scholarly journals The Health Behavior Information Needs and Preferences of Teenage and Young Adult Cancer Survivors

2017 ◽  
Vol 6 (2) ◽  
pp. 318-326 ◽  
Author(s):  
Gemma Pugh ◽  
Rachael E. Hough ◽  
Helen L. Gravestock ◽  
Sarah E. Jackson ◽  
Abigail Fisher
2018 ◽  
Vol 28 (1) ◽  
pp. e12892 ◽  
Author(s):  
Salome Christen ◽  
Esther Weishaupt ◽  
Janine Vetsch ◽  
Corina S. Rueegg ◽  
Luzius Mader ◽  
...  

Author(s):  
Lene Thorsen ◽  
Synne-Kristin H. Bøhn ◽  
Hanne C. Lie ◽  
Sophie D. Fosså ◽  
Cecilie E. Kiserud

Abstract Background Healthy lifestyle and rehabilitation may mitigate late effects after cancer treatment, but knowledge about lifestyle and rehabilitation information needs among long-term young adult cancer survivors (YACSs) (≥ 5 years from diagnosis) is limited. The present study aimed to examine such information needs among long-term YACSs, and identify characteristics of those with needs. Material and methods The Cancer Registry of Norway identified long-term YACSs diagnosed with breast cancer, colorectal cancer, non-Hodgkin lymphoma, leukemia, or malignant melanoma at the age of 19–39 years, between 1985 and 2009. Survivors were mailed a questionnaire, in which respondents reported their information needs on physical activity, diet, and rehabilitation services 5–30 years post-diagnosis. Descriptive statistics and logistic regression analyses were used to examine the prevalence of information needs and associated factors. Results Of 1488 respondents (a response rate of 42%), 947 were included. Median age at diagnosis was 35 years (range 19–39) and median observation time since diagnosis was 14 years (range 5–30). In total, 41% reported information needs for information about physical activity, 45% about diet, and 47% about rehabilitation services. Information needs were associated with higher treatment intensity, increasing number of late effects, and an unhealthy lifestyle. Conclusion A large proportion of long-term YACSs report information needs regarding lifestyle and/or rehabilitation more than a decade beyond treatment. Assessments of such information needs should become a part of long-term care of these cancer survivors.


Cancer ◽  
2019 ◽  
Vol 125 (11) ◽  
pp. 1908-1917 ◽  
Author(s):  
Tyler G. Ketterl ◽  
Karen L. Syrjala ◽  
Jacqueline Casillas ◽  
Linda A. Jacobs ◽  
Steven C. Palmer ◽  
...  

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