End of life in pediatric oncology: How clinical practice leads to research

2002 ◽  
Vol 19 (6) ◽  
pp. 191-197 ◽  
Author(s):  
M Pritchard
Keyword(s):  
Clinical Practice ◽  
End Of Life ◽  
Pediatric Oncology

End-of-life antimicrobial usage in lung cancer: current perpectives and clinical practice

2021 ◽  
Author(s):  
Ana Cláudia Santos Camelo Pimenta ◽  
Inês Rodrigues ◽  
Luísa Nascimento ◽  
Sara Raimundo ◽  
Teresa Gomes ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Clinical Practice ◽  
End Of Life ◽  
Antimicrobial Usage

scholarly journals Development of a Dementia-Focused End-of-Life Planning Tool: The LEAD Guide (Life-Planning in Early Alzheimer’s and Dementia)

2019 ◽  
Vol 3 (3) ◽  
Author(s):  
Kara Dassel ◽  
Rebecca Utz ◽  
Katherine Supiano ◽  
Sara Bybee ◽  
Eli Iacob
Keyword(s):  
Older Adults ◽  
Clinical Practice ◽  
Focus Groups ◽  
End Of Life ◽  
Family Caregivers ◽  
Early Stage ◽  
Healthy Adults ◽  
Planning Tool ◽  
Healthy Older Adults ◽  
Life Planning

Abstract Background and Objectives To address the unique characteristics of Alzheimer’s disease and related dementias (ADRD) that complicate end-of-life (EOL), we created, refined, and validated a dementia-focused EOL planning instrument for use by healthy adults, those with early-stage dementia, family caregivers, and clinicians to document EOL care preferences and values within the current or future context of cognitive impairment. Research Design and Methods A mixed-method design with four phases guided the development and refinement of the instrument: (1) focus groups with early-stage ADRD and family caregivers developed and confirmed the tool content and comprehensiveness; (2) evaluation by content experts verified its utility in clinical practice; (3) a sample of healthy older adults (n = 153) and adults with early-stage ADRD (n = 38) completed the tool, whose quantitative data were used to describe the psychometrics of the instrument; and (4) focus groups with healthy older adults, family caregivers, and adults with early-stage ADRD informed how the guide should be used by families and in clinical practice. Results Qualitative data supported the utility and feasibility of a dementia-focused EOL planning tool; the six scales have high internal consistency (α = 0.66–0.89) and high test–rest reliability (r = .60–.90). On average, both participant groups reported relatively high concern for being a burden to their families, a greater preference for quality over length of life, a desire for collaborative decision-making process, limited interest in pursuing life-prolonging measures, and were mixed in their preference to control the timing of their death. Across disease progression, preferences for location of care changed, whereas preferences for prolonging life remained stable. Discussion and Implications The LEAD Guide (Life-Planning in Early Alzheimer’s and Dementia) has the potential to facilitate discussion and documentation of EOL values and care preferences prior to loss of decisional capacity, and has utility for healthy adults, patients, families, providers, and researchers.

scholarly journals Race Does Not Influence Do-Not-Resuscitate Status or the Number or Timing of End-of-Life Care Discussions at a Pediatric Oncology Referral Center

2009 ◽  
Vol 12 (1) ◽  
pp. 71-76 ◽  
Author(s):  
Justin N. Baker ◽  
Shesh Rai ◽  
Wei Liu ◽  
Kumar Srivastava ◽  
Javier R. Kane ◽  
...  
Keyword(s):  
End Of Life ◽  
Pediatric Oncology ◽  
End Of Life Care ◽  
Life Care ◽  
Do Not Resuscitate ◽  
Referral Center
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