Attitudes and Perceptions of Cancer Patients Toward Biospecimen Donation for Cancer Research: A Cross-Sectional Survey Among Chinese Cancer Patients

2017 ◽  
Vol 15 (4) ◽  
pp. 366-374 ◽  
Author(s):  
Na He ◽  
Yan Guo ◽  
Min He ◽  
Wanmin Qiang ◽  
Haixin Li
2018 ◽  
Vol 17 (3) ◽  
pp. 885-893 ◽  
Author(s):  
Lingyun Sun ◽  
Jun J. Mao ◽  
Emily Vertosick ◽  
Christina Seluzicki ◽  
Yufei Yang

Background: Traditional Chinese medicine (TCM) is widely used among Chinese cancer patients. However, little is known about Chinese patients’ expectations and barriers toward using TCM for cancer. Methods: We conducted a cross-sectional survey within a patient-support group, the Beijing Anti-Cancer Association. We measured the outcome, Chinese cancer survivors’ expectations and barriers toward TCM utilization, using a modified version of ABCAM (Attitudes and Beliefs towards Complementary and Alternative Medicine), the ABTCM (Attitudes and Beliefs towards Traditional Chinese Medicine). We used multivariate models to evaluate the impact of socioeconomic status and clinical factors on their expectations and barriers (including treatment concerns and logistical challenges domain) toward TCM. Results: Among 590 participants, most patients expected TCM to boost their immune system (96%), improve their physical health (96%), and reduce symptoms (94%). Many had logistical challenges (difficulty decocting herbs (58%) and finding a good TCM physician (55%)). A few were concerned that TCM might interfere with conventional treatments (7.6%), and that many TCM treatments are not based on scientific research (9.1%). In the multivariable regression model, age ≤60 years was independently associated with higher expectation score ( P = .031). Age ≤60 years (coefficient 5.0, P = .003) and localized disease (coefficient 9.5, P = .001) were both associated with higher treatment concerns. Active employment status (coefficient 9.0, P = .008) and localized disease (coefficient 7.5, P = .030) were related to more logistical challenges. Conclusion: Age and cancer stage were related to Chinese cancer patients’ perceived expectations and barriers toward TCM use. Understanding these attitudes is important for reshaping the role that TCM plays in China’s patient-centered comprehensive cancer care model.


2016 ◽  
Vol 32 (1) ◽  
pp. 89-94 ◽  
Author(s):  
N. M. Verweij ◽  
M. E. Hamaker ◽  
D. D. E. Zimmerman ◽  
Y. T. van Loon ◽  
F. van den Bos ◽  
...  

2021 ◽  
pp. 107815522110562
Author(s):  
Moataz M Hassan ◽  
Dhabya Al-Marzooq ◽  
Hanan Al-Habsi ◽  
Amna Al-Hashar ◽  
Murtadha Al-Khabori ◽  
...  

Background Safe handling of oral anticancer agents is of great concern. There is a lack of clear, national guidelines on how patients can safely handle and dispose of unwanted medications. We aimed to evaluate the safe handling, storage, and disposal of oral anticancer drugs among cancer patients and caregivers at home. Method This cross-sectional survey of adult cancer patients (or their adult caregivers) used a closed-ended questionnaire from May 2019 to March 2020. Results A total of 257 patients (50 ± 15 years; range: 18–93 years) were enrolled; however, only 91% (233/257) reported self-administering oral anticancer medications. Caregivers were more likely to administer oral anticancer agents for patients ≥60 years than those <40 years old (63% vs. 8%; P = 0.001). Most patients (52%; 133/257) did not wash their hands after administering the drug; 74% (164/222) of the respondents reported that their medications were kept in a bedroom cabinet, while 18% (40/222) stored their medications in a refrigerator, and 5% (12/222) in a kitchen cabinet. A total of 55% (68/124) of patients returned their excess oral chemotherapy medications to the hospitals; however, 36% (45/124) disposed of their unused oral chemotherapy drugs in a household garbage container. Conclusion While two-thirds of patients stored their oral anticancer medications properly, more than half used inappropriate handling procedures. Disposal practices were inconsistent and did not adhere to the reported international guidelines.


2016 ◽  
Vol 41 (3) ◽  
pp. 228-233 ◽  
Author(s):  
T.M. Govers ◽  
W.H. Schreuder ◽  
W.M.C. Klop ◽  
J.P.C. Grutters ◽  
M.M. Rovers ◽  
...  

2016 ◽  
Vol 15 (1) ◽  
Author(s):  
Sonya S. Lowe ◽  
Brita Danielson ◽  
Crystal Beaumont ◽  
Sharon M. Watanabe ◽  
Kerry S. Courneya

2013 ◽  
Vol 28 (3) ◽  
pp. 428-434 ◽  
Author(s):  
Wei-Li Qiu ◽  
Pei-Juan Lin ◽  
Fei-Qun Ruan ◽  
Xiao Wu ◽  
Miao-Ping Lin ◽  
...  

Blood ◽  
2006 ◽  
Vol 108 (11) ◽  
pp. 5518-5518
Author(s):  
David H. Henry ◽  
Shawn M. Wade ◽  
Mariana Servin ◽  
William Hershfield

Abstract INTRODUCTION: The time incurred in seeking care for the treatment of side effects of chemotherapy (CT) or radiotherapy (RT) can result in lost productivity and resulting lost wages for cancer patients (pts) and their caregivers. The purpose of this study was to assess the amount of time spent by pts and caregivers to seek treatment for side effects of CT/RT and to examine productivity losses associated with such visits. METHODS: A cross-sectional survey was conducted from April to May 2006 using a random sample of pts from a chronic illness panel of 550,233 pts. Inclusion criteria were being at least 18 years of age, diagnosed with cancer, and receiving CT and/or RT either currently or during the 12 months prior to participating in the study. Percentages and means were used to calculate descriptive statistics. RESULTS: A total of 1,569 cancer pts were surveyed: 1,302 pts online and 267 pts by telephone. No significant differences were found between phone and online respondents. Of the pts currently receiving CT and/or RT (N=814), a total of 249 pts received treatment for side effects of CT/RT. The total time spent per visit to receive treatment for side-effects of CT/RT was approximately 5 hrs/visit including preparation time, travel time, and time spent at the clinic. Approximately one-half (54%) of the 249 patients currently receiving treatment for side effects of CT/RT were employed full-time (44%) or part-time (10%). Among employed patients currently receiving treatment for side effects of CT/RT, the mean number of work days missed as a result of visits for the treatment of CT/RT related side effects was 20 days per year. The primary reason for continuing to work during cancer treatment was financial need, reported by 59% of patients. Approximately 83% of all patients indicated that a caregiver generally accompanied them on their visits to the doctor’s office, clinic, or hospital to receive treatment for side effects of CT/RT. Seven out of ten caregivers (68%) were reported as being employed either full-time (62%) or part-time (6%). CONCLUSIONS: Time related burden for patients receiving treatment for side effects of CT/RT and their caregivers is significant. Reduction in frequency of such visits is important from the standpoint of patients’ economic livelihood and can stand to benefit employers and society. Table 1. Time Spent on Healthcare Provider Visits for Treatment of Side Effects Related to Chemotherapy and/or Radiation (N=249) Activity (per visit) Minutes Spent (mean) Standard Deviation Minutes Spent (median) Preparing to go to the doctor’s office, clinic or hospital 81 127 55 Travel to and from the doctor’s office, clinic, or hospital 102 188 58 Waiting at the doctor’s office, clinic, or hospital to see the doctor or another healthcare professional 64 72 39 Seeing the doctor or another healthcare professional 64 75 43 Total 311 380 210


2013 ◽  
Vol 31 (15_suppl) ◽  
pp. e16046-e16046
Author(s):  
Jorge Arellano ◽  
Kristina S Chen ◽  
Carolyn Atchison ◽  
Alex Rider ◽  
Andrew Worsfold ◽  
...  

e16046 Background: Advanced prostate cancer often leads to the development of BM and as a result SREs. Treatment and management of SREs, as well as the underlying disease, influences the patient’s HRQoL and HRU. We evaluated the impact of SREs on HRQoL (FACT-P) and HRU in patients with BM. Methods: Data were extracted from the Adelphi Prostate Cancer Disease-Specific Programme (DSP), a cross-sectional survey of 150 urologists and oncologists and their prostate cancer patients conducted from March to June 2012 in the US. Each specialist completed comprehensive record forms on 12 of their patients being treated for prostate cancer. Patients were invited to complete a questionnaire, which included the FACT-P HRQoL instrument. Patients were stratified by SRE experience to assess the impact of SRE on patients with BM. SRE was defined as an event of bone radiation, bone surgery, fracture, or spinal cord compression. Results: Data were collected from 1,749 prostate cancer patients, of which 941 were identified with BM; SRE status was recorded in 499 BM patients (Table). HRQoL was significantly lower in patients experiencing SREs, while the rate of consultations and likelihood of being hospitalized was significantly higher. Conclusions: SREs result in a significant economic burden on the healthcare system and negative impact on HRQoL in prostate cancer patients with BM. [Table: see text]


2019 ◽  
Vol 37 (31_suppl) ◽  
pp. 78-78
Author(s):  
Desiree Rachel Azizoddin ◽  
Andrea Catherine Enzinger ◽  
Alexi A. Wright ◽  
Miryam Yusufov ◽  
Fangxin Hong ◽  
...  

78 Background: Cancer patients are increasingly using medical marijuana (MM) to manage symptoms and treatment side effects. Although cancer disproportionately affects the elderly, little is known about oncologists’ attitudes toward MM in this population. We surveyed US oncologists’ beliefs about the benefits of MM for older adults, and examined their associations with oncologists’ perceptions of MM efficacy and safety. Methods: 232 out of 400 randomly selected U.S. oncologists (63% response rate) completed a cross-sectional survey about their beliefs and recommendations regarding MM for cancer patients. Using Chi-square tests, we examined associations between oncologists’ demographics, their perceptions of geriatric MM use, as well as beliefs about comparative effectiveness of MM for cancer related symptoms, and comparative risks of MM to prescription opioids. Results: Among 232 oncologists included in this cohort, 109 (47.0%) reported that MM had at least some benefit for elderly cancer patients, 66 (28.4%) responded it was rarely or never beneficial, and 57 (24.6%) reported not knowing. There were no significant associations between oncologists’ beliefs about MM’s benefit for older adults and their sociodemographic characteristics. Those who believed MM was beneficial for the elderly were significantly more likely to report that MM was at least as effective as standard treatments for the following indications: coping (58.3% vs. 26.6%), appetite (83.3% vs 58.5%), depression (46.3% vs 25.0%), and nausea (66.7% vs 33.9%), respectively ( p < 0.001). In contrast, oncologists’ beliefs about MM for the elderly were not significantly associated with perceptions of the comparative risks of MM ( p > 0.05). Conclusions: In this nationally-representative sample of US oncologists, about half thought MM was beneficial for older adults with cancer. Oncologists’ support of MM for older adults was associated with perceptions of MM’s efficacy but was not associated with perceptions of MM’s risks. More research is needed regarding the safety and efficacy of MM to guide oncologists’ recommendations about its use in older adults.


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