scholarly journals Patient care standards for primary mitochondrial disease: a consensus statement from the Mitochondrial Medicine Society

2017 ◽  
Vol 19 (12) ◽  
pp. 1380-1380 ◽  
Author(s):  
Sumit Parikh ◽  
Amy Goldstein ◽  
Amel Karaa ◽  
Mary Kay Koenig ◽  
Irina Anselm ◽  
...  
Keyword(s):  
Patient Care ◽  
Mitochondrial Disease ◽  
Consensus Statement ◽  
Mitochondrial Medicine

scholarly journals Patient Care Standards for Primary Mitochondrial Disease in Australia. An Australian adaptation of the Mitochondrial Medicine Society recommendations

2021 ◽  
Author(s):  
Carolyn M. Sue ◽  
Shanti Balasubramaniam ◽  
Drago Bratkovic ◽  
Catherine Bonifant ◽  
John Christodoulou ◽  
...  
Keyword(s):  
Patient Care ◽  
Mitochondrial Disease ◽  
Mitochondrial Medicine

scholarly journals Diagnosis and management of mitochondrial disease: a consensus statement from the Mitochondrial Medicine Society

2014 ◽  
Vol 17 (9) ◽  
pp. 689-701 ◽  
Author(s):  
Sumit Parikh ◽  
Amy Goldstein ◽  
Mary Kay Koenig ◽  
Fernando Scaglia ◽  
Gregory M. Enns ◽  
...  
Keyword(s):  
Mitochondrial Disease ◽  
Consensus Statement ◽  
Diagnosis And Management ◽  
Mitochondrial Medicine

scholarly journals Health Literacy and the Patient With Heart Failure—Implications for Patient Care and Research: A Consensus Statement of the Heart Failure Society of America

2010 ◽  
Vol 16 (1) ◽  
pp. 9-16 ◽  
Author(s):  
Lorraine S. Evangelista ◽  
Kismet D. Rasmusson ◽  
Ann S. Laramee ◽  
Joan Barr ◽  
Susan E. Ammon ◽  
...  
Keyword(s):  
Heart Failure ◽  
Health Literacy ◽  
Patient Care ◽  
Consensus Statement

scholarly journals Consensus Statement: Feature and Function Recommendations to Optimize Clinician Usability of Direct Interoperability to Enhance Patient Care

2018 ◽  
Vol 09 (01) ◽  
pp. 205-220 ◽  
Author(s):  
Steven Lane ◽  
Holly Miller ◽  
Elizabeth Ames ◽  
Lawrence Garber ◽  
David Kibbe ◽  
...  
Keyword(s):  
Patient Care ◽  
Health Care Providers ◽  
Data Exchange ◽  
Consensus Statement ◽  
Clinical Care ◽  
The United States ◽  
Care Providers ◽  
Consensus Recommendation ◽  
Policy Makers ◽  
And Function

Background Secure clinical messaging and document exchange utilizing the Direct Protocol (Direct interoperability) has been widely implemented in health information technology (HIT) applications including electronic health records (EHRs) and by health care providers and organizations in the United States. While Direct interoperability has allowed clinicians and institutions to satisfy regulatory requirements and has facilitated communication and electronic data exchange as patients transition across care environments, feature and function enhancements to HIT implementations of the Direct Protocol are required to optimize the use of this technology. Objective To describe and address this gap, we developed a prioritized list of recommended features and functions desired by clinicians to utilize Direct interoperability for improved quality, safety, and efficiency of patient care. This consensus statement is intended to inform policy makers and HIT vendors to encourage further development and implementation of system capabilities to improve clinical care. Methods An ad hoc group of interested clinicians came together under the auspices of DirectTrust to address challenges of usability and create a consensus recommendation. This group drafted a list of desired features and functions that was published online. Comments were solicited from interested parties including clinicians, EHR and other HIT vendors, and trade organizations. Resultant comments were collected, reviewed by the authors, and incorporated into the final recommendations. Results This consensus statement contains a list of 57 clinically desirable features and functions categorized and prioritized for support by policy makers, development by HIT vendors, and implementation and use by clinicians. Conclusion Fully featured, standardized implementation of Direct interoperability will allow clinicians to utilize Direct messaging more effectively as a component of HIT and EHR interoperability to improve care transitions and coordination.

scholarly journals Consensus-based statements for the management of mitochondrial stroke-like episodes

2019 ◽  
Vol 4 ◽  
pp. 201 ◽  
Author(s):  
Yi Shiau Ng ◽  
Laurence A. Bindoff ◽  
Gráinne S. Gorman ◽  
Rita Horvath ◽  
Thomas Klopstock ◽  
...  
Keyword(s):  
Diagnostic Criteria ◽  
Mitochondrial Disease ◽  
Consensus Statement ◽  
Controlled Trial ◽  
Epileptic Encephalopathy ◽  
Clinical Expertise ◽  
Modified Delphi ◽  
Consensus Guidance ◽  
Definition Of ◽  
Randomised Controlled

Background: Focal-onset seizures and encephalopathy are prominent features of a stroke-like episode, which is a severe neurological manifestation associated with subtypes of mitochondrial disease. Despite more than 30 years of research, the acute treatment of stroke-like episodes remains controversial. Methods: We used the modified Delphi process to harness the clinical expertise of a group of mitochondrial disease specialists from five European countries to produce consensus guidance for the acute management of stroke-like episodes and commonly associated complications. Results: Consensus on a new definition of mitochondrial stroke-like episodes was achieved and enabled the group to develop diagnostic criteria based on clinical features, neuroimaging and/or electroencephalogram findings. Guidelines for the management of strokelike episodes were agreed with aggressive seizure management strongly recommended at the outset of stroke-like episodes. Conclusions: Our consensus statement defines stroke-like episodes in terms of an epileptic encephalopathy and we have used this to revise both diagnostic criteria and guidelines for management. A prospective, multi-centre, randomised controlled trial is required for evaluating the efficacy of any compound on modifying the trajectory of stroke-like episodes.

scholarly journals Consensus Statement on Advancing Research in Emergency Department Operations and Its Impact on Patient Care

2015 ◽  
Vol 22 (6) ◽  
pp. 757-764 ◽  
Author(s):  
Maame Yaa A. B. Yiadom ◽  
Michael J. Ward ◽  
Anna Marie Chang ◽  
Jesse M. Pines ◽  
Nick Jouriles ◽  
...  
Keyword(s):  
Emergency Department ◽  
Patient Care ◽  
Consensus Statement

Communications problems affecting patient care in hospitals

JAMA ◽  
1966 ◽  
Vol 195 (1) ◽  
pp. 36-37 ◽  
Author(s):  
J. C. Quint
Keyword(s):  
Patient Care
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