Meaningful involvement of women living with HIV: Women-specific community-based research model

2012 ◽  
Author(s):  
Shari Margolese
Keyword(s):  
Research Model ◽  
Community Based ◽  
Community Based Research ◽  
Women Living With Hiv ◽  
Meaningful Involvement ◽  
Specific Community ◽  
Hiv Women ◽  
Living With Hiv

scholarly journals “Trust Me, It’s Different”: Experiences of Peer Case Management of Women Living with HIV in Ontario, Canada

2015 ◽  
Vol 32 (1-2) ◽  
pp. 73-93 ◽  
Author(s):  
Saara Greene ◽  
Allyson Ion ◽  
Gladys Kwaramba ◽  
Mary Mwalwanda ◽  
Janet Caswell ◽  
...  
Keyword(s):  
Case Management ◽  
Case Managers ◽  
Community Based ◽  
Community Based Research ◽  
Management Intervention ◽  
Women Living With Hiv ◽  
Case Management Intervention ◽  
Care And Support ◽  
Related Stigma ◽  
Living With Hiv

In response to the dearth of research for delivering women-centred support to women living with HIV, the Women’s HIV Empowerment Through Life Tools for Health (wHEALTH) intervention was developed. This project was grounded in a community-based research framework and aimed to respond to barriers of women living with HIV in accessing appropriate and meaningful social supports. Participants described the benefits of the peer case management intervention including support, mentorship, flexibility in which the intervention was delivered, and the notion of “moving forward” in one’s journey with HIV. Through education, awareness, and advocacy, peer case managers are important partners in addressing HIV-related stigma, and ensuring a multi-level approach to providing care and support to women living with HIV.

Mental health among transgender women living with HIV in Canada: findings from a national community-based research study

AIDS Care ◽  
2020 ◽  
pp. 1-9 ◽  
Author(s):  
Ashley Lacombe-Duncan ◽  
Laura Warren ◽  
Emma Sophia Kay ◽  
Yasmeen Persad ◽  
Jaspreet Soor ◽  
...  
Keyword(s):  
Mental Health ◽  
Research Study ◽  
Transgender Women ◽  
Community Based ◽  
Community Based Research ◽  
National Community ◽  
Women Living With Hiv ◽  
Living With Hiv

scholarly journals Empowering Malian women living with HIV regarding serostatus disclosure management: Short-term effects of a community-based intervention

2018 ◽  
Vol 101 (2) ◽  
pp. 248-255 ◽  
Author(s):  
Adeline Bernier ◽  
Adam Yattassaye ◽  
Dominic Beaulieu-Prévost ◽  
Joanne Otis ◽  
Emilie Henry ◽  
...  
Keyword(s):  
Short Term ◽  
Community Based ◽  
Serostatus Disclosure ◽  
Women Living With Hiv ◽  
Disclosure Management ◽  
Living With Hiv ◽  
Short Term Effects

6. DYADIC PERSPECTIVES ON SUPPORT FOR WOMEN LIVING WITH HIV/AIDS IN AUSTRALIA: AN EXPLORATORY STUDY

Sexual Health ◽  
2007 ◽  
Vol 4 (4) ◽  
pp. 286
Author(s):  
J. Russell
Keyword(s):  
Social Isolation ◽  
Support Needs ◽  
Community Based ◽  
Research Attention ◽  
Women Living With Hiv ◽  
Unique Nature ◽  
Heterogenous Population ◽  
Future Direction ◽  
Living With Hiv ◽  
Hiv Aids

There are more women than ever living with HIV/AIDS in Australia and this relatively small heterogenous population has received scant research attention. Women living with HIV/AIDS, face many complex and compelling challenges in managing this stigmatised illness in their everyday lives. This study sought to gain an understanding of these women's support needs. Semi-structured, in-depth interviews were conducted with two groups: women living with HIV/AIDS (Sydney and Melbourne, involved and not in advocacy); and HIV specialists (Sydney and Melbourne) treating women living with HIV/AIDS. There was a consensus view among both specialists and women that women: have limited knowledge of HIV/AIDS; have no collective or historical understanding of HIV/AIDS; are more likely to present late with HIV; experience diagnosis as extremely distressing; are not aware of the resources available including medical treatments; and are more likely to experience social isolation. Both groups recognised the need for psychological and social support. HIV specialists questioned the effectiveness of community based peer support, while women identified this as one of the most important forms of support. HIV specialists differed in their knowledge and views of CBOs, and this influenced their decisions on recommending these to their female patients. The unique nature of this stigmatised illness calls for the recognition of the contributions of all parties in efforts to address these support needs; the women living with HIV/AIDS, HIV specialists and community based organisations. Particularly in light of the potential for social isolation, inquiries into social structures that provide the opportunity to access social resources are arguably a future direction to advance knowledge in this area.

scholarly journals Barriers to Meaningful Involvement in AIDS Service Organizations in Three Canadian Maritime Provinces

2015 ◽  
Vol 2 (2) ◽  
pp. 81
Author(s):  
Steven Michael Ross ◽  
Lynne Duffy ◽  
Leslie Jeffrey ◽  
Donna Bulman ◽  
Marni Amirault
Keyword(s):  
Rural Communities ◽  
Risk Behaviors ◽  
Rural Areas ◽  
Negative Influence ◽  
Small Sample ◽  
Service Organizations ◽  
Maritime Provinces ◽  
Community Based ◽  
Community Based Research ◽  
Meaningful Involvement

<p>A three-year, community-based descriptive study examined how meaningful involvement in AIDS Service Organizations (ASOs) is conceptualized and experienced in three Canadian Maritime provinces that are considered rural areas. This paper focuses on one aspect of the research, namely the barriers to meaningful involvement in ASOs. Thirty-five participants were interviewed who self-identified as current or past clients of an ASO and were living with, or engaging in, at-risk behaviors for HIV/AIDS. Photovoice, a qualitative Community-Based Research (CBR) strategy, was also used with a small sample because marginalized populations that are traditionally difficult to recruit for interviews have embraced this method due to its oral-based and interactive design. The contribution to the field of knowledge about barriers to meaningful involvement is organized around three main themes: (1) stigma, a major negative influence, is particularly powerful due to the nature of social structures in rural communities; (2) readiness for meaningful involvement, where poor health status or the desire to lead a normal life can significantly impact an individual’s involvement, and (3) characteristics of the ASO environment that are critical in determining the degree, if any, of meaningful involvement.<strong></strong></p>

scholarly journals The FANMI (“my FAMILY” in Creole) study to evaluate community-based cohort care for adolescent and young women living with HIV in Haiti: protocol for a randomized controlled trial

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Grace Seo ◽  
Joseph Marie Bajo Joseph ◽  
Nancy Confident ◽  
Esther Jean ◽  
Bianca Louis ◽  
...  
Keyword(s):  
Risk Behaviors ◽  
Adolescent Girls ◽  
Young Women ◽  
Controlled Trial ◽  
Retention In Care ◽  
Hiv Care ◽  
Community Based ◽  
Randomized Controlled ◽  
Women Living With Hiv ◽  
Living With Hiv

Abstract Background Adolescent girls and young women living with HIV in resource-limited settings have the poorest health outcomes of any age group, due in part to poor retention in care. Differentiated models of HIV care that target the specific challenges of young people living with HIV are urgently needed. Methods The FANMI study is an unblinded randomized controlled trial designed to evaluate the efficacy of an adolescent-specific model of HIV care in Port-au-Prince, Haiti. The FANMI intervention places newly young women living with HIV who are not currently on ART or on ART ≤ 3 months, in cohorts of 5–10 peers to receive monthly group HIV care in a community location. In contrast, participants in the standard care arm receive routine HIV care and individual counseling each month in GHESKIO’s Adolescent Clinic. A total of 160 participants ages 16–23 years old are being randomized on a 1:1 basis. The primary outcome is retention in HIV care defined as being alive and in care at 12 months after enrollment. Secondary outcomes include viral suppression at 12 months, sexual risk behaviors, acceptability of the FANMI intervention, and health care utilization and costs. Discussion The FANMI study evaluates a novel community-based cohort model of HIV care aimed at improving retention in care and reducing risk behaviors for HIV transmission among adolescent girls and young women living with HIV. Specifically, the FANMI model of care addresses social isolation by placing participants in cohorts of 5–10 peers to provide intensified peer support and makes HIV health management a group norm; reduces stigma and improves convenience by providing care in a community setting; and integrates clinical care and social support by the same providers to streamline care and promote long-term patient-provider relationships. If shown to be effective, the FANMI intervention may serve as a model of HIV care for improving retention among hard-to-reach adolescents and young adults in Haiti and could be adapted for other high-risk groups globally. Trial registration Identifier: NCT03286504, Registered September 18, 2017.

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