scholarly journals Beyond patient-centered care: person-centered care for Parkinson’s disease

2016 ◽  
Vol 2 (1) ◽  
Author(s):  
Stephen A Buetow ◽  
Pablo Martínez-Martín ◽  
Mark A Hirsch ◽  
Michael S Okun
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Person Centered Care ◽  
Centered Care

Delivering patient-centered care in Parkinson's disease: Challenges and consensus from an international panel

2020 ◽  
Vol 72 ◽  
pp. 82-87 ◽  
Author(s):  
Roongroj Bhidayasiri ◽  
Pattamon Panyakaew ◽  
Claudia Trenkwalder ◽  
Beomseok Jeon ◽  
Nobutaka Hattori ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Patient Centered Care ◽  
Patient Centered ◽  
International Panel ◽  
Centered Care

Moving from physician-centered care towards patient-centered care for Parkinson's disease patients

2013 ◽  
Vol 19 (11) ◽  
pp. 923-927 ◽  
Author(s):  
Martijn van der Eijk ◽  
Frouke A.P. Nijhuis ◽  
Marjan J. Faber ◽  
Bastiaan R. Bloem
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Centered Care

scholarly journals Incorporating the Principles of Self-Management into Treatment of Dysarthria Associated with Parkinson's Disease

2017 ◽  
Vol 38 (03) ◽  
pp. 210-219 ◽  
Author(s):  
Carolyn Baylor ◽  
Deanna Britton ◽  
Kathryn Yorkston
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Current Treatment ◽  
Patient Perspectives ◽  
Self Management ◽  
Patient Centered ◽  
Treatment Expectations ◽  
Before And After ◽  
Centered Care ◽  
Speech Loudness

AbstractAlthough understanding patient perspectives on treatment is a major component of patient-centered care, little is known about patient perspectives related to dysarthria treatment in Parkinson's disease (PD). This article attempts to explore the perspective of patients with dysarthria associated with PD by interviewing them before and after treatment. Treatment expectations and experiences are summarized along with a discussion of how patients are using the tools they learned once treatment was completed. Comments about treatment were generally positive and suggested increased awareness and improved speech loudness. However, areas for improvement were also identified including: (1) treatment was not addressing some communication problems that were of concern to patients; (2) therapy programs were not enjoyable; and (3) it was difficult to maintain gains after therapy ended. Principles of self-management are reviewed to address some of the shortcomings of current treatment approaches.

scholarly journals Person-Patient-Family-Community Centered Care Semakin Penting

2020 ◽  
Vol 2 (02) ◽  
pp. 30-31
Author(s):  
Adi Utarini
Keyword(s):  
Patient Centered Care ◽  
Care Patient ◽  
Family Centered Care ◽  
Patient Centered ◽  
Person Centered Care ◽  
Centered Care ◽  
Family Centered

Situasi pandemi memberikan ancaman serius dalam pemberian pelayanan individual, terutama bagi pasien dengan infeksi virus Corona yang dirawat inap di rumah sakit. Aspek medis (diagnosis dan pengobatan) yang merupakan subtansi utama pelayanan masih menimbulkan tantangan dalam penatalaksanaan pasien dengan infeksi virus Corona. Namun pada situasi yang kompleks ini, pemberian pelayanan kesehatan yang berorientasi pada kebutuhan individual setiap manusia-pasien justru menjadi semakin penting. Setiap orang (termasuk pasien) membutuhkan dukungan yang lebih besar dan berarti dari keluarga dan masyarakat, serta tenaga kesehatan. Beberapa istilah sering digunakan dan memiliki makna, prinsip dan aktivitas yang berbeda, namun tumpang tindih atau merupakan suatu kontinum: person-centered care, patient-centered care dan family-centered care.

scholarly journals The Perspectives of Patients with Parkinson's Disease: A Systematic Review and Thematic Synthesis

2021 ◽  
Author(s):  
Birgitte Nørgaard ◽  
Signe Beck Titlestad ◽  
Charlotte Abrahamsen ◽  
Michael Marcussen
Keyword(s):  
Systematic Review ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Grey Literature ◽  
Healthcare Delivery ◽  
Bibliographic Databases ◽  
Future Research ◽  
Patient Centered ◽  
Thematic Synthesis ◽  
Centered Care

Abstract Background: Parkinson’s disease has considerable impact on the quality of life of both patients and their caregivers. Patients’ perspectives are a source of vital knowledge that informs health professionals’ ability to provide individualised and patient-centered care. The aim of this systematic review was to identify the perspectives of patients with Parkinson’s disease on treatment, care and rehabilitation.Methods: We conducted a systematic review and searched the following electronic bibliographic databases: MEDLINE, EMBASE, CINAHL, PsycInfo and Scopus for original studies published before June 2020. Grey literature was searched at www.parkinson.org, http://www.epda.eu.com, www.apdaparkinson.org and in the OpenSIGLE and HMIC databases. We included studies focusing on patients with Parkinson’s disease aged 18 or older that reported patients’ perspectives on treatment, care and rehabilitation. Results were analysed using thematic synthesis. Results: Ten studies were included, each of them applying qualitative methods and including between 1 and 28 patients. A total of 156 codings led to 17 descriptive themes which resulted in three analytic themes: Significance of self, Significance of informal caregivers and peers, and Significance of professionals.Conclusions: Our findings could be important in helping healthcare professionals plan and deliver treatment, care and rehabilitation based on patients’ priorities in the context of suffering from a chronic disease. The results might also guide future research regarding patient perspectives, as well as how and why to incorporate patients’ perspectives in healthcare delivery. Systematic review registration: The protocol was registered in Prospero (183551).

scholarly journals Person-Centered Care in the Home Setting for Parkinson’s Disease: Operation House Call Quality of Care Pilot Study

2015 ◽  
Vol 2015 ◽  
pp. 1-6 ◽  
Author(s):  
Nawaz Hack ◽  
Umer Akbar ◽  
Erin H. Monari ◽  
Amanda Eilers ◽  
Amanda Thompson-Avila ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Movement Disorders ◽  
Rating Scale ◽  
Rural Setting ◽  
Improvement Project ◽  
Home Setting ◽  
Person Centered Care ◽  
Centered Care ◽  
House Call

Objective. (1) To evaluate the feasibility of implementing and evaluating a home visit program for persons with Parkinson’s disease (PD) in a rural setting. (2) To have movement disorders fellows coordinate and manage health care delivery.Background. The University of Florida, Center for Movement Disorders and Neurorestoration established Operation House Call to serve patients with PD who could not otherwise afford to travel to an expert center or to pay for medical care. PD is known to lead to significant disability, frequent hospitalization, early nursing home placement, and morbidity.Methods. This was designed as a quality improvement project. Movement disorders fellows travelled to the home(s) of underserved PD patients and coordinated their clinical care. The diagnosis of Parkinson’s disease was confirmed using standardized criteria, and the Unified Parkinson’s Disease Rating Scale was performed and best treatment practices were delivered.Results. All seven patients have been followed up longitudinally every 3 to 6 months in the home setting, and they remain functional and independent. None of the patients have been hospitalized for PD related complications. Each patient has a new updatable electronic medical record. All Operation House Call cases are presented during video rounds for the interdisciplinary PD team to make recommendations for care (neurology, neurosurgery, neuropsychology, psychiatry, physical therapy, occupational therapy, speech therapy, and social work). One Operation House Call patient has successfully received deep brain stimulation (DBS).Conclusion. This program is a pilot program that has demonstrated that it is possible to provide person-centered care in the home setting for PD patients. This program could provide a proof of concept for the construction of a larger visiting physician or nurse program.

Sign in / Sign up

Export Citation Format

Share Document