scholarly journals Development of a comprehensive survey of sexuality issues including a self-report version of the International Spinal Cord Injury sexual function basic data sets

Spinal Cord ◽  
2015 ◽  
Vol 54 (8) ◽  
pp. 584-591 ◽  
Author(s):  
P W New ◽  
K E Currie
2017 ◽  
Vol 3 (1) ◽  
Author(s):  
Marcalee S Alexander ◽  
Peter W New ◽  
Fin Biering-Sørensen ◽  
Frederique Courtois ◽  
Giulio Del Popolo ◽  
...  

2020 ◽  
Vol 6 (1) ◽  
Author(s):  
Marcalee S. Alexander ◽  
Peter W. New ◽  
Fin Biering-Sørensen ◽  
Frederique Courtois ◽  
Giulio Del Popolo ◽  
...  

Spinal Cord ◽  
2017 ◽  
Vol 55 (9) ◽  
pp. 875-881 ◽  
Author(s):  
A Carroll ◽  
L C Vogel ◽  
K Zebracki ◽  
V K Noonan ◽  
F Biering-Sørensen ◽  
...  

Spinal Cord ◽  
2011 ◽  
Vol 49 (7) ◽  
pp. 795-798 ◽  
Author(s):  
M S Alexander ◽  
F Biering-Sørensen ◽  
S Elliott ◽  
M Kreuter ◽  
J Sønksen

2021 ◽  
pp. 003435522199073
Author(s):  
Chungyi Chiu ◽  
Jessica Brooks ◽  
Alicia Jones ◽  
Kortney Wilcher ◽  
Sa Shen ◽  
...  

Resilience is central to living well with a spinal cord injury (SCI). To provide a timely, targeted, and individualized intervention supporting resilience, it is necessary to assess an individual’s resilience level and characteristics of resilience on an ongoing basis. We aimed to validate the different types of resilient coping among people with SCI (PwSCI), using the Connor–Davidson resilience scale, and to identify the relationships between resilience and other psychosocial factors among the types of resilient coping. We recruited 93 PwSCI, who took the self-report measures of resilience, depression, life satisfaction, and spirituality. Using latent class analysis, we found three types: (a) goal-pursuing, bouncing-back, and persevering, named GP; (b) uncertainty about coping with setbacks, named UC; and (c) loss of resilient coping, named LOSS. The multivariate tests indicated that the three types differed on a linear combination of resilience, depression, and life satisfaction, with a large effect size. We discussed the three types of resilient coping and the implications for psychosocial interventions. We also recommended that rehabilitation clinicians examine PwSCI’s resilience levels and types of resilience during initial and follow-up visits. In doing so, PwSCI will have timely, targeted supports for developing and/or re-building their resilience.


Spinal Cord ◽  
2016 ◽  
Vol 54 (10) ◽  
pp. 884-888 ◽  
Author(s):  
C Lucantoni ◽  
R G Krishnan ◽  
M Gehrchen ◽  
D W Hallager ◽  
F Biering-Sørensen ◽  
...  

PM&R ◽  
2015 ◽  
Vol 7 ◽  
pp. S101-S101
Author(s):  
Debbie Tan ◽  
Jeanne M. Hoffman ◽  
Darren C. Lee ◽  
Charles Bombardier

2020 ◽  
Vol 26 (4) ◽  
pp. 232-242
Author(s):  
Vanessa K. Noonan ◽  
Susan B. Jaglal ◽  
Suzanne Humphreys ◽  
Shawna Cronin ◽  
Zeina Waheed ◽  
...  

Background: To optimize traumatic spinal cord injury (tSCI) care, administrative and clinical linked data are required to describe the patient’s journey. Objectives: To describe the methods and progress to deterministically link SCI data from multiple databases across the SCI continuum in British Columbia (BC) and Ontario (ON) to answer epidemiological and health service research questions. Methods: Patients with tSCI will be identified from the administrative Hospital Discharge Abstract Database using International Classification of Diseases (ICD) codes from Population Data BC and ICES data repositories in BC and ON, respectively. Admissions for tSCI will range between 1995–2017 for BC and 2009-2017 for ON. Linkage will occur with multiple administrative data holdings from Population Data BC and ICES to create the “Admin SCI Cohorts.” Clinical data from the Rick Hansen SCI Registry (and VerteBase in BC) will be transferred to Population Data BC and ICES. Linkage of the clinical data with the incident cases and administrative data at Population Data BC and ICES will create subsets of patients referred to as the “Clinical SCI Cohorts” for BC and ON. Deidentified patient-level linked data sets will be uploaded to a secure research environment for analysis. Data validation will include several steps, and data analysis plans will be created for each research question. Discussion: The creation of provincially linked tSCI data sets is unique; both clinical and administrative data are included to inform the optimization of care across the SCI continuum. Methods and lessons learned will inform future data-linking projects and care initiatives.


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