A Qualitative Exploration of Perceived Key Knowledge and Skills in End-of-Life Care in Dementia Patients among Medical, Nursing, and Pharmacy Students

2015 ◽  
Vol 18 (1) ◽  
pp. 56-61 ◽  
Author(s):  
Christopher M. Nguyen ◽  
Bannin De Witt Jansen ◽  
Carmel M. Hughes ◽  
Wendy Rasmussen ◽  
Michelle T. Weckmann
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Pharmacy Students ◽  
Life Care ◽  
Knowledge And Skills ◽  
Dementia Patients ◽  
Qualitative Exploration

scholarly journals Hospital death in dementia patients and regional provision of palliative and end-of-life care: National patient data analysis

2018 ◽  
Vol 5 (1) ◽  
pp. 1483097
Author(s):  
Kayo Hirooka ◽  
Miharu Nakanishi ◽  
Hiroki Fukahori ◽  
Atsushi Nishida ◽  
Selena Gray
Keyword(s):  
Data Analysis ◽  
End Of Life ◽  
End Of Life Care ◽  
Patient Data ◽  
Hospital Death ◽  
Life Care ◽  
Dementia Patients ◽  
National Patient

scholarly journals Nurse-Perceived Barriers to Effective Communication Regarding Prognosis and Optimal End-of-Life Care for Surgical ICU Patients: A Qualitative Exploration

2012 ◽  
Vol 15 (8) ◽  
pp. 910-915 ◽  
Author(s):  
Rebecca A. Aslakson ◽  
Rhonda Wyskiel ◽  
Imani Thornton ◽  
Christina Copley ◽  
Dauryne Shaffer ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Effective Communication ◽  
Perceived Barriers ◽  
Life Care ◽  
Icu Patients ◽  
Surgical Icu ◽  
Qualitative Exploration

J-HOPE study: Evaluation of end-of-life cancer care in Japan from the perspective of bereaved family members

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. 9577-9577
Author(s):  
M. Miyashita ◽  
T. Morita ◽  
K. Sato ◽  
S. Tsuneto ◽  
Y. Shima
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Institutional Review Boards ◽  
Life Care ◽  
Knowledge And Skills ◽  
Bereaved Family ◽  
Care Evaluation

9577 Background: The Japan Hospice and Palliative Care Evaluation (J-HOPE) study was conducted in 2007 and 2008. The aim of the study was to evaluate the quality of end-of-life care at regional cancer centers (CCs), inpatient palliative care units (PCUs), and home hospices (HHs) in Japan from the perspective of bereaved family members. Methods: A nationwide cross-sectional mail survey was conducted in 2007 and 2008. The survey was sent to bereaved families 6–18 months after the death of a patient at 56 CCs, 100 PCUs, or 14 HHs. Outcome measures were the good death inventory, the care evaluation scale, and overall satisfaction with care. The protocol of this study was approved by the institutional review boards of each participating institution. Results: Of the 13,181 bereaved family members that received the survey, 8,163 (62%) participants returned their responses. Among bereaved family members, significantly fewer responded that patients were free from physical distress at CCs (50%) than PCUs (80%) and HHs (73%) (P<0.0001). Significantly fewer patients trusted the physicians at CCs (79%) when compared with PCUs (83%) and HHs (88%) (P<0.0001). Significantly fewer patients were valued as people at CCs (83%) than PCUs (93%) and HHs (95%) (P<0.0001). In addition, significantly fewer participants felt physicians should have worked to improve the patients' symptoms more quickly at CCs (55%) when compared with PCUs (78%) and HHs (77%) (P<0.0001). Significantly fewer participants felt nurse should improve their knowledge and skills regarding end-of-life care at CCs (51%) when compared with PCUs (76%) and HHs (78%) (P<0.0001). A total of 51% of participants reported that nurses should improve their knowledge and skills regarding end-of-life care. Finally, significantly fewer participants were satisfied with the end-of-life care provided by CCs (80%) when compared with PCUs (93%) and HHs (94%) (P<0.0001). Conclusions: Overall, the bereaved family members appreciated the end-of-life care provided by CCs, PCUs, and HHs in Japan. However, in some situations, the quality of end-of-life care provided by CCs was lower than that provided by PCUs and HHs. No significant financial relationships to disclose.

Planning End-of-Life Care for Patients with Dementia: Roles of Families and Health Professionals

2001 ◽  
Vol 42 (4) ◽  
pp. 273-291 ◽  
Author(s):  
Charles E. Gessert ◽  
Sarah Forbes ◽  
Mercedes Bern-Klug
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Health Professionals ◽  
End Of Life Care ◽  
Family Members ◽  
Care Planning ◽  
Life Care ◽  
Dementia Patients ◽  
Advance Care ◽  
Surrogate Decision

We examined families' end-of-life decision making and their interactions with health professionals. Twenty-eight family members of institutionalized dementia patients participated in four focus groups. We found that participating family members were not well prepared for their decision-making roles, and that they: 1) experienced substantial burdens and loss in caring for institutionalized elders; 2) had limited understanding of the natural progression of dementing conditions; 3) were uncomfortable in setting goals for their relatives' end-of-life care; 4) had little experience with death, and were ambivalent about the anticipated death of their relative; and (5) reported that they had little substantive communication with health professionals regarding end-of-life care planning. We concluded that many of the needs of such families could be addressed through improved application of the principles of advance care planning, including regular structured discussions, involvement of surrogate decision-makers, and anticipation of clinical decisions. Health professionals should take the lead in ‘normalizing’ the discussion of death.

scholarly journals A Simulated Approach to Fostering Competency in End-of-Life Care Among Pharmacy Students

2019 ◽  
Vol 83 (4) ◽  
pp. 6904 ◽  
Author(s):  
Eric F. Egelund ◽  
Jane Gannon ◽  
Carol Motycka ◽  
W. Thomas Smith ◽  
Dale F. Kraemer ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Pharmacy Students ◽  
Life Care ◽  
Simulated Approach

scholarly journals Surrogate Decision Makers' Understanding of Dementia Patients' Prior Wishes for End-of-Life Care

2009 ◽  
Vol 21 (4) ◽  
pp. 627-650 ◽  
Author(s):  
Betty S. Black ◽  
Linda A. Fogarty ◽  
Hilary Phillips ◽  
Thomas Finucane ◽  
David J. Loreck ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Decision Makers ◽  
Life Care ◽  
Dementia Patients ◽  
Surrogate Decision Makers ◽  
Surrogate Decision
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