Usage Patterns of a Mobile Palliative Care Application

2018 ◽  
Vol 21 (6) ◽  
pp. 796-801 ◽  
Author(s):  
Haipeng Zhang ◽  
David Liu ◽  
Sean Marks ◽  
Elizabeth M. Rickerson ◽  
Adam Wright ◽  
...  
Keyword(s):  
Palliative Care ◽  
Usage Patterns

Preliminary Analysis of Worldwide Usage Patterns in a Mobile Palliative Care Reference App

Iproceedings ◽  
2016 ◽  
Vol 2 (1) ◽  
pp. e13
Author(s):  
David Liu ◽  
Jess Smith ◽  
Haipeng Zhang
Keyword(s):  
Palliative Care ◽  
Preliminary Analysis ◽  
Usage Patterns

scholarly journals Usage Patterns of a Web-Based Palliative Care Content Platform (PalliCOVID) During the COVID-19 Pandemic

2020 ◽  
Vol 60 (4) ◽  
pp. e20-e27 ◽  
Author(s):  
Lucinda Lai ◽  
Rintaro Sato ◽  
Shuhan He ◽  
Kei Ouchi ◽  
Richard Leiter ◽  
...  
Keyword(s):  
Palliative Care ◽  
Web Based ◽  
Usage Patterns

Opioid usage patterns among Medicare pancreatic cancer patients according to palliative care utilization.

2019 ◽  
Vol 37 (31_suppl) ◽  
pp. 14-14
Author(s):  
Zhanni Lu ◽  
Cecilia M Ganduglia Cazaban ◽  
Luis G. LeonNovelo ◽  
Sriram Yennu ◽  
Sharon H. Giordano ◽  
...  
Keyword(s):  
Pancreatic Cancer ◽  
Palliative Care ◽  
Cancer Patients ◽  
Proportional Hazards ◽  
Cox Proportional Hazards ◽  
Care Utilization ◽  
Medicare Beneficiaries ◽  
Opioid Use ◽  
Uptake Rates ◽  
Usage Patterns

14 Background: Opioid pharmacotherapy is used to manage moderate and severe pain in palliative care (PC). Pain affects 80% pancreatic cancer patients older than 65 years. We assessed the opioid utilization patterns in Medicare patients with pancreatic cancer whom did not use PC (NPC), used community-based PC (CBPC) or used hospital-based PC (HBPC). Methods: We assessed opioid use, types, dispensed days, opioid uptake rates, doses (measured by morphine equivalent doses (MEDs)), and related adverse events (AEs) after pancreatic cancer diagnosis in Medicare beneficiaries selected from the SEER-Medicare database between 2007 and 2013 using the log-binomial, generalized linear mixed, and Cox proportional hazards modeling. Results: 16,106 patients were identified (median age: 78 years; female: 55.2%), of whom 8.3% used CBPC and 19.6% used HBPC. PC users were more likely to use opioids (CBPC: 72.2% vs. HBPC: 63.4% vs. NPC: 56.3%, P<.001). The most commonly prescribed opioid type in NPC, HBPC and CBPC users was fentanyl (54.1%), hydromorphone (27.7%) and morphine (26.1%). Compared to other study patients, CBPC users had shorter median dispensed days per prescription (CBPC: 3 days vs. HBPC: 4 days vs. NPC: 4 days, P<.001) but higher median MEDs per prescription (CBPC: 25 mg vs. HBPC: 25 mg vs. NPC: 0.13 mg, P<.001). Adjusting for demographic and clinical factors, no significantly different uptake rates of opioids were determined in PC users compared to NPC users (CBPC: RR, 1.02, P=.057; HBPC: RR, 1.002, P=.783). HBPC users had higher adjusted daily MEDs than CBPC and NPC users 3 months after diagnosis (135.1 mg/d vs. 126.5 mg/d vs. 65.7 mg/d, P<.001). CBPC users had higher adjusted daily MEDs than HBPC and NPC users 3 months before death (164.3mg/d vs. 155.6 mg/d vs. 92.1 mg/d, P=.0002). CBPC users had lower but HBPC users had higher adjusted hazard ratios of delirium (CBPC: HR, 0.95, HBPC: HR, 1.26, P<.001) and drowsiness (CBPC: HR, 0.94, HBPC: HR, 1.53, P<.001) than NPC users. Conclusions: Older pancreatic cancer patients using PC tended to use opioids and consumed higher opioid doses. CBPC users had lower risks of opioid-related delirium and drowsiness. The factors of the opioid use variations need to be assessed.

Families’ priorities in life-limiting illness: improving quality with online empowerment

2015 ◽  
Vol 101 (3) ◽  
pp. 247-252 ◽  
Author(s):  
Nicola Harris ◽  
Antonia Beringer ◽  
Margaret Fletcher
Keyword(s):  
Palliative Care ◽  
Sleep Problems ◽  
Patient Empowerment ◽  
Qualitative Evaluation ◽  
Ease Of Use ◽  
Structured Interviews ◽  
Social Interventions ◽  
Usage Patterns ◽  
Over Time

ObjectiveImproving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.InterventionMyQuality is an online tool that enables families to choose and monitor parameters they identify as having an impact on their QOL, which aims to improve patient–professional communications and also to enhance patient empowerment within healthcare dialogues.DesignA longitudinal, multisite mixed-method evaluation of MyQuality. Families were invited to use MyQuality and completed semi-structured interviews and a Family Empowerment Scale (FES) at T=0 and T+3 months.Patients and settingThirty-two families of children with LLIs, attending three children's hospices in one UK region.Outcome measuresWebsite access, usage patterns and parameter choice, FES scores and qualitative evaluation of interviews.Results23/32 families chose to use the website. Mean duration of use was 106 days (range 2–301), with families choosing two or three parameters (range 1–15), most commonly seizures (24/32), constipation (9/32), pain (6/32) and sleep problems (6/32). Mean FES scores increased over time (3.45–3.85). Interview feedback confirmed the acceptability and ease of use of the website, and the value of a graphic record of change over time to support ongoing management and collaborative review of medical, nursing or social interventions.ConclusionsThe identification and monitoring of patient-generated priorities via the MyQuality website empowers families and supports collaboration between parents and professionals to ensure that palliative care is truly patient and family centred.

Vocal Communications of a Developmentally Delayed Child

1987 ◽  
Vol 18 (2) ◽  
pp. 112-130
Author(s):  
Mary Ann Romski ◽  
Sharon Ellis Joyner ◽  
Rose A. Sevcik
Keyword(s):  
Language Learning ◽  
Developmental Delays ◽  
Developmentally Delayed ◽  
Language Impaired ◽  
Diary Data ◽  
Word Acquisition ◽  
Diary Studies ◽  
Usage Patterns ◽  
Vocal Communications ◽  
Impaired Children

Studies of first-word acquisition in typical language-learning children frequently take the form of diary studies. Comparable diary data from language-impaired children with developmental delays, however, are not currently available. This report describes the spontaneous vocalizations of a child with a developmental delay for 14 months, from the time he was age 6:5 to age 7:7. From a corpus of 285 utterances, 47 phonetic forms were identified and categorized. Analysis focused on semantic, communicative, and phonological usage patterns.

Much Ado About Fried Chicken: Abetting Aspiration or Respecting Autonomy?

2019 ◽  
Vol 28 (3) ◽  
pp. 1356-1362
Author(s):  
Laurence Tan Lean Chin ◽  
Yu Jun Lim ◽  
Wan Ling Choo
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Multidisciplinary Team ◽  
Biopsychosocial Model ◽  
Family Members ◽  
Clinical Decisions ◽  
Goals Of Care ◽  
Complex Needs ◽  
Aspiration Risk ◽  
Patient Centric

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.

Swallowing Management in Palliative Care

ASHA Leader ◽  
2017 ◽  
Vol 22 (9) ◽  
Author(s):  
Brenda Arend ◽  
Kate Krival
Keyword(s):  
Palliative Care

Noting Children's Wishes Boosts Palliative Care

2010 ◽  
Vol 44 (9) ◽  
pp. 48-49
Author(s):  
M. ALEXANDER OTTO
Keyword(s):  
Palliative Care
Sign in / Sign up

Export Citation Format

Share Document