Marwit-Meuser Caregiver Grief Inventory--Brief Form

2020 ◽  
Author(s):  
Tau Ming Liew ◽  
Philip Yap
Keyword(s):  
Caregiver Grief

scholarly journals The Role of Advance Care Planning in Cancer Patient and Caregiver Grief Resolution: Helpful or Harmful?

Cancers ◽  
2021 ◽  
Vol 13 (8) ◽  
pp. 1977
Author(s):  
Francesca Falzarano ◽  
Holly G. Prigerson ◽  
Paul K. Maciejewski
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Advance Care Planning ◽  
Care Planning ◽  
Do Not Resuscitate ◽  
Prospective Longitudinal Study ◽  
Advance Care ◽  
Grief Resolution ◽  
Caregiver Grief ◽  
Prospective Longitudinal

Cancer patients and their family caregivers experience various losses when patients become terminally ill, yet little is known about the grief experienced by patients and caregivers and factors that influence grief as patients approach death. Additionally, few, if any, studies have explored associations between advance care planning (ACP) and grief resolution among cancer patients and caregivers. To fill this knowledge gap, the current study examined changes in grief over time in patients and their family caregivers and whether changes in patient grief are associated with changes in caregiver grief. We also sought to determine how grief changed following the completion of advance directives. The sample included advanced cancer patients and caregivers (n = 98 dyads) from Coping with Cancer III, a federally funded, multi-site prospective longitudinal study of end-stage cancer care. Participants were interviewed at baseline and at follow-up roughly 2 months later. Results suggest synchrony, whereby changes in patient grief were associated with changes in caregiver grief. We also found that patients who completed a living will (LW) experienced increases in grief, while caregivers of patients who completed a do-not-resuscitate (DNR) order experienced reductions in grief, suggesting that ACP may prompt “grief work” in patients while promoting grief resolution in caregivers.

Toward a Model of Caregiver Grief: Nurses' Experiences of Treating Dying Children

2000 ◽  
Vol 41 (3) ◽  
pp. 187-206 ◽  
Author(s):  
Lisa Jill Kaplan
Keyword(s):  
Terminally Ill ◽  
Care Providers ◽  
Emotional Experiences ◽  
Structured Interviews ◽  
Emotional Tension ◽  
Grief Reaction ◽  
Proposed Model ◽  
Dying Children ◽  
Caregiver Grief ◽  
The Relationship

This study explored the emotional experiences of fifteen American nurses who work with terminally ill children. Structured interviews were conducted which considered the relationships and the emotional experiences of one who works with dying children. Specific questions that addressed attitudes and reactions to the dying process were asked, and the notion of a grief reaction was explored. Results from this study indicate that participants experience a form of “emotional tension” in their struggle to balance the intense emotional feelings that exist when treating dying children with their desire and need to be competent care providers. Their emotional experiences are influenced by the relationship that is established with their patient and by the child's dying process. It was concluded that when caregivers recognize the need to grieve and express their feelings while acknowledging that this is a natural, normal, and appropriate manner in which to respond to the death of a patient, they then become better able to take care of themselves, and thus their patients. A proposed model of caregivers' grief is presented.

scholarly journals The Birmingham Relationship Continuity Measure: the development and evaluation of a measure of the perceived continuity of spousal relationships in dementia

2012 ◽  
Vol 25 (2) ◽  
pp. 263-274 ◽  
Author(s):  
Gerard A. Riley ◽  
Gemma Fisher ◽  
Barbara F. Hagger ◽  
Amy Elliott ◽  
Hannah Le Serve ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Item Analysis ◽  
Psychometric Evaluation ◽  
Quantitative Measure ◽  
Discriminative Power ◽  
Good Reliability ◽  
Relationship Continuity ◽  
Centered Care ◽  
Test Retest Reliability ◽  
Caregiver Grief

ABSTRACTBackground: Qualitative research has suggested that spousal carers of someone with dementia differ in terms of whether they perceive their relationship with that person as continuous with the premorbid relationship or as radically different, and that a perception of continuity may be associated with more person-centered care and the experience of fewer of the negative emotions associated with caring. The aim of the study was to develop and evaluate a quantitative measure of the extent to which spousal carers perceive the relationship to be continuous.Methods: An initial pool of 42 questionnaire items was generated on the basis of the qualitative research about relationship continuity. These were completed by 51 spousal carers and item analysis was used to reduce the pool to 23 items. The retained items, comprising five subscales, were then administered to a second sample of 84 spousal carers, and the questionnaire's reliability, discriminative power, and validity were evaluated.Results: The questionnaire showed good reliability: Cronbach's α for the full scale was 0.947, and test–retest reliability was 0.932. Ferguson's δ was 0.987, indicating good discriminative power. Evidence of construct validity was provided by predicted patterns of subscale correlations with the Closeness and Conflict Scale and the Marwit–Meuser Caregiver Grief Inventory.Conclusion: Initial psychometric evaluation of the measure was encouraging. The measure provides a quantitative means of investigating ideas from qualitative research about the role of relationship continuity in influencing how spousal carers provide care and how they react emotionally to their caring role.

scholarly journals Treating Caregiver Grief With Narrative Therapy

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1059-1060
Author(s):  
Tara Matta
Keyword(s):  
Mental Health Professionals ◽  
Narrative Therapy ◽  
Psychological Intervention ◽  
Behavioral Therapy ◽  
Memory Loss ◽  
Anticipatory Grief ◽  
Daily Lives ◽  
Cognitive Framework ◽  
Current Psychological ◽  
Caregiver Grief

Abstract Dementia, a devastating neurodegenerative disease with over 10 million new diagnoses each year, is characterized by many symptoms including memory loss .Individuals with memory less experience changes in mood, personality, behavior, cognition and activities of daily living which affect their daily lives. These monumental life shifts often occur rapidly, leaving caregivers unprepared to deal with the changes. Caregivers face a unique situations navigating anticipatory grief and changes in their relationships with their loved ones. Current psychological intervention for caregivers includes utilization of cognitive-behavioral therapy and psychoeducation. More recently, intriguing research has emerged regarding the efficacy of narrative therapy for couples where one partner experiences memory loss. However, treating the anticipatory grief component specifically for caregivers has been largely overlooked in these studies. Narrative therapy revolves around identifying the current story that caregivers utilize as their cognitive framework, helping to find alternative plotlines and to process their newly-built cognitive framework. It involves externalizing the problem (in this case, dementia) and locating strengths that the caregiver and their care receiver share to “fight” the problem. Insights from both the current literature and the field have demonstrated a promising outlook on the use of narrative therapy. Such insights imply a need for more research regarding this modality specifically for caregivers, as its core ideas can be easily disseminated to gerontologists, mental health professionals and caregivers.

A brief measure of predeath grief in dementia caregivers: the Caregiver Grief Questionnaire

2019 ◽  
Vol 31 (08) ◽  
pp. 1099-1107 ◽  
Author(s):  
Sheung-Tak Cheng ◽  
Duan Yang Ma ◽  
Linda C. W. Lam
Keyword(s):  
Depressive Symptoms ◽  
Functional Impairment ◽  
Neuropsychiatric Symptoms ◽  
Two Dimensions ◽  
Care Recipient ◽  
Psychotic Symptoms ◽  
Emotional Pain ◽  
Cross Sectional Survey ◽  
Care Recipients ◽  
Caregiver Grief

ABSTRACTObjective:The study of predeath grief is hampered by measures that are often lengthy and not clearly differentiated from other caregiving outcomes, most notably burden. We aimed to validate a new 11-item Caregiver Grief Questionnaire (CGQ) assessing two dimensions of predeath grief, namely relational deprivation and emotional pain.Design:Cross-sectional survey.Setting:Community and psychogeriatric clinics.Participants:173 Alzheimer (AD) caregivers who cared for relatives with different degrees of severity (63 mild, 60 moderate, and 50 severe).Measurements:Besides the CGQ, measures of caregiver burden and depressive symptoms, and care-recipients’ neuropsychiatric symptoms and functional impairment were assessed.Results:Confirmatory factor analysis supported the hypothesized 2-factor over the 1-factor model, and both subscales were only moderately correlated with burden. Two-week test-retest reliabilities were excellent. Caregivers for mild AD reported less grief than those caring for more severe relatives. Z tests revealed significantly different correlational patterns for the two dimensions, with emotional pain more related to global burden and depressive symptoms, and relational deprivation more related to care-recipients’ functional impairment. Both dimensions were mildly correlated with neuropsychiatric symptoms (especially disruptive behaviors and psychotic symptoms) of the care-recipient.Conclusions:Results supported the reliability and validity of the two-dimensional measure of predeath grief. As a brief measure, it can be readily added to research instruments to facilitate study of this important phenomenon along with other caregiving outcomes.

Caregiver Grief in End-Stage Dementia

2007 ◽  
Vol 46 (1) ◽  
pp. 47-65 ◽  
Author(s):  
Sara Sanders ◽  
Samuel J. Marwit ◽  
Thomas M. Meuser ◽  
Paul Harrington
Keyword(s):  
End Stage ◽  
Caregiver Grief
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