The ELSI HypothesisGene Mapping: Using Law and Ethics as Guides. George J. Annas , Sherman EliasThe Code of Codes: Scientific and Social Issues in the Human Genome Project. Daniel J. Kevles , Leroy HoodLe genome humain: Une responsabilite scientifique et sociale. Marcel J. Melancon , Raymond D. LambertBibliography: Ethical, Legal, and Social Implications of the Human Genome Project. Michael S. Yesley

Isis ◽  
1994 ◽  
Vol 85 (2) ◽  
pp. 293-296 ◽  
Author(s):  
M. Susan Lindee
1999 ◽  
Vol 8 (3) ◽  
pp. 161-168 ◽  
Author(s):  
Glen A. Evans

The Human Genome Project is a massive government and privately funded undertaking to sequence the entire human genome and discover all 80,000 human genes in less than 15 years. As the project nears completion in the first decade of the 21st century, the ramifications of public availability of this vast amount of biological information are likely to pervade society. The legal, ethical and social issues raised by the genome project and associated biological research are expected to have a profound and long lasting impact on daily life. How society deals with the many emerging issues involving genetic privacy, designer babies, and the transformation of medical care among others will be a major focus of public and governmental discussion in the next decade.


1993 ◽  
Vol 12 (2) ◽  
pp. 273-275 ◽  
Author(s):  
Elinor J. Langfelder ◽  
Eric T. Juengst

The program on the Ethical, Legal, and Social Implications (ELSI) of human genome research is a branch of the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH). The NCHGR is responsible, in conjunction with the Office of Health and Environment at the Department of Energy (DOE), for administration and coordination of the U.S. component of the Human Genome Project.


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