Empowering Consumers to Engage with Health Decisions: Making Medical Choices Feel Easy Increases Patient Participation

2021 ◽  
Author(s):  
Mary Steffel ◽  
Elanor F. Williams ◽  
Stephan Carney
Keyword(s):  
Patient Participation ◽  
Health Decisions

The Impact of Patient Participation in Health Decisions Within Medical Encounters

2015 ◽  
Vol 36 (4) ◽  
pp. 427-452 ◽  
Author(s):  
Marla L. Clayman ◽  
Carma L. Bylund ◽  
Betty Chewning ◽  
Gregory Makoul
Keyword(s):  
Patient Participation ◽  
Health Decisions ◽  
The Impact

Modeling Health Decisions: Treatment Choices via The Proportional Difference Strategy

2008 ◽  
Author(s):  
Jason L. Harman ◽  
Claudia Gonzalez-Vallejo ◽  
Etienne Mullet ◽  
Maria T. Munoz Sastre
Keyword(s):  
Health Decisions ◽  
Treatment Choices

Patient Participation in Rehabilitation Questionnaire

2013 ◽  
Author(s):  
Jeanette Lindberg ◽  
M. Kreuter ◽  
L.-O. Person ◽  
C. Taft
Keyword(s):  
Patient Participation

Regional Variation in Patient Participation and Treatment among Acoustic Neuroma Association Survey Respondents Across the United States

2020 ◽  
Author(s):  
John P. Marinelli ◽  
Samuel A. Spear ◽  
Debbie L. Hahs-Vaughn ◽  
Robert J. Macielak ◽  
Michael J. Link ◽  
...  
Keyword(s):  
United States ◽  
Acoustic Neuroma ◽  
Patient Participation ◽  
Regional Variation ◽  
The United States

scholarly journals Improving smoking cessation in first episode psychosis: a quality improvement project by the City & Hackney Early and Quick Intervention Psychosis (EQUIP)

2020 ◽  
Vol 9 (4) ◽  
pp. e001002
Author(s):  
Orestis Kanter Bax ◽  
Nadim Hakim ◽  
Michael Jeggo ◽  
Declan Phelan ◽  
Timothy Stevens ◽  
...  
Keyword(s):  
Smoking Cessation ◽  
Quality Improvement ◽  
Patient Participation ◽  
Smoking Status ◽  
First Episode Psychosis ◽  
Public Health Issue ◽  
First Episode ◽  
Improvement Project ◽  
Episode Psychosis ◽  
The City

Smoking tobacco is a major public health issue and a significant cause of increased mortality. People with a first episode of psychosis are more likely to smoke and the subgroup that goes on to have schizophrenia will have a significantly reduced life expectancy to the general population. The City & Hackney Early and Quick Intervention in Psychosis Team is a community mental health team at East London NHS Foundation Trust, providing outpatient care for adults presenting with first episode psychosis. This project aimed to increase the number of smoking cessation referrals from EQUIP to national smoking cessation services to 15% of the total team caseload over 6 months initially. A secondary measure was to complete an assessment of the smoking status for 90% of the caseload at all times. Change ideas were tested using plan-do-study-act cycles. A smoking cessation referral pathway was created and disseminated to the outpatient and inpatient services. The project was discussed at least monthly at the clinical team meeting. An education and skills building session was organised and took place at the team away day and an education drop-in session for patients was organised. The project was slow to take-off and patient participation was essential in driving progress. The aim was achieved at 23 months. A collateral benefit indicated that 25.7% of the total number of smokers had been recorded as having stopped smoking during the course of this project. This project demonstrates the effectiveness of quality improvement methodology facilitated by efficient leadership, collaborative teamwork, patient participation and persistence to address a complex problem that has significant consequences to patient health.

scholarly journals The Voices of Persons Living With Dementia: Exploring Their Information Needs to Live Well

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 60-60
Author(s):  
Michelle Kimzey ◽  
Ramona Baucham ◽  
Chelsea Martin ◽  
Carol Howe
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Information Needs ◽  
Hybrid Approach ◽  
Convenience Sample ◽  
Health Decisions ◽  
People With Dementia ◽  
Care Partners ◽  
Diagnosis Of Dementia ◽  
Services And Supports

Abstract There are unique challenges and considerations when receiving the diagnosis of dementia. There are interventions, services, and supports for people with dementia and their care partners, yet they are often unknown, disconnected, and may not be widely available or easily accessible. Health literacy was defined as the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions. Using a descriptive qualitative design, the purpose of this study was to describe how persons living with dementia and their care partners obtain, understand, and use information to make health decisions to live well with dementia. The convenience sample consisted of 28 care partners and 15 people living with dementia participating in 6 separate focus groups. To illuminate findings, data was analyzed using a hybrid approach (deductive followed by inductive). Four themes emerged deductively as persons gain health literacy in dementia (access, understand, appraise, and understand). The notable finding is the trend at diagnosis where they first are “seeking the expert” ,and as they move from dependence and gain understanding they are “becoming the expert”, and finally as they apply information they are “acting as the expert” for themselves and others. Engaging them in research not only gave them a voice but more importantly it influenced the health information that will be developed and implemented by them. These findings suggest there is a wealth of knowledge to be gained by persons living with dementia and their care partners.

Enhancing active patient participation in nursing handover: A mixed methods study

2021 ◽  
Author(s):  
Maryann Street ◽  
Jenny Dempster ◽  
Debra Berry ◽  
Erika Gray ◽  
Joanne Mapes ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Patient Participation ◽  
Mixed Methods Study ◽  
Active Patient

scholarly journals A descriptive analysis of end-of-life discussions for high-grade glioma patients

2021 ◽  
Author(s):  
Ai Chikada ◽  
Sayaka Takenouchi ◽  
Yoshiki Arakawa ◽  
Kazuko Nin
Keyword(s):  
End Of Life ◽  
Health Care Providers ◽  
Patient Participation ◽  
High Grade Glioma ◽  
Team Approach ◽  
High Grade ◽  
Care Providers ◽  
Patient Goals ◽  
Significant Difference ◽  
Eol Care

Abstract Background End-of-life discussions (EOLDs) in patients with high-grade glioma (HGG) have not been well described. Therefore, this study examined the appropriateness of timing and the extent of patient involvement in EOLDs and their impact on HGG patients. Methods A cross-sectional survey was conducted among 105 bereaved families of HGG patients at a university hospital in Japan between July and August 2019. Fisher’s exact test and the Wilcoxon rank-sum test were used to assess the association between patient participation in EOLDs and their outcomes. Results In total, 77 questionnaires were returned (response rate 73%), of which 20 respondents replied with refusal documents. Overall, 31/57 (54%) participated in EOLDs at least once in acute hospital settings, and a significant difference was observed between participating and nonparticipating groups in communicating the patient’s wishes for EOL care to the family (48% vs 8%, P = .001). Moreover, >80% of respondents indicated that the initiation of EOLDs during the early diagnosis period with patients and families was appropriate. Most EOLDs were provided by neurosurgeons (96%), and other health care providers rarely participated. Additionally, patient goals and priorities were discussed in only 28% of the EOLDs. Patient participation in EOLDs was not associated with the quality of EOL care and a good death. Conclusions Although participation in EOLDs is relatively challenging for HGG patients, this study showed that participation in EOLDs may enable patients to express their wishes regarding EOL care. It is important to initiate EOLDs early on through an interdisciplinary team approach while respecting patient goals and priorities.

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