Assessment of Depression, Anxiety, Quality of Life, and Coping in Long-Standing Multiple Endocrine Neoplasia Type 2 Patients

Thyroid ◽  
2017 ◽  
Vol 27 (5) ◽  
pp. 693-706 ◽  
Author(s):  
Karine C. Rodrigues ◽  
Rodrigo A. Toledo ◽  
Flavia L. Coutinho ◽  
Adriana B. Nunes ◽  
Rui M.B. Maciel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type ◽  
And Coping

scholarly journals Quality of Life and Coping in Multiple Endocrine Neoplasia Type 2

2019 ◽  
Vol 3 (6) ◽  
pp. 1167-1174 ◽  
Author(s):  
Fernanda A Correa ◽  
Evelin C Farias ◽  
Luciana A Castroneves ◽  
Delmar M Lourenço ◽  
Ana O Hoff
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type ◽  
And Coping

scholarly journals Patient quality of life and prognosis in multiple endocrine neoplasia type 2

2018 ◽  
Vol 25 (2) ◽  
pp. T69-T77 ◽  
Author(s):  
Joanna Grey ◽  
Kym Winter
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Large Scale ◽  
Multiple Endocrine Neoplasia Type ◽  
Neuroendocrine Tumour ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type ◽  
Psychosocial Impacts

Multiple endocrine neoplasia type 2 (MEN2) refers to the autosomal-dominant neuroendocrine tumour syndromes, MEN type 2A (MEN2A) and MEN type 2B (MEN2B). They are typified by the development of medullary thyroid cancer (MTC), phaeochromocytoma and parathyroid hyperplasia in MEN2A and MTC, phaeochromocytomas, ganglioneuromatosis and skeletal abnormalities in MEN2B. The aggressiveness of MTC is variable according to genotype, and although it is still the major cause of mortality in both conditions, prognosis has improved dramatically in those diagnosed and treated at a young age thanks to predictive genetic testing. Nevertheless, metastatic MTC, ganglioneuromatosis and a variety of other negative clinical and psychosocial impacts on quality of life and/or prognosis in MEN2 persist. In the absence, at the time of writing, of any large-scale research into quality of life specifically in MEN2, this review includes data from patient surveys and anonymised patient anecdotes from the records of the Association for Multiple Endocrine Neoplasia Disorders (AMEND), for whom the authors work. We recommend that these patients are cared for only in centres of expertise able to provide expert diagnosis, treatment and continuity of care, including psychological and transition support. Only in this way can the clinical advances of the last two and half decades be built upon further to ensure that the care of these complex, lifelong patients can be considered truly holistic.

Quality of life in multiple endocrine neoplasia type 2A compared with normative and disease populations

Surgery ◽  
2018 ◽  
Vol 164 (3) ◽  
pp. 546-552 ◽  
Author(s):  
Michael N. Mongelli ◽  
Benjamin J. Peipert ◽  
Sneha Goswami ◽  
Irene Helenowski ◽  
Susan E. Yount ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type

scholarly journals Health-related quality of life in patients with Multiple Endocrine Neoplasia type 1

2020 ◽  
Author(s):  
Rachel S van Leeuwaarde ◽  
Carolina R. C. Pieterman ◽  
Anne M. May ◽  
Olaf M. Dekkers ◽  
Anouk N.A. van der Horst-Schrivers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Health Related Quality ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type ◽  
Related Quality ◽  
Health Related

Disease and treatment factors associated with lower quality of life scores in adults with multiple endocrine neoplasia type I

Surgery ◽  
2017 ◽  
Vol 162 (6) ◽  
pp. 1270-1277 ◽  
Author(s):  
Sneha Goswami ◽  
Benjamin J. Peipert ◽  
Irene Helenowski ◽  
Susan E. Yount ◽  
Cord Sturgeon
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Type I ◽  
Factors Associated ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type

Clinical and Financial Predictors of Quality of Life in Patients with Multiple Endocrine Neoplasia Type 2A

2018 ◽  
Vol 227 (4) ◽  
pp. e117
Author(s):  
Michael N. Mongelli ◽  
Benjamin J. Peipert ◽  
Sneha Goswami ◽  
Irene B. Helenowski ◽  
Susan E. Yount ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type

Pancreatoduodenal surgery in patients with multiple endocrine neoplasia type 1: Operative outcomes, long-term function, and quality of life

Surgery ◽  
2007 ◽  
Vol 142 (6) ◽  
pp. 829-836.e1 ◽  
Author(s):  
Y. Nancy You ◽  
Geoffrey B. Thompson ◽  
William F. Young ◽  
Dirk Larson ◽  
David R. Farley ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Endocrine Neoplasia ◽  
Multiple Endocrine Neoplasia Type ◽  
Term Function ◽  
Operative Outcomes ◽  
Endocrine Neoplasia ◽  
Endocrine Neoplasia Type
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