Correlates of Family Care Planning for Persons With Brain Injuries: Sibling and Parent Perspectives

2012 ◽  
Author(s):  
Charles E. Degeneffe
Keyword(s):  
Brain Injuries ◽  
Family Care ◽  
Care Planning ◽  
Parent Perspectives

scholarly journals Goal setting within family care planning: families with complex needs

2013 ◽  
Vol 199 (S3) ◽  
Author(s):  
Darryl J Maybery ◽  
Melinda J Goodyear ◽  
Andrea E Reupert ◽  
Marillyn K Harkness
Keyword(s):  
Goal Setting ◽  
Family Care ◽  
Care Planning ◽  
Complex Needs

scholarly journals Goal setting within family care planning: families with complex needs

MJA Open ◽  
2012 ◽  
Vol 1 (Suppl 1) ◽  
pp. 37-39 ◽  
Author(s):  
Darryl J Maybery ◽  
Melinda J Goodyear ◽  
Andrea E Reupert ◽  
Marillyn K Harkness
Keyword(s):  
Goal Setting ◽  
Family Care ◽  
Care Planning ◽  
Complex Needs

scholarly journals Future Eldercare Planning Among Chinese Aging Families in Hong Kong

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 529-529
Author(s):  
Xue Bai ◽  
Joanne Luk ◽  
Ranran He ◽  
Yanyee Kwong
Keyword(s):  
Hong Kong ◽  
Cultural Values ◽  
Adult Children ◽  
Family Care ◽  
Care Planning ◽  
Processes Of Care ◽  
Family Capital ◽  
Future Care ◽  
Intergenerational Care

Abstract Increasing attention has been paid to the potential role of care planning in buffering future eldercare challenges. However, little is known about the characteristics of care planning among Chinese ageing families. It is also of interest to reflect how recent events such as COVID-19 pandemic may affect their views of the future care planning. From a family systems perspective, this study explored the extent, processes, and contents of intergenerational care planning of Chinese ageing families in Hong Kong. Dyadic interviews were conducted with 60 adult child-older parent pairs, and individual interviews were conducted with another 33 adult children. Intergenerational discrepancies in extent and processes of care planning, intergenerational congruence of care expectations and struggles, facilitating role of family capital and hindering role of cultural capital in care planning were primary themes. Although both generations demonstrated strong awareness of future eldercare needs, they were found engaged in different levels and processes of care planning. Adult children’s level of engagement in planning activities may influence parents’ extent and contents of care planning. Intergenerational transmission of eldercare values contributed to intergenerational congruence of care expectations but also led to similar struggles and ambivalent attitudes toward future care. Moreover, family capital was found to facilitate family care planning while Chinese cultural values that emphasize family care may hinder both generations’ efforts in care planning. The findings will deepen our understanding on characteristics of intergenerational care planning in Asian Chinese communities and inform services to improve adult children and ageing parents’ preparation for future eldercare.

Coaching Care Partners Who Support Loved Ones With MCI

2014 ◽  
Vol 19 (2) ◽  
pp. 50-56 ◽  
Author(s):  
Kerry Mills ◽  
Jennifer Brush
Keyword(s):  
Cognitive Functioning ◽  
Educational Program ◽  
Social Withdrawal ◽  
Quality Care ◽  
Critical Role ◽  
Family Care ◽  
Speech Language Pathologists ◽  
Care Partners ◽  
Provide Quality Care ◽  
Solution Focused

Speech-language pathologists can play a critical role in providing education and intervention to prevent social withdrawal, prevent premature disability, and maximize cognitive functioning in persons with MCI. The purpose of this article is to describe positive, solution-focused educational program that speech-language pathologists can implement with family care partners to improve relationships and provide quality care for someone living with MCI.

Demenz aus palliativmedizinischer Perspektive: warum ein krankheitsspezifisches Advance Care Planning wichtig ist

2018 ◽  
Vol 75 (2) ◽  
pp. 105-111 ◽  
Author(s):  
Ralf J. Jox ◽  
Francesca Bosisio ◽  
Eve Rubli Truchard
Keyword(s):  
Palliative Care ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care ◽  
Menschen Mit Demenz

Zusammenfassung. Die Palliative Care muss sich im Zuge des demographischen Wandels vieler Gesellschaften rund um den Globus tiefgreifend wandeln. Sie muss mehr und mehr mit der Geriatrie zusammenarbeiten und geriatrische Expertise integrieren. Eine der zentralen Herausforderungen Geriatrischer Palliative Care ist die ethisch angemessene Therapieentscheidung für Menschen, die nicht mehr urteilsfähig sind. Nachdem der bisherige Ansatz herkömmlicher Patientenverfügungen erwiesenermassen enttäuscht hat, wird aktuell, gerade auch in deutschsprachigen Ländern, das systemische Konzept des Advance Care Planning (ACP) verfolgt. In diesem Artikel wird zunächst ACP mit seinen Zielen, Elementen und Effekten vorgestellt. Sodann wird gezeigt, weshalb es für Menschen mit Demenz eines adaptierten ACP-Programms bedarf und was ein solches demenzspezifisches ACP beinhalten muss.

Die Patientenverfügung «Plus» – das Konzept des Advance Care Planning (ACP)

Praxis ◽  
2017 ◽  
Vol 106 (25) ◽  
pp. 1369-1375 ◽  
Author(s):  
Barbara Loupatatzis ◽  
Tanja Krones
Keyword(s):  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care

Zusammenfassung. Advance Care Planning ist ein begleiteter, strukturierter Prozess, der es Patienten und ihren Angehörigen ermöglicht, sich mit ihren Einstellungen zu Leben und Sterben sowie möglichen Behandlungen für den Fall einer Urteilsunfähigkeit mit Hilfe eines ausgebildeten Beraters auseinander zu setzen. Das Konzept kombiniert die individuelle Beratung des Patienten mit einem regionalen, systemischen Ansatz, der sicherstellt, dass alle Beteiligten die verwendeten Dokumente kennen und auch in einer Notfallsituation korrekt anwenden können. Ziel ist es, die Behandlung von urteilsunfähigen Patienten besser im Sinne ihrer Wünsche und Bedürfnisse zu koordinieren und dadurch die Patientenautonomie zu stärken.

Detection of Malingered Neurocognitive Dysfunction Among Patients with Acquired Brain Injuries

2013 ◽  
Vol 29 (4) ◽  
pp. 253-262 ◽  
Author(s):  
Omer Hegedish ◽  
Dan Hoofien
Keyword(s):  
Response Bias ◽  
Concurrent Validity ◽  
Convergent Validity ◽  
Brain Injuries ◽  
Neurocognitive Dysfunction ◽  
Word Memory Test ◽  
Malingered Neurocognitive Dysfunction ◽  
Compensation Seeking ◽  
Seeking Behavior ◽  
Verbal Test

The Word Memory Test (WMT) is one of the most sensitive forced-choice tests available designed to evaluate negative response bias (NRB). Presently there is no valid verbal test designed to evaluate NRB for Hebrew-speaking patients. The aims of the present study were to validate the response bias measures of the WMT among Hebrew-speaking patients with acquired brain injuries and to reveal the malingering base rate among Israeli patients involved in compensation-seeking. Participants were 112 patients. The Test of Memory Malingering (TOMM) was used for convergent validity and injury related variables were used for concurrent validity. A translated version of the WMT had high split-half reliability. Regarding convergent validity, WMT effort measures had high positive correlations with the TOMM. Moreover, based on TOMM cutoff scores for classification, the WMT had reasonable classification rates. Regarding concurrent validity, multivariate logistic regression revealed that failure in the WMT was significantly predicted by normal brainscans and involvement in compensation-seeking behavior. The baserate of probable malingering was 34%. These findings emphasize the universality of the WMT in detecting NRB and establishing a malingered neurocognitive dysfunction baserate among Israeli patients involved in compensation-seeking.

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