True North: A Healing Circle of Care

2008 ◽  
Vol 14 (4) ◽  
pp. 205-207
1990 ◽  
Vol 4 (16) ◽  
pp. 23-25
Author(s):  
Judith Krauts
Keyword(s):  

2021 ◽  
Vol 26 (Supplement_1) ◽  
pp. e82-e84
Author(s):  
Frances Yeung ◽  
Saoirse Cameron ◽  
Sepideh Taheri

Abstract Primary Subject area Hospital Paediatrics Background Obtaining informed consent from patients to participate in clinical research has traditionally been a cumbersome process, often requiring lengthy documentation and the involvement of trained research staff. Moreover, this process can be a burden to the patient/family. As a result, progress in paediatric research and enabling continual improvement in care has been slow. In the last decade, research ethicists have proposed a new “integrated consent model” (ICM) for obtaining informed consent for pragmatic clinical trials that compare standard-of-care interventions, where there is clinical equipoise. In most cases of ICM, only a brief discussion with verbal consent is required, along with a handout on study purpose, risks, benefits, and procedures. This allows for a more condensed consent process, which maximizes clarity and minimizes information overload. ICM also allows the patient/family to maintain prospective autonomy and decision-making, as compared with deferred or waived consent. The ICM model allows staff in the circle of care to obtain consent, which minimizes the stress of meeting an additional person. To our knowledge, ICM has not yet been used in the paediatric population. Objectives The objective of this abstract is to report on the utility of ICM in a non-randomized clinical trial carried out in the inpatient setting of a tertiary children’s hospital. Design/Methods We compared two widely accepted standards of care for maintaining peripheral intravenous catheter patency in a cohort of children, namely continuous infusion (“to keep the vein open” or TKVO) versus saline lock (SL). The ICM process was reviewed and approved by REB. Nurses in the circle of care received a study package that included an REB approved “consent script” to be read to the patient/family, a single page information sheet, and instructions on documenting the obtained verbal consent in the patient’s chart (Graphic 1). Results With ICM, 79% of participants were recruited into the trial by a nurse. Patient recruitment was completed 4 months ahead of the predicted schedule (Figure 1). Nursing, research, and medical staff were satisfied with ICM and found it easy to administer. ICM occurred smoothly and quickly for patients/families, with no interference with their medical care and practically no disruption to their daily schedule. Conclusion ICM is a practical alternative to laborious traditional consent models, is associated with higher patient recruitment rates, and is less burdensome for the patient/family. Paediatricians should be aware of the utility of this novel consent model.


2021 ◽  
Author(s):  
Mona Y. Alqassim ◽  
K. Cassie Kresnye ◽  
Katie A. Siek ◽  
John Lee ◽  
Maria K. Wolters

Abstract Background: Lack of social support during and after miscarriage can greatly affect mental wellbeing. With miscarriages being a common experience, there remains a discrepancy in the social support received after a pregnancy is lost. Method: 42 people who had experienced at least one miscarriage took part in an Asynchronous Remote Community (ARC) study. The study involved 16 activities (discussions, creative tasks, and surveys) in two closed, secret Facebook groups over eight weeks. Descriptive statistics were used to analyse quantitative data, and content analysis was used for qualitative data. Results: There were two main miscarriage care networks, formal (health care providers) and informal (friends, family, work colleagues). The formal care network was the most trusted informational support source, while the informal care network was the main source of tangible support. However, often, participants’ care networks were unable to provide sufficient informational, emotional, esteem, and network support. Peers who also had experienced miscarriage played a crucial role in addressing these gaps in social support. Technology use varied greatly, with smartphone use as the only common denominator. While there was a range of online support sources, participants tended to focus on only a few, and there was no single common preferred source.Discussion: We propose a Miscarriage Circle of Care Model (MCCM), with peer advisors playing a central role in improving communication channels and social support provision. We show how the MCCM can be used to identify gaps in service provision and opportunities where technology can be leveraged to fill those gaps.


2020 ◽  
Vol 104 (3) ◽  
pp. xv-xvi
Author(s):  
Jack Ende
Keyword(s):  

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 1307-1307
Author(s):  
S. Spohr ◽  
J. Idoine-Fries

1998 ◽  
Vol 42 (2) ◽  
pp. 133-141 ◽  
Author(s):  
RONALD D. VICK ◽  
LINDA M. SMITH ◽  
CAROL IRON ROPE HERRERA

Author(s):  
Cara Bradley

This paper explores the value of applying the ethics of care to scholarly communications work, particularly that of open-access (OA) librarians. The ethics of care is a feminist philosophical perspective that sees in the personal a new way to approach other facets of life, including the political and the professional. Care, in this context, is broadly construed as “a species of activity that includes everything we do to maintain, contain, and repair our ‘world’ so that we can live in it as well as possible” (Fisher & Tronto, 1990, p. 40). Joan Tronto outlined four elements of care: attentiveness, responsibility, competence, and responsiveness, and highlighted the value of care beyond the domestic sphere (1993). The ethics of care values care and relationships as instructive ways of framing and examining work, and has been applied in diverse disciplines, including education, nursing, social work, and even business. Several LIS professionals have considered the ethics of care in the context of library technologies (Henry, 2016) and digital humanities (Dohe, 2019), among others. The ethics of care can also provide inspiration for OA librarians as we think about the scope and nature of our work. What could open access librarians learn from the ethics of care? How might our practice change or evolve with the ethics of care as an underpinning philosophy? Who do we include in our circle of care while we undertake our work? The ethics of care provides a more expansive way to think about OA librarianship.


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