scholarly journals Early Education and Employment Outcomes After Cancer in Adolescents and Young Adults

2018 ◽  
Vol 7 (2) ◽  
pp. 238-244 ◽  
Author(s):  
Silja Kosola ◽  
Maria C. McCarthy ◽  
Robyn McNeil ◽  
Lisa M. Orme ◽  
Sarah Drew ◽  
...  
2016 ◽  
Vol 34 (26_suppl) ◽  
pp. 243-243
Author(s):  
Joelle P. Straehla ◽  
Krysta Shutske ◽  
Joyce P. Yi-Frazier ◽  
Claire M Wharton ◽  
Kevin Scott Baker ◽  
...  

243 Background: Much of the literature describing psychosocial consequences of cancer among adolescents and young adults (AYAs) has reported negative outcomes; however, AYAs also have potential for protective, positive outcomes. We aimed to prospectively characterize AYA patient-reported benefit and burden-finding after cancer diagnosis and hypothesized that benefit finding would be a salient coping mechanism. Methods: Semi-structured, 1:1 interviews were conducted with AYA patients after cancer diagnosis at 3 time points over 2 years, to elicit their expectations, hopes, worries, personal strengths, and challenges. A priori coding themes were defined from validated scales: changed sense of self, relationships, philosophy of life, and physical well-being. Verbatim transcripts were coded using content analyses by 3 independent coders for instances of benefit or burden by construct. Raw counts, ratios, and confidence intervals were calculated and compared by patient and time point. Results: Seventeen patients (mean age 17.1 ± 2.7; 8 [47%] male) completed 44 interviews with > 100 hours of transcript-data. Most common diagnoses were sarcoma (n = 8), acute leukemia (n = 6), and lymphoma (n = 3). Twelve patients completed all 3 interviews; reasons for withdrawal included death in all but 2 cases. Mean (±SD) counts of patient-reported benefit were higher than burden at each time point (T1, T2, T3); the benefit: burden ratio was > 1 in 68% of interviews (Table). Of the themes, changed sense of self was the most common benefit identified (44% of all reported benefits [95% CI 37%, 52%]) whereas physical complaints was the most common burden (32% [95% CI 25%, 39%]). Longitudinal analysis of subthemes among patients completing 3 interviews (N = 12) indicated an increase in self-identified positive and negative impact of cancer on personal, social and existential perspectives. Conclusions: AYA patients with cancer identified more benefits than burdens related to their diagnoses at all times studied. There was a shift over time in the distribution of benefit and burden finding constructs which may highlight areas for potential intervention. [Table: see text]


2019 ◽  
Vol 36 (3) ◽  
pp. 191-206
Author(s):  
Andrew Estefan ◽  
Nancy J. Moules ◽  
Catherine M. Laing

A cancer diagnosis heralds the onset of significant life changes. The various experiences of diagnosis, treatment, and recovery from cancer during adolescence and young adulthood are complex and disruptive. Emphasis on treatment and recovery often overshadows other social and developmental imperatives for adolescents and young adults. Acknowledging, exploring, and crafting one’s own sexual identity is a significant milestone achieved during this time, and it is one that is interrupted by the arrival and treatment of cancer. There is value in understanding how adolescents and young adults compose sexuality amid cancer experiences, and how this composition contributes to their ongoing stream of life experiences after recovery. As part of a larger study of sexuality and adolescent cancer, we undertook a narrative inquiry with Anna and Mark, two young adults who experienced cancer during adolescence. Over 14 months, we met with Anna and Mark, drawing on different narrative inquiry approaches to explore their past and ongoing experiences and to build negotiated stories of those experiences. We explored resonant threads between the stories, which help show the depth and complexity of sexuality as it is experienced in the midst of and after cancer. Two resonant threads are discussed: inward and outward looking, and sexuality and survival. The inquiry reveals the richness of self-composition amid competing stories of cancer treatment, disruptions to family and socialization, survivorship, what it means to be a young man or woman in the world, and the sense of a developing sexual self.


2019 ◽  
Vol 121 (12) ◽  
pp. 1079-1084 ◽  
Author(s):  
Klaus Rostgaard ◽  
Henrik Hjalgrim ◽  
Laura Madanat-Harjuoja ◽  
Tom B. Johannesen ◽  
Sofia Collin ◽  
...  

Abstract Background The present study aimed to assess whether the widespread concern of inferior cancer survival in adolescents and young adults (AYAs) compared with children and adults holds true in a Nordic setting with important differences in healthcare organisation compared with the United States (e.g. free access to healthcare) and the United Kingdom (e.g. young teenagers are treated in paediatric departments). Methods Five-year relative survival was calculated for 17 diagnostic groups in patients diagnosed in 2000–2013 in three diagnostic age categories: children (0–14 years), AYAs (15–24 years) and adults (25–34 years). Results For 13 out of 17 diagnostic groups examined, there was no difference in survival between AYAs and neighbouring age categories. For acute lymphoblastic leukaemias, astrocytomas, rhabdomyosarcomas and non-rhabdomyosarcoma soft tissue sarcomas we found survival in children to be superior to that in AYAs. For these four diagnostic groups, the rate of survival improvement over three calendar periods (1980–1989, 1990–1999 and 2000–2013) was not particularly low in AYAs compared with neighbouring age categories. Conclusions The present study suggests that in an affluent setting with free access to healthcare, meaningful differences in survival between AYA patients and either childhood or adult patients are a phenomenon of the past for most AYA cancer diagnostic groups.


2017 ◽  
Vol 6 (4) ◽  
pp. 560-567 ◽  
Author(s):  
Lauren C. Daniel ◽  
Richa Aggarwal ◽  
Lisa A. Schwartz

1996 ◽  
Vol 17 (1) ◽  
pp. 4-20 ◽  
Author(s):  
STEPHEN LICHTENSTEIN

WITH THE GOAL OF ACHIEVING A BETTER UNDERSTANDING OF THE NATURE AND INFLUENCE OF GENDER ON STUDENTS IN SPECIAL EDUCATION, THIS REVIEW FOCUSES FIRST ON THE LITERATURE RELATED TO GENDER DISPARITIES IN THE GENERAL POPULATION. THE ISSUES ADDRESSED COVER BOTH EDUCATION AND EMPLOYMENT OUTCOMES, WITH SPECIAL ATTENTION DEVOTED TO CURRENT INTERVENTIONS THAT ARE DESIGNED TO REDUCE THE DISPARITIES. THE REVIEW FURTHER EXAMINES THE LITERATURE ON GENDER AND ITS RELATIONSHIP TO STUDENTS IN SPECIAL EDUCATION, INCLUDING (A) OVERALL GENDER RATES BY DISABILITY GROUPS, (B) GENDER DISPARITIES IN EDUCATION AND EMPLOYMENT OUTCOMES ASSOCIATED WITH MALES AND FEMALES IN SPECIAL EDUCATION, AND (C) PROPOSED INTERVENTION PROGRAMS AND PRACTICES THAT APPEAR PROMISING. THE ARTICLE CONCLUDES BY DISCUSSING IMPLICATIONS FOR SPECIAL EDUCATION AND RESEARCH THAT CAN REDUCE THE INCIDENCE OF GENDER DIFFERENCES IN SPECIAL EDUCATION.


2017 ◽  
Vol 6 (3) ◽  
pp. 489-493 ◽  
Author(s):  
Anna Spathis ◽  
Helen Hatcher ◽  
Sara Booth ◽  
Faith Gibson ◽  
Paddy Stone ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document