The Impact of Autism Spectrum Disorders on the Family: A Qualitative Study of Mothers’ Perspectives

2012 ◽  
Vol 15 (3) ◽  
pp. 187-201 ◽  
Author(s):  
Christopher E. Nealy ◽  
Lindsey O'Hare ◽  
Joelle D. Powers ◽  
Danielle C. Swick
Keyword(s):  
Autism Spectrum Disorders ◽  
Qualitative Study ◽  
Autism Spectrum ◽  
The Family ◽  
Spectrum Disorders ◽  
The Impact

scholarly journals The Impact of Family Autism Camp on Families and Individuals with ASD

2016 ◽  
Author(s):  
Luchara Wallace
Keyword(s):  
Autism Spectrum Disorders ◽  
Emotional Support ◽  
Autism Spectrum ◽  
Information Gathering ◽  
Daily Lives ◽  
The Family ◽  
Spectrum Disorders ◽  
The Impact

Families of children with disabilities, such as Autism Spectrum Disorders (ASD), often search for opportunities to acquire information about and receive emotional support from others who may have or had similar experiences. An evaluation of the Dakota Black Goose Family Autism Camp sought to determine the impact of the family camp experience. Pre- and Post-Camp surveys were administered upon families’ arrival at Camp and prior to their departure (n=17) to evaluate the overall quality of the program as well as the level of informational and emotional support anticipated and received. Follow-up interviews were completed six months post Camp to determine how and if families incorporated the information provided at Camp into their daily lives. Overall, participants in Dakota Black Goose Family Autism Camp found a great deal of benefit from participation, especially as it related to information gathering, networking and emotional support, and opportunities for family members with ASD to be able to engage with others in a safe and accepting environment.

scholarly journals Sleep in youth with autism spectrum disorders: systematic review and meta-analysis of subjective and objective studies

2018 ◽  
Vol 21 (4) ◽  
pp. 146-154 ◽  
Author(s):  
Amparo Díaz-Román ◽  
Junhua Zhang ◽  
Richard Delorme ◽  
Anita Beggiato ◽  
Samuele Cortese
Keyword(s):  
Systematic Review ◽  
Autism Spectrum Disorders ◽  
Evidence Synthesis ◽  
Meta Analysis ◽  
Autism Spectrum ◽  
Newcastle Ottawa Scale ◽  
Spectrum Disorders ◽  
Sleep Alterations ◽  
The Impact ◽  
Ottawa Scale

BackgroundSleep problems are common and impairing in individuals with autism spectrum disorders (ASD). Evidence synthesis including both subjective (ie, measured with questionnaires) and objective (ie, quantified with neurophysiological tools) sleep alterations in youth with ASD is currently lacking.ObjectiveWe conducted a systematic review and meta-analysis of subjective and objective studies sleep studies in youth with ASD.MethodsWe searched the following electronic databases with no language, date or type of document restriction up to 23 May 2018: PubMed, PsycInfo, Embase+Embase Classic, Ovid Medline and Web of Knowledge. Random-effects models were used. Heterogeneity was assessed with Cochran’s Q and I2 statistics. Publication (small studies) bias was assessed with final plots and the Egger’s test. Study quality was evaluated with the Newcastle Ottawa Scale. Analyses were conducted using Review Manager and Comprehensive Meta-Analysis.FindingsFrom a pool of 3359 non-duplicate potentially relevant references, 47 datasets were included in the meta-analyses. Subjective and objective sleep outcome measures were extracted from 37 and 15 studies, respectively. Only five studies were based on comorbidity free, medication-naïve participants. Compared with typically developing controls, youth with ASD significantly differed in 10/14 subjective parameters and in 7/14 objective sleep parameters. The average quality score in the Newcastle-Ottawa Scale was 5.9/9.Discussion and clinical implicationsA number of subjective and, to a less extent, objective sleep alterations might characterise youth with ASD, but future studies should assess the impact of pharmacological treatment and psychiatric comorbidities.

scholarly journals Society and people diagnosed with autism spectrum disorder: an analysis of message descriptors of social media

2019 ◽  
Vol 24 (4) ◽  
pp. 744-755
Author(s):  
Olga A. Vazhenina ◽  
Lidiya K. Lobodenko
Keyword(s):  
Social Media ◽  
Autism Spectrum Disorders ◽  
Digital Media ◽  
Autism Spectrum ◽  
Media Space ◽  
English Speaking ◽  
Spectrum Disorders ◽  
The Impact ◽  
The Relationship ◽  
Social Media Tool

The authors investigate the process of humanization of society in relation to people with autism spectrum disorders and its relationship with the reception of problems of this category of population by society. The authors based on the descriptors of messages in social media published in the digital media space. The article reveals the relationship between the content of messages in social media, as well as the tools of this type of media and the overall degree of humanization of society at both social and political levels. The typological features of such a social media tool as a hashtag, when covering the problems of people with autism spectrum disorders, as well as the impact of these features on the reception of messages on this topic by both domestic and English-speaking users are noted.

scholarly journals Current state of evidence of cannabis utilization for treatment of autism spectrum disorders

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Rumi Agarwal ◽  
Shanna L. Burke ◽  
Marlaina Maddux
Keyword(s):  
Autism Spectrum Disorders ◽  
Large Scale ◽  
Autism Spectrum ◽  
Adverse Outcomes ◽  
Cannabis Use ◽  
Care Providers ◽  
Risks And Benefits ◽  
Current State ◽  
Spectrum Disorders ◽  
The Impact

Abstract The core symptoms and co-morbidities associated with autism spectrum disorders (ASD) affect daily living and quality of life. Existing pharmacological interventions are only able to attenuate some related symptoms but are unable to address the underlying etiologies associated with ASD. Anecdotal evidence, which claims benefit from the use of cannabis to treat symptoms among this population, has been gaining popularity as families seek solutions. This paper analyzed recent peer-reviewed literature to identify the current state of evidence regarding cannabis use for the ASD population. Systematic reviews, reports, and experimental studies were assessed to understand the current extent and nature of the evidence on the risks and benefits of cannabis use for ASD. At this time, three large-scale clinical trials are currently at varying stages of progress and publication of results. Only five small studies were identified that have specifically examined cannabis use in ASD. Given the sparse state of evidence directly assessed in this population, studies which examined effects of cannabis on shared pathological symptoms of ASD such as hyperactivity, sleep disorders, self-injury, anxiety, behavioral problems, and communication were also reviewed. Studies revealed mixed and inconclusive findings of cannabis effects for all conditions, except epilepsy. Adverse outcomes were also reported, which included severe psychosis, increased agitation, somnolence, decreased appetite, and irritability. In addition, a wide range of cannabis compositions and dosage were identified within the studies, which impact generalizability. There is currently insufficient evidence for cannabis use in ASD, which creates an urgent need for additional large-scale controlled studies to increase understanding of risks and benefits and also to examine the impact of “entourage effects.” This will support discussions of treatment options between health care providers and ASD patients and their families. Evidence may lead to a desired new line of treatment or prevent adverse outcomes from unsubstantiated use amongst families aiming for symptom reduction.

scholarly journals The impact of robotic intervention on joint attention in children with autism spectrum disorders

2018 ◽  
Vol 9 (1) ◽  
Author(s):  
Hirokazu Kumazaki ◽  
Yuichiro Yoshikawa ◽  
Yuko Yoshimura ◽  
Takashi Ikeda ◽  
Chiaki Hasegawa ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Joint Attention ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorders ◽  
The Impact

scholarly journals 0748 Parent Satisfaction with Sleep Education Delivered by Community Therapists for Children with Autism Spectrum Disorders: A Qualitative Study

SLEEP ◽  
2019 ◽  
Vol 42 (Supplement_1) ◽  
pp. A300-A300
Author(s):  
Laura E Gray ◽  
Lydia L MacDonald ◽  
David G Schlundt ◽  
Kemberlee R Bonnett ◽  
Beth A Malow
Keyword(s):  
Autism Spectrum Disorders ◽  
Qualitative Study ◽  
Children With Autism ◽  
Parent Satisfaction ◽  
Autism Spectrum ◽  
Sleep Education ◽  
Spectrum Disorders
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