scholarly journals Continuity, Coordination, and Transitions of Care for Patients with Serious and Advanced Illness: A Systematic Review of Interventions

2013 ◽  
Vol 16 (4) ◽  
pp. 436-445 ◽  
Author(s):  
Sydney M. Dy ◽  
Colleen Apostol ◽  
Kathryn A. Martinez ◽  
Rebecca A. Aslakson
2016 ◽  
Vol 6 (3) ◽  
pp. 393.2-393
Author(s):  
Emily J Harrop ◽  
Luke Cowey ◽  
Fiona Morgan ◽  
Anthony Byrne ◽  
Stephanie Sivell ◽  
...  

2018 ◽  
Vol 66 (5) ◽  
pp. 1031-1039 ◽  
Author(s):  
Simon N. Etkind ◽  
Anna E. Bone ◽  
Natasha Lovell ◽  
Irene J. Higginson ◽  
Fliss E. M. Murtagh

2020 ◽  
Vol 34 (7) ◽  
pp. 871-888 ◽  
Author(s):  
Emily Harrop ◽  
Fiona Morgan ◽  
Mirella Longo ◽  
Lenira Semedo ◽  
Jim Fitzgibbon ◽  
...  

Background: Bereavement support is a key component of palliative care, with different types of support recommended according to need. Previous reviews have typically focused on specialised interventions and have not considered more generic forms of support, drawing on different research methodologies. Aim: To review the quantitative and qualitative evidence on the effectiveness and impact of interventions and services providing support for adults bereaved through advanced illness. Design: A mixed-methods systematic review was conducted, with narrative synthesis of quantitative results and thematic synthesis of qualitative results. The review protocol is published in PROSPERO ( www.crd.york.ac.uk/prospero , CRD42016043530). Data sources: The databases MEDLINE, Embase, PsycINFO, CINAHL and Social Policy and Practice were searched from 1990 to March 2019. Studies were included which reported evaluation results of bereavement interventions, following screening by two independent researchers. Study quality was assessed using GATE checklists. Results: A total of 31 studies were included, reporting on bereavement support groups, psychological and counselling interventions and a mix of other forms of support. Improvements in study outcomes were commonly reported, but the quality of the quantitative evidence was generally poor or mixed. Three main impacts were identified in the qualitative evidence, which also varied in quality: ‘loss and grief resolution’, ‘sense of mastery and moving ahead’ and ‘social support’. Conclusion: Conclusions on effectiveness are limited by small sample sizes and heterogeneity in study populations, models of care and outcomes. The qualitative evidence suggests several cross-cutting benefits and helps explain the impact mechanisms and contextual factors that are integral to the support.


2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e24110-e24110
Author(s):  
Audrey Ready ◽  
Alexander Knee ◽  
Vida Rastegar ◽  
Mihaela Stefan

e24110 Background: Palliative care (PC) improves symptom burden, patient and family distress and quality of life of patients with advanced illnesses. Previous evidence has shown that non-physician providers (NPP) can be effective in delivering care with minimal physician support. NPP-led PC interventions could potentially address gaps in the workforce and provide access to PC services. The overall objective of this systematic review is to evaluate the effectiveness of NPP-led PC interventions in the management of adults with cancer. Methods: We searched ten electronic databases up to October 2018 for randomized or cluster control trials that evaluated NPP-led interventions in both adults receiving end of life care for advanced malignancies and/or their caregivers. NPPs included nurses, advanced practitioners, social workers or case-worker. Interventions included symptom management, hospice care, advance care planning (ACP) or decision support. We recorded the following outcomes: quality of life, patient symptoms (anxiety, depression, pain or distress), satisfaction with care and ACP. Study quality was assessed using the Cochrane risk of bias tool version 2.0. Results: Overall 5,241 publications were screened, resulting in 207 publications that underwent full text review. 13 studies (n = 2,007 participants) included only patients with diagnoses of cancer and an additional 2 studies (n = 396 participants) focused on mixed diagnoses of advanced illness, including cancer. Only 2 studies focused on both caregivers and patients. A nurse was the lead provider in 13 studies, and an advance practitioner in 2 studies. The NPP-led interventions were mostly psychosocial with four also providing symptom management. Interventions mostly consisted of education, care coordination information and support. A total of 3 studies focused solely on ACP, while 2 additional studies addressed this as part of the planned intervention. Nine studies reported quality of life outcomes and seven studies reported on anxiety and depression. There was considerable heterogeneity among the studies with respect to the nature of the intervention and the diagnoses of the study participants. All but one of the studies examined had high risk of bias, mostly due to issues related to missing outcome data or measurement of the outcome. Conclusions: In the setting of changing models of population health care delivery, the results of this systematic review could provide evidence for implementation of non-physician-led palliative care services outside of clinical trials.


Aging Health ◽  
2013 ◽  
Vol 9 (5) ◽  
pp. 497-508 ◽  
Author(s):  
Tia Kostas ◽  
Allison M Paquin ◽  
Kristin Zimmerman ◽  
Mark Simone ◽  
Lara M Skarf ◽  
...  

2017 ◽  
Vol 26 (9-10) ◽  
pp. 1204-1216 ◽  
Author(s):  
Liz Forbat ◽  
Natalie Kunicki ◽  
Michael Chapman ◽  
Clare Lovell

2019 ◽  
Vol 57 (1) ◽  
pp. 140-155.e2 ◽  
Author(s):  
Natasha Lovell ◽  
Simon N. Etkind ◽  
Sabrina Bajwah ◽  
Matthew Maddocks ◽  
Irene J. Higginson

Author(s):  
M. Cecilia Lansang ◽  
Keren Zhou ◽  
Mary T. Korytkowski

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