The Role of Biobanking in Rare Diseases: European Consensus Expert Group Report

2009 ◽  
Vol 7 (3) ◽  
pp. 155-156 ◽  
Author(s):  
Hanns Lochmüller ◽  
Ségolène Aymé ◽  
Francesca Pampinella ◽  
Béla Melegh ◽  
Klaus A. Kuhn ◽  
...  
Keyword(s):  
Rare Diseases ◽  
Expert Group ◽  
European Consensus ◽  
Group Report ◽  
Consensus Expert

scholarly journals The role of the pathologist in tissue banking: European Consensus Expert Group Report

2010 ◽  
Vol 456 (4) ◽  
pp. 449-454 ◽  
Author(s):  
Generoso Bevilacqua ◽  
Fred Bosman ◽  
Thibaut Dassesse ◽  
Heinz Höfler ◽  
Anne Janin ◽  
...  
Keyword(s):  
Tissue Banking ◽  
Expert Group ◽  
European Consensus ◽  
Group Report ◽  
Consensus Expert

Laboratory Management of Samples in Biobanks: European Consensus Expert Group Report

2010 ◽  
Vol 8 (1) ◽  
pp. 65-69 ◽  
Author(s):  
Martin Yuille ◽  
Thomas Illig ◽  
Kristian Hveem ◽  
Gerd Schmitz ◽  
Jens Hansen ◽  
...  
Keyword(s):  
Expert Group ◽  
Laboratory Management ◽  
European Consensus ◽  
Group Report ◽  
Consensus Expert

Pathology as the Cornerstone of Human Tissue Banking: European Consensus Expert Group Report

2009 ◽  
Vol 7 (3) ◽  
pp. 157-160 ◽  
Author(s):  
Pierre Hainaut ◽  
Elodie Caboux ◽  
Generoso Bevilacqua ◽  
Fref Bosman ◽  
Thibaut Dassesse ◽  
...  
Keyword(s):  
Human Tissue ◽  
Tissue Banking ◽  
Expert Group ◽  
European Consensus ◽  
Group Report ◽  
Human Tissue Banking ◽  
Consensus Expert

The Right to Avoid Procreation and the Regulation of Pregnancy

2020 ◽  
Author(s):  
Janne Rothmar Herrmann
Keyword(s):  
Human Rights ◽  
European Convention ◽  
European Perspective ◽  
Legal Basis ◽  
Moral Obligations ◽  
Men And Women ◽  
European Consensus ◽  
The Family ◽  
The Right

This chapter discusses the right to avoid procreation and the regulation of pregnancy from a European perspective. The legal basis for a right to avoid procreation can be said to fall within the scope of several provisions of the European Convention on Human Rights (ECHR), an instrument that is binding for all European countries. Here, Article 12 of the ECHR gives men and women of marriageable age the right to marry and found a family in accordance with the national laws governing this right. However, Article 12 protects some elements of the right not to procreate, but for couples only. The lack of common European consensus in this area highlights how matters relating to the right to decide on the number and spacing of children touch on aspects that differ from country to country even in what could appear to be a homogenous region. In fact, the cultural, moral, and historical milieus that surround these rights differ considerably with diverse national perceptions of the role of the family, gender equality, religious and moral obligations, and so on.

IFFS Expert Group Report on the Whittemore study related to the risk of ovarian cancer associated with the use of infertility agents

1993 ◽  
Vol 8 (7) ◽  
pp. 996-999 ◽  
Author(s):  
J. Cohen ◽  
R. Forman ◽  
S. Harlap ◽  
E. Johannisson ◽  
B. Lunenfeld ◽  
...  
Keyword(s):  
Ovarian Cancer ◽  
Expert Group ◽  
Group Report

Structural and functional analysis of reconnaissance and fire system and decomposition of its functions and subsystems

2021 ◽  
pp. 38-48
Author(s):  
O. Maistrenko ◽  
O. Karavanov ◽  
A. Shcherba
Keyword(s):  
Functional Analysis ◽  
Fire Damage ◽  
Expert Group ◽  
Expert Evaluation ◽  
Military Conflicts ◽  
Main Factors ◽  
The Stability ◽  
The Impact

It is established that the role of reconnaissance and fire systems in the implementation of enemy fire damage in military conflicts occurring at the beginning of the XXI century. Increased  to 75%. However, it was found that the effectiveness of these systems depends on the quality of their equipment. The main factors that are often not taken into account in the acquisition are the possibility, interoperability, stability of each element, the impact of elements on the stability of each other and the functioning of the RVS as a whole. The analysis of recent research and publications has shown that as of today, the approaches to determining the composition of reconnaissance fire systems taking into account these factors are not justified. Given the above, it was decided to conduct a structural and functional analysis of the reconnaissance fire system and the decomposition of its functions and subsystems. To this end, based on the method of cluster analysis, an algorithm for combining a set of tasks performed by reconnaissance and fire systems into groups has been developed and substantiated. The method of expert evaluation was used to obtain substantiated data on the implementation of such a merger. According to the proposed algorithm, the main tasks were first identified, which involve reconnaissance and fire systems. Subsequently, an expert group was formed and the coefficient of relative competence of each member of the expert group was determined. The experts were then asked to combine the identified tasks according to their characteristics into an arbitrary number of groups. After processing the opinions of experts, 10 characteristic groups were identified. Finally, the experts were asked to combine the obtained groups in such a way that each association consisted of similar objects and the objects of different associations differed significantly. The results of the work revealed the functional interconnectedness of the tasks, processes and subsystems of the reconnaissance and fire system. It is also established that a typical reconnaissance fire system will consist of three subsystems (control, reconnaissance and fire influence), which perform specific functions for each of them.

scholarly journals Orphanet – Information, Education and Expert Centres for Rare Diseases / Orphanet – informovanosť, vzdelávanie a špecializované centrá starostlivosti o pacientov so ZCH

2013 ◽  
Vol 60 (Supplementum-VIII) ◽  
pp. 10-15
Author(s):  
L. Kovács ◽  
E. Hegyi ◽  
G. Nagyová
Keyword(s):  
Rare Diseases ◽  
National Level ◽  
Quality Criteria ◽  
Basic Data ◽  
Current Status ◽  
Paper Briefly ◽  
European Reference Networks ◽  
Reference Networks ◽  
Centres Of Expertise

The paper briefly describes the role of Orphanet as an informational and educational source for rare diseases. Most attention is given to the Centres of Expertise and European Reference Networks. The authors suggest an easy procedure how to get the basic data about the readiness of the clinics to be recognised for Centres of Expertise at the national level. EUCERD recommendations on quality criteria for centres of expertise are introduced. The coordinators of the potential Centres of Expertise should be contacted and asked to fill in the questionnaire designed to check whether the centre matches the EUCERD recommendations or not. In order for the process to be transparent, the selection criteria of expert resources are listed on national website (www.orphanet.sk). The analysis of the questionnaires has to be carried out at the national level, to map the basic data about the current status. One questionnaire per department or clinic shall be filled in order to allow the evaluation. Clinics will be divided in two groups the ones which achieved the threshold and could be recognised as Centres of Expertise at the National level and the ones which need to be further monitored to reach the threshold.

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