Patient-Reported Outcomes in Psychological Treatment for an Adolescent Oncology Patient: A Case Report

2018 ◽  
Vol 7 (3) ◽  
pp. 395-399 ◽  
Author(s):  
Nicole M. Racine ◽  
Lucie Lafay-Cousin ◽  
Fiona Schulte
Keyword(s):  
Case Report ◽  
Patient Reported Outcomes ◽  
Psychological Treatment ◽  
Oncology Patient ◽  
Patient Reported ◽  
Adolescent Oncology

scholarly journals Overcoming barriers to implementing patient-reported outcomes in an electronic health record: a case report

2015 ◽  
Vol 23 (1) ◽  
pp. 74-79 ◽  
Author(s):  
Christopher A Harle ◽  
Alyson Listhaus ◽  
Constanza M Covarrubias ◽  
Siegfried OF Schmidt ◽  
Sean Mackey ◽  
...  
Keyword(s):  
Case Report ◽  
Electronic Health Record ◽  
Patient Reported Outcomes ◽  
System Development ◽  
Lessons Learned ◽  
Health Record ◽  
Patient Reported ◽  
Electronic Health ◽  
Clinical Tools ◽  
The Right

Abstract In this case report, the authors describe the implementation of a system for collecting patient-reported outcomes and integrating results in an electronic health record. The objective was to identify lessons learned in overcoming barriers to collecting and integrating patient-reported outcomes in an electronic health record. The authors analyzed qualitative data in 42 documents collected from system development meetings, written feedback from users, and clinical observations with practice staff, providers, and patients. Guided by the Unified Theory on the Adoption and Use of Information Technology, 5 emergent themes were identified. Two barriers emerged: (i) uncertain clinical benefit and (ii) time, work flow, and effort constraints. Three facilitators emerged: (iii) process automation, (iv) usable system interfaces, and (v) collecting patient-reported outcomes for the right patient at the right time. For electronic health record-integrated patient-reported outcomes to succeed as useful clinical tools, system designers must ensure the clinical relevance of the information being collected while minimizing provider, staff, and patient burden.

scholarly journals Patient-reported outcomes in urticarial vasculitis treated with omalizumab: case report

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
Ivan Cherrez-Ojeda ◽  
Emanuel Vanegas ◽  
Miguel Felix ◽  
Valeria L. Mata ◽  
Annia Cherrez
Keyword(s):  
Case Report ◽  
Patient Reported Outcomes ◽  
Urticarial Vasculitis ◽  
Patient Reported

scholarly journals Oncology patient preferences in reporting on symptoms

2020 ◽  
Vol 7 (1) ◽  
pp. 11
Author(s):  
Alyssa L. Peechatka ◽  
Millie Gerzon ◽  
Jenny J. Ly ◽  
Susan M. Dallabrida
Keyword(s):  
Clinical Trials ◽  
Cancer Diagnosis ◽  
Patient Reported Outcomes ◽  
Online Survey ◽  
Data Capture ◽  
Oncology Patient ◽  
Patient Reported ◽  
Oncology Clinical Trials ◽  
Preliminary Study ◽  
Patient Burden

<p><strong>Background:</strong> Collecting patient reported outcomes (PROs) in oncology clinical trials is becoming increasingly important. However, there is limited consensus on the most appropriate frequency of PRO administration in oncology trials.  The aim of this preliminary study is to examine the perspective of participants with a cancer diagnosis on the importance of completing PROs and to identify at what frequency participants prefer to report on their cancer-related symptoms.</p><p class="abstract"><strong>Methods:</strong> 166 participants with a self-reported cancer diagnosis completed a multiple-choice online survey regarding perceptions of symptom importance and reporting preferences.</p><p class="abstract"><strong>Results:</strong> When asked about the benefit of reporting oncology-related symptoms daily, 44% of participants indicated there would be “very much” a benefit, 29% indicated there would be “quite a bit” of benefit, and 17% indicated there would be “somewhat” of a benefit. When asked about how frequently they would prefer to report symptoms, 41% of participants preferred “as they occur,” 36% preferred “once a day,” 18% preferred “once a week,” 4% preferred “twice a day,” and 1% preferred “every 4 hours”.</p><p class="abstract"><strong>Conclusions: </strong>PROs in oncology clinical research are most often collected at weekly, monthly, or longer intervals; however, meaningful fluctuations in cancer-related symptoms can occur more frequently. While concerns regarding patient burden are often raised to support infrequent reporting, these data suggest that participants would like to report symptoms with greater frequency, as episodic and daily reporting options were most popular. Based on these data, more frequent PRO data capture is not only feasible but perceived as important by individuals with cancer.</p>

P048 QUALITY OF LIFE AND OTHER PATIENT REPORTED OUTCOMES IN PATIENTS WITH POUCHITIS

2020 ◽  
Vol 158 (3) ◽  
pp. S107
Author(s):  
Edward Barnes ◽  
Millie Long ◽  
Laura Raffals ◽  
Xian Zhang ◽  
Anuj Vyas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Patient Reported Outcomes ◽  
Patient Reported

Erfassung und Nutzen von „Patient Reported Outcomes“ (PRO) in der stationären onkologischen Routineversorgung

2014 ◽  
Vol 15 (03) ◽  
Author(s):  
M Radloff ◽  
J Schmitt ◽  
M Eberlein-Gonska ◽  
M Schuler ◽  
T Petzold ◽  
...  
Keyword(s):  
Patient Reported Outcomes ◽  
Patient Reported
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