Family needs after traumatic brain injury: a factor analytic study of the Family Needs Questionnaire

Brain Injury ◽  
1997 ◽  
Vol 11 (1) ◽  
pp. 1-10 ◽  
Author(s):  
C. D. SERIO ◽  
J. S. KREUTZER ◽  
A. D. WITOL
Brain Injury ◽  
2020 ◽  
Vol 34 (10) ◽  
pp. 1375-1383
Author(s):  
Cecilie Røe ◽  
Audny Anke ◽  
Juan Carlos Arango-Lasprilla ◽  
Nada Andelic ◽  
Alfonso Caracuel ◽  
...  

2012 ◽  
Vol 3 (2) ◽  
pp. 88-92
Author(s):  
Edilene Curvelo Hora ◽  
Regina Márcia Cardoso De Sousa

Trata-se de um estudo quantitativo sobre as necessidades das famílias de vítimas de Trauma Cranioencefálico (TCE), realizado a partir de seis meses após o evento traumático. A casuística do estudo constituiu-se de 161 familiares e 71 pacientes de TCE. Foi desenvolvido nos domicílios das vítimas atendidas em hospital de referência para trauma e centro de especialidade médica referência para o atendimento ambulatorial de neurocirurgia, ambos situados em Aracaju, Sergipe, Brasil. Na visão dos familiares, a quase totalidade das necessidades do Family Needs Questionnaire foi “importante” ou “muito importante” (índice médio proporcional de 93,1%), e a necessidade mais valorizada foi “ter as minhas perguntas respondidas com honestidade”. A maioria das necessidades não era atendida, e a necessidade menos atendida foi “ter recursos para mim ou para minha família, ex. aconselhamento financeiro ou legal, folga do cuidado, aconselhamento, serviço de enfermagem”.Descritores: Traumatismos Encefálicos, Família, Enfermagem Familiar, Determinação de Necessidades de Cuidados de Saúde.Family needs after a Traumatic Brain Injury: data of the Brazilian realityThis work presents a quantitative study about the needs of the patients’ families with Traumatic Brain Injury (TBI), accomplished six months after the traumatic event. The casuistic of the study was constituted by 161 family members and 71 patients with TBI. The study was developed in the victims’ homes assisted in a regarded Hospital to trauma assistance and a regarded medical specialized center to neurologic and ambulatory assistance both located in Aracaju-Sergipe (Brazil). In the relatives' vision, nearly all the needs of the Family Needs Questionnaire were considered "important" or "very important" (proportional mean index of need, 93.1%). The most important need considered was "to have my questions answered honestly". Most of the needs were not met. The least met need was "to have enough resources for myself or the family, ig. financial or legal counseling, respite care, counseling and nursing services".Descriptors: Brain Injuries, Family, Family Nursing, Needs Assessment.Las Necesidades de las famílias despues de um Trauma Craneoencefálico: dados de la realidad BrasileñaSe trata de um estúdio cuantitativo sobre las necesidades de la familias victimas de un trauma Craneoencefálico (TCE), realizado pasados seis meses del trauma. La casuística del estúdio fue realizada tomando como base 161 familiares y 71 pacientes de TCE. La casuística se llevo en los domicilios de las victimas atendidas en el hospital referencia para traumas y en el centro de especialidad médica para el atendimiento clínico de neurocirugia, los dos localizados en Aracaju- Sergipe, Brasil. En la visión de los familiares, casi la totalidad de las necesidades del Family Needs Questionnaire fueron importantes o muy importantes (indice medio proporcional de 93,1%), la necesidad mais valorizada fue “tener mis preguntas respondidas honestamente”. La mayoria de las necesidades no era atendida, la necesidad menos atendida fue “tener recursos para mi o para mi familia como por ejemplo aconsejamiento financiero o legal, cuidado, aconsejamiento, servicio de enfermeria”.Descriptores: Traumatismos Encefálicos, Familia, Enfermería de la Familia, Evaluación de Necesidades.


2006 ◽  
Vol 12 (2) ◽  
pp. 73-87 ◽  
Author(s):  
Malachy Bishop ◽  
Charles Edmund Degeneffe ◽  
Melinda Mast

AbstractFamily involvement in the rehabilitation counselling process is increasingly being recognised as an important component of rehabilitation success. This may be particularly true for persons who have an acquired or traumatic brain injury (TBI). For such individuals the emotional and psychosocial functioning of their family and caregivers has been associated with a variety of functional, psychosocial, and employment outcomes. Addressing the needs of family members is an important component of providing effective rehabilitation counselling services, but one that has received little attention in the rehabilitation counselling literature. This article reviews current research on the frequently identified needs of families and caregivers of persons with TBI, the family and situational variables that have been explored for their relationship to family needs, and the extent to which these needs are met. Clinical and research implications for rehabilitation counsellors are identified.


2020 ◽  
Vol 34 (6) ◽  
pp. 495-504
Author(s):  
Azlinda Azman ◽  
Nor Amalina Jali ◽  
Paramjit Singh Jamir Singh ◽  
Jafri Malin Abdullah ◽  
Haidi Ibrahim

PurposeAdvanced medical technology has reduced the mortality rate among traumatic brain injury (TBI) patients. This, however, has led to an increasing number of surviving patients with a major disability. As a consequence, these patients need attentive care which becomes an important issue for the society, particularly family members. Thus, this paper aims to review some of the salient roles, challenges and needs of the family caregivers in caring or nursing for their family members diagnosed with TBI.Design/methodology/approachAn inclusive search of the literature was undertaken to identify the family roles, challenges and needs in supporting and nursing TBI patients.FindingsPrevious studies have shown that the family needs to address two important aspects of taking care of TBI patients, which involve emotional and physical affairs. Hence, it is essential for the family members to have adequate information on healing treatment, nursing and care methods, financial support, support groups, managing self-care and, more importantly, emotional and social support.Originality/valueThis paper is not currently under consideration, in press or published elsewhere. In Malaysian culture, nursing disabled patients have always been a family responsibility. The role of nursing the patients has been done domestically and is considered a private affair. In order to execute the role, some put the patient needs as their priority and leave aside their needs and matters.


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