scholarly journals Recommendations for translation and reliability testing of international spinal cord injury data sets

Spinal Cord ◽  
2010 ◽  
Vol 49 (3) ◽  
pp. 357-360 ◽  
Author(s):  
F Biering-Sørensen ◽  
M S Alexander ◽  
S Burns ◽  
S Charlifue ◽  
M DeVivo ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Data Sets ◽  
Reliability Testing ◽  
Injury Data ◽  
Cord Injury

The international spinal cord injury data sets

Spinal Cord ◽  
2017 ◽  
Vol 55 (8) ◽  
pp. 713-713
Author(s):  
L A Harvey
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Data Sets ◽  
Injury Data ◽  
Cord Injury

scholarly journals International Spinal Cord Injury Data Sets

Spinal Cord ◽  
2006 ◽  
Vol 44 (9) ◽  
pp. 530-534 ◽  
Author(s):  
F Biering-Sørensen ◽  
S Charlifue ◽  
M DeVivo ◽  
V Noonan ◽  
M Post ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Data Sets ◽  
Injury Data ◽  
Cord Injury

scholarly journals Linking Spinal Cord Injury Data Sets to Describe the Patient Journey Following Injury: A Protocol

2020 ◽  
Vol 26 (4) ◽  
pp. 232-242
Author(s):  
Vanessa K. Noonan ◽  
Susan B. Jaglal ◽  
Suzanne Humphreys ◽  
Shawna Cronin ◽  
Zeina Waheed ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Administrative Data ◽  
Clinical Data ◽  
Linked Data ◽  
Population Data ◽  
Data Sets ◽  
Patient Journey ◽  
Cord Injury ◽  
Incident Cases

Background: To optimize traumatic spinal cord injury (tSCI) care, administrative and clinical linked data are required to describe the patient’s journey. Objectives: To describe the methods and progress to deterministically link SCI data from multiple databases across the SCI continuum in British Columbia (BC) and Ontario (ON) to answer epidemiological and health service research questions. Methods: Patients with tSCI will be identified from the administrative Hospital Discharge Abstract Database using International Classification of Diseases (ICD) codes from Population Data BC and ICES data repositories in BC and ON, respectively. Admissions for tSCI will range between 1995–2017 for BC and 2009-2017 for ON. Linkage will occur with multiple administrative data holdings from Population Data BC and ICES to create the “Admin SCI Cohorts.” Clinical data from the Rick Hansen SCI Registry (and VerteBase in BC) will be transferred to Population Data BC and ICES. Linkage of the clinical data with the incident cases and administrative data at Population Data BC and ICES will create subsets of patients referred to as the “Clinical SCI Cohorts” for BC and ON. Deidentified patient-level linked data sets will be uploaded to a secure research environment for analysis. Data validation will include several steps, and data analysis plans will be created for each research question. Discussion: The creation of provincially linked tSCI data sets is unique; both clinical and administrative data are included to inform the optimization of care across the SCI continuum. Methods and lessons learned will inform future data-linking projects and care initiatives.

Relevance of the international spinal cord injury basic data sets to youth: an Inter-Professional review with recommendations

Spinal Cord ◽  
2017 ◽  
Vol 55 (9) ◽  
pp. 875-881 ◽  
Author(s):  
A Carroll ◽  
L C Vogel ◽  
K Zebracki ◽  
V K Noonan ◽  
F Biering-Sørensen ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Basic Data ◽  
Data Sets ◽  
Cord Injury ◽  
Professional Review

scholarly journals International bowel function basic spinal cord injury data set

Spinal Cord ◽  
2008 ◽  
Vol 47 (3) ◽  
pp. 230-234 ◽  
Author(s):  
K Krogh ◽  
I Perkash ◽  
S A Stiens ◽  
F Biering-Sørensen
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Bowel Function ◽  
Data Set ◽  
Injury Data ◽  
Cord Injury

scholarly journals International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

2017 ◽  
Vol 3 (1) ◽  
Author(s):  
Marcalee S Alexander ◽  
Peter W New ◽  
Fin Biering-Sørensen ◽  
Frederique Courtois ◽  
Giulio Del Popolo ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Sexual Function ◽  
Reproductive Function ◽  
Basic Data ◽  
Data Sets ◽  
Cord Injury ◽  
Male Sexual Function ◽  
Version 2.0
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