scholarly journals End-of-Life Decision-Making Confidence in Surrogates of African-American Dialysis Patients Is Overly Optimistic

2012 ◽  
Vol 15 (4) ◽  
pp. 412-417 ◽  
Author(s):  
Mi-Kyung Song ◽  
Sandra E. Ward ◽  
Feng-Chang Lin
Keyword(s):  
Decision Making ◽  
African American ◽  
End Of Life ◽  
Dialysis Patients ◽  
End Of Life Decision ◽  
Life Decision

Process and impact of an advance care planning intervention evaluated by bereaved surrogate decision-makers of dialysis patients

2016 ◽  
Vol 31 (3) ◽  
pp. 267-274 ◽  
Author(s):  
Mi-Kyung Song ◽  
Maureen Metzger ◽  
Sandra E Ward
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Advance Care Planning ◽  
Care Planning ◽  
Dialysis Patients ◽  
Advance Care ◽  
Surrogate Decision ◽  
End Of Life Decision ◽  
Life Decision ◽  
Planning Intervention

Background: Few studies have examined the process and impact of an advance care planning intervention experienced by surrogate decision-makers of dialysis patients. Aim: To explore the perspectives of the bereaved surrogates of dialysis patients on the process and impact of an advance care planning intervention and to compare the perceived impacts of the intervention between African Americans and Whites. Design: Qualitative interviews and thematic analysis. Setting/participants: 24 bereaved surrogates of patients from outpatient dialysis centers were interviewed. Both patients and surrogates had been participants in a larger efficacy study and had received an advance care planning intervention, SPIRIT (Sharing Patient’s Illness Representations to Increase Trust). Results: Two themes related to the process of SPIRIT were as follows: (1) SPIRIT provided a welcome opportunity to think about and discuss topics that had been avoided and (2) SPIRIT helped patients and surrogates to share their feelings. Four themes of the SPIRIT’s impact were as follows: (1) SPIRIT was an eye-opening experience, acquiring knowledge and understanding of the patient’s illness and end-of-life care, (2) SPIRIT helped strengthen relationships between patients and surrogates, (3) SPIRIT helped surrogates feel prepared during the time leading up to end-of-life decision-making, and (4) SPIRIT helped surrogates have peace of mind during and after actual end-of-life decision-making. Themes related to SPIRIT’s impact on feeling prepared for end-of-life decision-making and the actual decision-making experience more frequently occurred in African Americans than in Whites. Conclusion: Our data may help explain the beneficial effects of SPIRIT on surrogates, but future trials should include data on control surrogates’ perspectives.

scholarly journals Voices of African American, Caucasian, and Hispanic Surrogates on the Burdens of End-of-Life Decision Making

2008 ◽  
Vol 23 (3) ◽  
pp. 267-274 ◽  
Author(s):  
Ursula K. Braun ◽  
Rebecca J. Beyth ◽  
Marvella E. Ford ◽  
Laurence B. McCullough
Keyword(s):  
Decision Making ◽  
African American ◽  
End Of Life ◽  
End Of Life Decision ◽  
Life Decision

scholarly journals DEATH OF A LOVED ONE FRAMES END OF LIFE DECISION MAKING IN AFRICAN AMERICAN PACE PARTICIPANTS

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 1324-1324
Author(s):  
L. Gill ◽  
J. Sefcik ◽  
T.S. Waite ◽  
A. Booker ◽  
P.Z. Cacchione
Keyword(s):  
Decision Making ◽  
African American ◽  
End Of Life ◽  
Loved One ◽  
End Of Life Decision ◽  
Life Decision

scholarly journals LIGHT: A Church-Based Curriculum for Training African American Lay Health Workers to Support Advance Care Planning and End-of-Life Decision-Making

Health Equity ◽  
2020 ◽  
Vol 4 (1) ◽  
pp. 533-541
Author(s):  
Jerry C. Johnson ◽  
Tara Hayden ◽  
Lynne Allen Taylor ◽  
Arthur Gilbert ◽  
Marshall Paul Hughes Mitchell
Keyword(s):  
Decision Making ◽  
African American ◽  
End Of Life ◽  
Advance Care Planning ◽  
Health Workers ◽  
Care Planning ◽  
Lay Health Workers ◽  
Advance Care ◽  
End Of Life Decision ◽  
Life Decision

scholarly journals Understanding End-of-Life Decision-Making Terminology Among African American Older Adults

2017 ◽  
Vol 44 (2) ◽  
pp. 33-40 ◽  
Author(s):  
Karen O. Moss ◽  
Nancy L. Deutsch ◽  
Patricia J. Hollen ◽  
Virginia G. Rovnyak ◽  
Ishan C. Williams ◽  
...  
Keyword(s):  
Older Adults ◽  
Decision Making ◽  
African American ◽  
End Of Life ◽  
End Of Life Decision ◽  
Life Decision ◽  
African American Older Adults
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