scholarly journals Adolescents and Young Adults with Cancer Using a Symptom Heuristics App: Provider Perceptions and Actions

2020 ◽  
Vol 9 (5) ◽  
pp. 579-585
Author(s):  
Catherine Fiona Macpherson ◽  
Kristin Stegenga ◽  
Jeanne M. Erickson ◽  
Lauri A. Linder ◽  
Amy R. Newman ◽  
...  
Blood ◽  
2013 ◽  
Vol 122 (21) ◽  
pp. 771-771
Author(s):  
Lori S. Muffly ◽  
Fay J Hlubocky ◽  
Joseline Gomez ◽  
Kate Breitenbach ◽  
Mary Lappe ◽  
...  

Abstract Background Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges. Hematologic malignancies account for the greatest frequency of AYA cancers and a growing number of AYA cancer survivors; however, there remains a paucity of studies describing the early and late psychological impact of experiencing a life-threatening blood cancer as an AYA. How oncologists perceive the psychological burden of cancer in AYAs is also unknown; provider under-appreciation may in part contribute to the documented unmet desire for mental health support amongst AYA cancer patients. The aims of this study were therefore to describe the prevalence and severity of psychological morbidities in AYAs with hematologic malignancies, and to examine provider perceptions of psychological morbidity in their AYA patients. Methods Patients ages 15-40 years at diagnosis of acute leukemia, aggressive non-Hodgkin lymphoma, and Hodgkin lymphoma who were undergoing curative intent therapy (on-treatment cohort) or had completed therapy within 2 years and were in remission (early survivor cohort) underwent a one-time semi-structured interview that incorporated validated measures of anxiety (State Anxiety Inventory [SAI]), depression (Center for Epidemiological Studies Depression Scale [CES-D]), and post-traumatic stress (PTSD Checklist [PCL-C]). Frequencies of patient anxiety, depression, traumatic stress, and composite distress (impairment in ≥1 psychological domain) were determined using published instrument cut-points, and stratified by cohort (on-treatment versus early survivor). Following patient enrollment, providers completed a survey evaluating their perception of the subject’s anxiety, depression, and traumatic stress. Spearman correlation coefficients evaluated correlations between provider perceptions and AYA scores on the survey measures. Results Between October 2012 and May 2013, 61 (26 on-treatment, 35 early survivors) of 77 eligible AYAs completed the study and are evaluable. Median age at diagnosis was 26 years. 64% were male; 59% non-Hispanic white, 15% Hispanic, and 20% African American. 52% and 48% had lymphoma or leukemia, respectively. Median time from diagnosis to study interview was 13 months (range, 1-102). On-treatment versus early survivor cohort demographics differed only in median time from diagnosis to interview (5.4 months versus 13.6 months, p= .009). Of the 61 evaluable patients, 23% met criteria for anxiety, 28% for depression, and 13% for traumatic stress; 46% demonstrated PTSD symptomatology. 36% met criteria for impairment in at least one psychological domain. Psychological impairments were as frequent in the early survivors as the on-treatment cohort. Provider surveys were distributed for the first 30 patients enrolled; 48 surveys were returned for 27 of the 30 patients. Providers were 50% attending physicians, 44% nurses, and 6% fellows; 71% were female. Providers had, on average, 10-20 interactions with the patient. Provider perceptions of their AYA patient’s psychological morbidities varied substantially between providers, and did not significantly correlate with results obtained via patient surveys (anxiety: r=.11, p= .57; depression: r=.13, p= .53; traumatic stress: r=.004, p= .98). Conclusions Many AYAs with hematologic malignancies experience substantial psychological morbidities both while undergoing therapy as well as during the first two years following treatment completion, with over one-third of patients meeting criteria for anxiety, depression, or traumatic stress. This psychological burden does not appear to be accurately appreciated by their oncology providers, indicating a need for increased awareness among the hematology/oncology community. Additional studies will explore the long-term implications of these findings, as well as novel interventions aimed at reducing the psychological burden for AYAs with hematologic malignancies. Disclosures: No relevant conflicts of interest to declare.


2017 ◽  
Vol 6 (4) ◽  
pp. 519-523 ◽  
Author(s):  
Anne C. Kirchhoff ◽  
Brynn Fowler ◽  
Echo L. Warner ◽  
Samantha T. Pannier ◽  
Douglas Fair ◽  
...  

2019 ◽  
Vol 27 (11) ◽  
pp. 4091-4098
Author(s):  
Kayla N. LaRosa ◽  
Marilyn Stern ◽  
Courtney Lynn ◽  
Janella Hudson ◽  
Damon R. Reed ◽  
...  

Haemophilia ◽  
2017 ◽  
Vol 23 (6) ◽  
pp. 852-860 ◽  
Author(s):  
Angela Lambing ◽  
Cynthia D. Nichols ◽  
James E. Munn ◽  
Terry L. Anderson ◽  
Bartholomew J. Tortella ◽  
...  

Author(s):  
Marc Allroggen ◽  
Peter Rehmann ◽  
Eva Schürch ◽  
Carolyn C. Morf ◽  
Michael Kölch

Abstract.Narcissism is seen as a multidimensional construct that consists of two manifestations: grandiose and vulnerable narcissism. In order to define these two manifestations, their relationship to personality factors has increasingly become of interest. However, so far no studies have considered the relationship between different phenotypes of narcissism and personality factors in adolescents. Method: In a cross-sectional study, we examine a group of adolescents (n = 98; average age 16.77 years; 23.5 % female) with regard to the relationship between Big Five personality factors and pathological narcissism using self-report instruments. This group is compared to a group of young adults (n = 38; average age 19.69 years; 25.6 % female). Results: Grandiose narcissism is primarily related to low Agreeableness and Extraversion, vulnerable narcissism to Neuroticism. We do not find differences between adolescents and young adults concerning the relationship between grandiose and vulnerable narcissism and personality traits. Discussion: Vulnerable and grandiose narcissism can be well differentiated in adolescents, and the pattern does not show substantial differences compared to young adults.


Crisis ◽  
2009 ◽  
Vol 30 (3) ◽  
pp. 115-119 ◽  
Author(s):  
Stephanie De Munck ◽  
Gwendolyn Portzky ◽  
Kees Van Heeringen

Background: Notwithstanding the epidemiological studies indicating an increased risk of attempted suicide among adolescents and young adults, there is a scarcity of international studies that examine long-term epidemiological trends in rates and characteristics of this vulnerable group. Aims: This article describes the results of a 9-year monitoring study of suicide attempts in adolescents and young adults referred to the Accident and Emergency Department of the Gent University Hospital (Belgium). Methods: Between January 1996 and December 2004, trends, sociodemographic, and methodrelated characteristics of suicide attempts were assessed by a psychiatrist on data sheets. Results: Attempted suicide rates declined from 1996 to 2001 and then rose until 2004, but did not exceed previous rates. During the 9 years of monitoring, there was a preponderance of female suicide attempters, except for 1997. Rates of attempts and of fatal suicide were negatively correlated. Significantly more males than females deliberately injured themselves. Younger attempters, especially females, significantly more often poisoned themselves with analgesics. In nearly one in five attempts, alcohol was used in combination with other methods, and alcohol intake was more commonly observed in older suicide attempters. Nearly half of the adolescents were identified as repeaters. Conclusions: The results of this study warrant further monitoring of trends and characteristics of young suicide attempters.


2017 ◽  
Vol 33 (2) ◽  
pp. 123-128 ◽  
Author(s):  
Anne van Alebeek ◽  
Paul T. van der Heijden ◽  
Christel Hessels ◽  
Melissa S.Y. Thong ◽  
Marcel van Aken

Abstract. One of the most common personality disorders among adolescents and young adults is the Borderline Personality Disorder (BPD). The objective of current study was to assess three questionnaires that can reliably screen for BPD in adolescents and young adults (N = 53): the McLean Screening Instrument for BPD (MSI-BPD; Zanarini et al., 2003 ), the Personality Diagnostic Questionnaire 4th edition – BPD scale (PDQ-4 BPD; Hyler, 1994 ), and the SCID-II Patient Questionnaire – BPD scale (SCID-II-PQ BPD). The nine criteria of BPD according to the Diagnostic and Statistical Manual of Mental Disorders-IV (DSM-IV; APA, 1994 ) were measured with the Structural Clinical Interview for DSM-IV Axis II disorders – BPD scale (SCID-II; First, Spitzer, Gibbon, Williams, & Benjamin, 1995 ). Correlations between the questionnaires and the SCID-II were calculated. In addition, the sensitivity and specificity of the questionnaires were tested. All instruments predicted the BPD diagnosis equally well.


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