Caregiver Burden among Informal Caregivers in the Kerala Palliative Care Program: Development and Validation of the Achutha Menon Centre—Caregiver Burden Inventory

2020 ◽  
Author(s):  
Arsha Kochuvilayil ◽  
Ravi Prasad Varma
Keyword(s):  
Palliative Care ◽  
Program Development ◽  
Caregiver Burden ◽  
Informal Caregivers ◽  
Care Program ◽  
Palliative Care Program ◽  
Development And Validation

Lessons Learned: Identifying Items Felt To Be Critical to Leading a Pediatric Palliative Care Program in the Current Era of Program Development

2021 ◽  
Vol 24 (1) ◽  
pp. 40-45
Author(s):  
Elissa G. Miller ◽  
Meaghann S. Weaver ◽  
Lindsay Ragsdale ◽  
Tracy Hills ◽  
Lisa Humphrey ◽  
...  
Keyword(s):  
Palliative Care ◽  
Program Development ◽  
Care Program ◽  
Lessons Learned ◽  
Pediatric Palliative Care ◽  
Palliative Care Program

scholarly journals Addressing Perinatal Palliative Care Program Development (401)

2010 ◽  
Vol 39 (2) ◽  
pp. 371-372 ◽  
Author(s):  
Robin F. Kramer ◽  
Sally Sehring ◽  
Tina Ratto ◽  
Linda M. Hopkins
Keyword(s):  
Palliative Care ◽  
Program Development ◽  
Care Program ◽  
Palliative Care Program ◽  
Perinatal Palliative Care

Impact of the caregiver burden on the effectiveness of a home-based palliative care program: A mediation analysis

2019 ◽  
Vol 18 (3) ◽  
pp. 332-338 ◽  
Author(s):  
Angela J. Pereira-Morales ◽  
Luis Enrique Valencia ◽  
Luis Rojas
Keyword(s):  
Palliative Care ◽  
Caregiver Burden ◽  
Psychological Symptoms ◽  
Care Program ◽  
Palliative Care Program ◽  
Home Based ◽  
High Prevalence ◽  
The Relationship ◽  
Significant Mediator

AbstractObjectiveThe growing aging population and the high prevalence of several concomitant chronic diseases have contributed to the elevated rates of caregiver burden and suffering in patients. In turn, intending to relieve unnecessary pain in patients, there has been a rapid growth of outpatient palliative care programs. However, little has been studied about caregiver burden as a relevant factor potentially affecting the effectiveness of these programs. This study aimed to determine the extent of caregiver burden as a possible mediator on the effectiveness of a home-based palliative care program.MethodSixty-six palliative patients (56% women; mean age + SD = 71, 6 ± 17.7) and their caregivers were assessed with measures for physical, emotional, and psychological symptoms before and 1 month after the start of a home-based palliative care program.ResultsThe association between caregiver burden and palliative outcomes was corroborated with a categorical regression model (p < 0.01). Caregiver burden was found to be a significant mediator in the relationship between outcome measures for palliative care at baseline and after 1 month of enrollment in the program.Significance of resultsTo our knowledge, this is the first study to assess the role of caregiver burden in the effectiveness of a home-based palliative care program. Although further work is required, the results indicate that a patient-focused intervention does not have the same beneficial effect if the caregiver burden is not addressed. Future home-based palliative care programs should focus on caregivers as well as patients, with particular attention to psychosocial intervention on caregivers.

Palliative care program development

2013 ◽  
Vol 7 (2) ◽  
pp. 192-194 ◽  
Author(s):  
Breffni Hannon ◽  
Sydney Lawrence Librach ◽  
Camilla Zimmermann
Keyword(s):  
Palliative Care ◽  
Program Development ◽  
Care Program ◽  
Palliative Care Program

Program development in palliative care: Results from the NCI Community Cancer Centers Program (NCCCP).

2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 42-42
Author(s):  
Lynne Slaughter Padgett ◽  
Mary Helen Davis ◽  
Colleen Tallen ◽  
Angela Carrigan ◽  
Julia Howe Rowland
Keyword(s):  
Palliative Care ◽  
Program Development ◽  
Care Program ◽  
Symptom Assessment ◽  
Quality Measures ◽  
Palliative Care Program ◽  
Patient Identification ◽  
Care Services ◽  
Palliative Care Services ◽  
The Continuum

42 Background: Growing national attention to the need for metrics to document delivery of quality palliative care has resulted in a proliferation of measures and standards (e.g., Commission on Cancer, Quality Oncology Practice Initiative). While these standards offer benchmarks to strive for, there are few resources for programs to self-assess development of organizational infrastructure to achieve them. Methods: The NCCCP Cancer Palliative Care Matrix (PCM) is a performance measure and evaluation tool to aid palliative care program development in the community setting. The PCM was completed annually by 21 NCCCP sites from 2010 to 2013. Four domains related to quality measures are reported here. Proportional-odds logistic regression models were used to evaluate the relationship between year and level of response. Results: Variations in program development were seen in the quality domains of symptom assessment, palliative care services offered across the continuum of care, identification for palliative care services, and use of quality measures. In 2010, 13/21 sites reported that symptom assessment were not performed or performed inconsistently. By 2013, 13 sites reported consistent assessment with standardized tools, with 5 of these 13 able to review sequential patient assessment (p=0.002). Similar gains were seen in the domains of providing services across the continuum of cancer care and utilization of quality measures such as patient/provider satisfaction and service utilization (p=0.004, p<0.0001). Despite three years of effort, little change was seen in patient identification processes for palliative care services with only 6 of 21 sites in 2013, compared to 5 in 2010, reporting improvement in "upstream" patient identification regardless of cancer stage (p=0.065). Conclusions: Data suggest the utility of the PCM to evaluate process and quality outcomes in palliative care program development. In addition, identification of challenge and growth areas can be used to develop interventions to address quality performance in both clinical and research contexts.

The wish to hasten death among ALS patients in a palliative care program

2007 ◽  
Vol 34 (S 2) ◽  
Author(s):  
R Jox ◽  
S Haarmann-Doetkotte ◽  
M Wasner ◽  
GD Borasio
Keyword(s):  
Palliative Care ◽  
Care Program ◽  
Palliative Care Program ◽  
Wish To Hasten Death ◽  
Als Patients

scholarly journals Development and protocol for a nurse-led telephonic palliative care program

2021 ◽  
Author(s):  
Audrey J. Tan ◽  
Rebecca Yamarik ◽  
Abraham A. Brody ◽  
Frank R. Chung ◽  
Corita Grudzen
Keyword(s):  
Palliative Care ◽  
Care Program ◽  
Palliative Care Program
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