scholarly journals A Study to Explore the Parental Impact and Challenges of Self-Management in Children and Adolescents Suffering with Lymphedema

2019 ◽  
Vol 17 (2) ◽  
pp. 245-252
Author(s):  
Christine Moffatt ◽  
Aimee Aubeeluck ◽  
Elodie Stasi ◽  
Roberto Bartoletti ◽  
Christine Aussenac ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Self Management ◽  
Parental Impact

Theoretical and contextual considerations for self-management strategies of children and adolescents with chronic diseases: An integrative review

2021 ◽  
pp. 136749352110136
Author(s):  
Logan J Camp-Spivey ◽  
Ayaba Logan ◽  
Michelle Nichols
Keyword(s):  
Children And Adolescents ◽  
Chronic Diseases ◽  
Management Strategies ◽  
Healthcare Providers ◽  
Integrative Review ◽  
Self Management ◽  
Intervention Delivery ◽  
Management Interventions ◽  
Technological Platforms ◽  
Management Behaviors

The primary aim of this integrative review was to critically evaluate and synthesize published, peer-reviewed research to better understand self-management strategies of children and adolescents with chronic diseases. This review was guided by Whittemore and Knafl’s methodological framework. The Pediatric Self-management Model provided the theoretical framework for understanding how self-management behaviors operate within the domains of individual, family, community, and healthcare systems. In June 2019, the electronic databases of EBSCOhost, PubMed, and Scopus, along with reference lists of applicable studies, were searched for appropriate publications. The initial searches yielded 920 citations. Of these, 11 studies met inclusion criteria. A key finding was that involving children and adolescents in the design and delivery phases of interventions was most effective in improving self-management when the interventions did not outweigh cognitive ability or maturity level. In addition, incorporating self-efficacy promotion into self-management interventions may lead to greater sense of responsibility and improved health outcomes. In terms of intervention delivery of self-management strategies, the use of technological platforms and devices was revealed as a promising avenue for youth. A final implication was the importance of family members, peers, and healthcare providers in supporting children and adolescents in adopting self-management behaviors.

scholarly journals A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema

2019 ◽  
Vol 17 (2) ◽  
pp. 231-244 ◽  
Author(s):  
Christine Moffatt ◽  
Aimee Aubeeluck ◽  
Elodie Stasi ◽  
Sandrine Mestre ◽  
Sara Rowan ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Visual Art ◽  
Self Management ◽  
Art Methods

scholarly journals iCanCope PostOp: User-Centered Design of a Smartphone-Based App for Self-Management of Postoperative Pain in Children and Adolescents (Preprint)

2018 ◽  
Author(s):  
Kathryn A Birnie ◽  
Fiona Campbell ◽  
Cynthia Nguyen ◽  
Chitra Lalloo ◽  
Argerie Tsimicalis ◽  
...  
Keyword(s):  
Pain Management ◽  
Postoperative Pain ◽  
Children And Adolescents ◽  
Health Care Providers ◽  
Postoperative Pain Management ◽  
Self Management ◽  
User Centered Design ◽  
Care Providers ◽  
Pain Care ◽  
User Centered

BACKGROUND Moderate to severe postoperative pain in children is common. Increased pediatric day surgeries have shifted postoperative pain management predominantly to the home setting. Mobile health technology has the potential to overcome barriers to pain care by improving access to self-management resources. However, pain apps generally lack scientific evidence and are highly underutilized due to lack of involvement of end users in their development. Thus, an evidence-based pain self-management smartphone app that incorporates the needs and perspective of children and adolescents (end users) has potential to improve postoperative pain management. OBJECTIVE This paper aimed to describe how the principles of user-centered design were applied to the development of iCanCope PostOp, a smartphone-based pain self-management app for children and adolescents after surgery. Specifically, it presents 2 completed phases of the user-centered design process (concept generation and ideation) for the iCanCope PostOp app. METHODS Phase 1 was a multisite needs assessment from the perspective of 19 children and adolescents who had undergone various day surgeries, 19 parents, and 32 multidisciplinary health care providers. Children, adolescents, and parents completed individual semistructured interviews, and health care providers participated in focus groups. Data were summarized using qualitative content analysis. Phase 2 developed a pain care algorithm for the app using Delphi surveys and a 2-day in-person design workshop with 11 multidisciplinary pediatric postoperative pain experts and 2 people with lived experience with postoperative pain. RESULTS Phase 1 identified self-management challenges to postoperative pain management and recovery; limited available resources and reliance on medications as a predominant postoperative pain management strategy; and shared responsibility of postoperative pain care by children and adolescents, parents, and health care providers. Key app functions of tracking pain, pain self-management strategies, and goal setting were identified as priorities. Phase 2 led to the successful and efficient generation of a complete preliminary pain care algorithm for the iCanCope PostOp app, including clinically relevant inputs for feasible assessment and reassessment of pain and function (rest or sleep, movement or play, and mood or worry), as well as a catalog of pain management advice to be pushed to end users (psychological, physical, pharmacological, and education). CONCLUSIONS The concept ideation and generation phases of the user-centered design approach were successfully completed for the iCanCope PostOp app. Next steps will include design finalization, app development (iOS or Android), evaluation through a randomized controlled trial, and subsequent implementation of the iCanCope PostOp app in clinical care.

scholarly journals Model of social and pedagogical protection of sobriety

2021 ◽  
Vol 101 ◽  
pp. 01001
Author(s):  
E.A. Kljushnikova
Keyword(s):  
Substance Use ◽  
Children And Adolescents ◽  
Public Organizations ◽  
Functional System ◽  
Educational Environment ◽  
Current Concept ◽  
Self Management ◽  
The Social ◽  
Categorical Method

The article deals with approaches to the study of the problem of approval and preservation of sobriety. Issues of protection of sobriety of the younger generation are considered. Some reasons of inefficiency, the current “Concept of prevention of substance use in the educational environment” are analyzed. The mechanism for forming a program for self-management of alcohol and tobacco poisons is explained. The role of sobriety public organizations and public teachers - sobriety teachers in maintaining sobriety is emphasized. A model of a system of social and pedagogical protection of sobriety, built using the categorical method “Functional System Diagram”, is proposed. Conclusions are made about the social and pedagogical essence of the sobriety protection system. The author hopes that a number of the proposals made will be useful in improving the mechanism for protecting the sobriety of children and adolescents.

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