scholarly journals Factors Affecting Recruitment of Participants for Studies of Diabetes Technology in Newly Diagnosed Youth with Type 1 Diabetes: A Qualitative Focus Group Study with Parents and Children

2016 ◽  
Vol 18 (9) ◽  
pp. 568-573 ◽  
Author(s):  
Conor Farrington ◽  
Janet Allen ◽  
Martin Tauschmann ◽  
Tabitha Randell ◽  
Nicola Trevelyan ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Focus Group ◽  
Newly Diagnosed ◽  
Focus Group Study ◽  
Factors Affecting ◽  
Parents And Children ◽  
Diabetes Technology

scholarly journals The Value of Children's Voices for a Video Game Development in the Context of Type 1 Diabetes: Focus Group Study

JMIR Diabetes ◽  
2017 ◽  
Vol 2 (2) ◽  
pp. e17 ◽  
Author(s):  
Valéria de Cássia Sparapani ◽  
Sidney Fels ◽  
Lucila Castanheira Nascimento
Keyword(s):  
Type 1 Diabetes ◽  
Focus Group ◽  
Video Game ◽  
Focus Group Study ◽  
Game Development ◽  
Video Game Development ◽  
Children’S Voices

scholarly journals Adolescent Perspectives on the Use of Social Media to Support Type 1 Diabetes Management: Focus Group Study

10.2196/12149 ◽  
2019 ◽  
Vol 21 (6) ◽  
pp. e12149 ◽  
Author(s):  
Faisal S Malik ◽  
Neil Panlasigui ◽  
Jesse Gritton ◽  
Harsimrat Gill ◽  
Joyce P Yi-Frazier ◽  
...  
Keyword(s):  
Social Media ◽  
Type 1 Diabetes ◽  
Focus Group ◽  
Diabetes Management ◽  
Focus Group Study ◽  
Use Of Social Media

Why Do Adolescents With Type 1 Diabetes and Their Parents Participate in Focus Groups?

2007 ◽  
Vol 21 (2) ◽  
pp. 135-142 ◽  
Author(s):  
Aaron E. Carroll ◽  
David G. Marrero ◽  
Melinda M. Swenson
Keyword(s):  
Type 1 Diabetes ◽  
Focus Group ◽  
Focus Groups ◽  
Focus Group Study ◽  
Patient Centered ◽  
Peer Socialization ◽  
Group Data ◽  
Focus Group Data ◽  
Almost All

Almost all patient-centered research is dependent on voluntary participation by participants. Many forces, however, act to either encourage or inhibit people from deciding to participate. This study explored adolescents’ with Type 1 diabetes and their parents’ reasons for participating in a research study. We recruited adolescents with type 1 diabetes mellitus and their parents to participate in a focus group study. Qualitative analysis of the focus group data followed a set procedure: (a) audio review, (b) reading through transcriptions, (c) discussions among investigators regarding key elements of participants’ perceptions, (d) determination of conceptual themes, and (e) assignment of relevant responses to appropriate thematic constructs. The 10 focus groups involved 59 participants. The three major themes that developed were giving and receiving, desire for peer socialization, and need for validation. Themes captured the reasons adolescents with type 1 diabetes and their parents decided to participate in this research. A better understanding of why people participate in research may help us to meet their needs and desires more completely. Designing research to meet these reasons will have the dual affect of increasing participation while also better serving those who choose to be studied.

scholarly journals Home Education for Children with Newly Diagnosed Type-1 Diabetes-Exploring Needs and Experiences among Participants of Home Education Visits

2021 ◽  
Vol 8 (2) ◽  
Author(s):  
Truelsen MF ◽  
◽  
Christiansen SY ◽  
Lundby-Christensen L ◽  
Lehn SF ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Social Network ◽  
Focus Group ◽  
Diabetes Care ◽  
Health Care Professionals ◽  
Home Education ◽  
Newly Diagnosed ◽  
Focus Group Interviews ◽  
Group Interviews

Objective: Type 1-diabetes is increasing among younger age groups and type 1-diabetes has a major impact on daily life of both the children and their families. The aim of the current study was to explore a family and network centered intervention to children with newly diagnosed type-1 diabetes. Home education visits performed by health care professionals were evaluated using focus group interviews. Method: We conducted five focus group interviews with 21 home education attendants and two individual interviews with health care professionals. Employing inductive content analysis. Results: Families of children who have newly been diagnosed with type 1-diabetes struggle to comply with diabetes care and, thus, leaving the children to the care of others is a major concern. Lack of knowledge among members of family and social network, adhere to an anxiety of doing something wrong in relation to diabetes care. Home education visits educate the wider family and social network about diabetes care. Focus group participants and health professionals describe that the education visits constitute a major support for parents in the task of instructing family and social network members. Additionally, family and social network members report that they feel more confident to contribute more to the care of the child with type 1-diabetes. Conclusion: Existing prejudices and lack of knowledge leads to stress and worry among the social network of children with type-1 diabetes. Home education improves knowledge and feeling of confidence concerning diabetes care among family and social network, with the potential to strengthen and maintain close social relations.

Audit of insulin doses in children with newly diagnosed type 1 diabetes

2014 ◽  
Author(s):  
Sarah Kiff ◽  
Ailish Nimmo ◽  
Kathryn Noyes ◽  
Louise Bath
Keyword(s):  
Type 1 Diabetes ◽  
Newly Diagnosed

1278-P: Up All Night? Sleep in Parents of Young Children Newly Diagnosed with Type 1 Diabetes

Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 1278-P
Author(s):  
IMAN AL-GADI ◽  
RANDI STREISAND ◽  
MAUREEN MONAGHAN ◽  
CARRIE TULLY ◽  
MANUELA SINISTERRA ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Children ◽  
Newly Diagnosed ◽  
Night Sleep

A Decade of Disparities in Diabetes Technology Use and HbA1c in Pediatric Type 1 Diabetes: A Trans-Atlantic Comparison

2020 ◽  
Author(s):  
Ananta Addala ◽  
Marie Auzanneau ◽  
Kellee Miller ◽  
Werner Maier ◽  
Nicole Foster ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Technology Use ◽  
Hemoglobin A1c ◽  
Diabetes Technology ◽  
Design And Methods ◽  
Relationship Of ◽  
The Relationship ◽  
Pediatric Type 1 Diabetes

<b>Objective:</b> As diabetes technology use in youth increases worldwide, inequalities in access may exacerbate disparities in hemoglobin A1c (HbA1c). We hypothesized an increasing gap in diabetes technology use by socioeconomic status (SES) would be associated with increased HbA1c disparities. <p> </p> <p><b>Research Design and Methods: </b>Participants aged <18 years with diabetes duration ≥1 year in the Type 1 Diabetes Exchange (T1DX, US, n=16,457) and Diabetes Prospective Follow-up (DPV, Germany, n=39,836) registries were categorized into lowest (Q1) to highest (Q5) SES quintiles. Multiple regression analyses compared the relationship of SES quintiles with diabetes technology use and HbA1c from 2010-2012 and 2016-2018. </p> <p> </p> <p><b>Results: </b>HbA1c was higher in participants with lower SES (in 2010-2012 & 2016-2018, respectively: 8.0% & 7.8% in Q1 and 7.6% & 7.5% in Q5 for DPV; and 9.0% & 9.3% in Q1 and 7.8% & 8.0% in Q5 for T1DX). For DPV, the association between SES and HbA1c did not change between the two time periods, whereas for T1DX, disparities in HbA1c by SES increased significantly (p<0.001). After adjusting for technology use, results for DPV did not change whereas the increase in T1DX was no longer significant.</p> <p> </p> <p><b>Conclusions: </b>Although causal conclusions cannot be drawn, diabetes technology use is lowest and HbA1c is highest in those of the lowest SES quintile in the T1DX and this difference for HbA1c broadened in the last decade. Associations of SES with technology use and HbA1c were weaker in the DPV registry. </p>

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