork, program monitoring, and consistency in the provision of information and support. Qualitative and quantitative research findings also indicated a lack of consistency in service provision during the transition period.

2020 ◽  
Vol 26 (1) ◽  
pp. 72-81
Author(s):  
Rishani Deepika Gangodage Done ◽  
Jina Oh ◽  
Mihae Im ◽  
Jiyoung Park

Purpose: This study was conducted to investigate nurses’ perceptions and performance of family-centered care (FCC) at a children’s hospital in Sri Lanka and to explore the feasibility of implementing FCC in the context of the Sri Lankan healthcare system.Methods: A convergent, parallel, mixed-methods design was applied to understand Sri Lankan nurses’ perspectives on FCC. In total, 157 nurses working at a large teritagy children’s hospital responded to a self-report survey and 18 nurses participated in focus group interviews.Results: Of the factors of FCC, family participation in caring for children received the highest score (4.09±0.51) for perceptions, and information-sharing received the highest score (3.54±0.55) for performance. The qualitative data revealed the following five themes: (a) importance of the family in caring for children; (b) helping families during children’s hospitalization; (c) taking steps to implement FCC, even with imperfect knowledge; (d) barriers in the current situation; and (e) suggested strategies to promote FCC.Conclusion: Participants endorsed the concept of FCC and demonstrated some aspects of it in their day-to-day practice. The results indicate a clear knowledge deficit and several challenges, which need to be addressed to effectively implement FCC.


2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.


2012 ◽  
Vol 26 (3) ◽  
pp. 216-232 ◽  
Author(s):  
Gordon Lee Gillespie ◽  
Melanie Hounchell ◽  
Jeanne Pettinichi ◽  
Jennifer Mattei ◽  
Lindsay Rose

An environment committed to providing family-centered care to children must be aware of the nurse caring behaviors important to parents of children. This descriptive study assessed the psychometrics of a revised version of the Caring Behaviors Assessment (CBA) and examined nurse caring behaviors identified as important to the parents of pediatric patients in a pediatric emergency department. Jean Watson’s theory of human caring provided the study’s theoretical underpinnings. The instrument psychometrics was determined through an index of content validity (CVI) and internal consistency reliability. The instrument was determined to be valid (CVI = 3.75) and reliable (Cronbach’s alpha = .971). The revised instrument was completed by a stratified, systematic random sample of 300 parents of pediatric emergency patients. Participants rated the importance of each item for making the child feel cared for by nurses. Individual survey item means were computed. Items with the highest means represented the most important nurse caring behaviors. Leading nurse caring behaviors centered on carative factors of “human needs assistance” and “sensitivity to self and others.” Nearly all nurse caring behaviors were important to the parents of pediatric patients, although some behaviors were not priority. It is important for nurses to provide family-centered care in a way that demonstrates nurse caring.


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