Psychosocial Late Effects in Adolescent and Young Adult Survivors of Childhood Cancer Diagnosed with Leukemia, Lymphoma, and Central Nervous System Tumor

2020 ◽  
Author(s):  
Anna Płotka ◽  
Aleksandra Chęcińska ◽  
Olga Zając-Spychała ◽  
Barbara Więckowska ◽  
Lucyna Kramer ◽  
...  
Keyword(s):  
Central Nervous System ◽  
Nervous System ◽  
Young Adult ◽  
Late Effects ◽  
Adult Survivors ◽  
Adolescent And Young Adult ◽  
Central Nervous System Tumor ◽  
Young Adult Survivors ◽  
System Tumor ◽  
Survivors Of Childhood Cancer

Psychometric Validation of the PERMA-Profiler as a Well-Being Measure for Young Adult Survivors of Pediatric Central Nervous System Tumor

2021 ◽  
pp. 003435522110255
Author(s):  
Teresa Ann Grenawalt ◽  
Emre Umucu ◽  
Antonio Reyes ◽  
Andrea Baylin ◽  
David R. Strauser ◽  
...  
Keyword(s):  
Central Nervous System ◽  
Nervous System ◽  
Factor Analysis ◽  
Young Adult ◽  
Concurrent Validity ◽  
Adult Survivors ◽  
Well Being ◽  
Psychometric Validation ◽  
Cns Tumor ◽  
Young Adult Survivors

This study aims to validate a measure of well-being, the PERMA-Profiler, among a sample of young adult survivors of pediatric central nervous system (CNS) tumor. Measurement structure of the PERMA-Profiler was evaluated using exploratory factor analysis and confirmatory factor analysis using pretest–posttest data. Reliability and concurrent validity of the PERMA-Profiler were examined. This study included 127 young adult survivors of pediatric CNS tumor between the ages of 18 and 30 ( M = 23.83, SD = 3.00) years. The results of factor analyses yielded a single-factor solution for well-being. Significant relationships between well-being and happiness, life satisfaction, perceived stress, and physical health were observed, providing support for the concurrent validity of the PERMA-Profiler. The PERMA-Profiler displayed good internal consistency and test–retest reliability. The PERMA-Profiler can help rehabilitation researchers and counselors better evaluate well-being in young adult survivors of pediatric CNS tumor, which provides opportunity for more targeted psychosocial interventions.

scholarly journals 01 Adolescent and Young Adult Central Nervous System Tumour Survivors: Documentation of late-effects risks and screening recommendations in British Columbia, Canada

2018 ◽  
Vol 45 (S3) ◽  
pp. S1-S1
Author(s):  
A. Fuchsia Howard ◽  
Jordan Tran ◽  
Avril Ullett ◽  
Michael McKenzie ◽  
Karen Goddard
Keyword(s):  
Primary Care ◽  
Central Nervous System ◽  
Nervous System ◽  
Radiation Therapy ◽  
Young Adult ◽  
Late Effects ◽  
Medical Records ◽  
Primary Care Providers ◽  
Adolescent And Young Adult ◽  
Care Providers

Survivors of adolescent and young adult (AYA) central nervous system (CNS) neoplasms are at risk for late effects (LE) - treatment-related health problems occurring more than 5 years after therapy). Since, in Canada, AYA survivors are usually followed in the community, information must be conveyed to primary care providers to guide risk-based follow-up care. Objective: To assess documentation of LE risks and screening recommendations (SR) in medical records of AYA CNS tumor survivors treated with radiation therapy. Methods: The medical records of all patients diagnosed with a CNS neoplasm (benign or malignant) at ages 15-39 years, treated between 1985 and 2010 in the province of British Columbia, surviving >5 years and discharged to the community were assessed. Documentation of LE and SR were extracted, and analyzed descriptively. Results: Among 132 survivors (52% female), treated with radiation therapy (95% partial brain, 10% craniospinal, 8% partial spine, and 4% whole brain) and chemotherapy (17%), 19% of charts included no documentation of LE risks, 26% included only non-specific documentation, and 55% had minimal documentation (1 or 2 LE). Documentation of at least one specific LE increased from 24% in 1980-1989, to 54% in 1990-1999, to 86% in 2000 – 2010. Based on treatment information, all survivors were at high-risk for LE, such as radiation induced neoplasm, meningioma and cerebrovascular events. Yet, SR were documented in only 25% of charts. Conclusions: The documentation of LE risks and screening recommendations has been limited, highlighting the need to improve written communication with primary care providers.

Thyroid neoplasia following irradiation in adolescent and young adult survivors of childhood cancer

2002 ◽  
Vol 176 (12) ◽  
pp. 584-587 ◽  
Author(s):  
Helen M Somerville ◽  
Albert H Lam ◽  
Michael M Stevens ◽  
Kate S Steinbeck ◽  
Graham Stevens ◽  
...  
Keyword(s):  
Young Adult ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Adolescent And Young Adult ◽  
Thyroid Neoplasia ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer
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