Respect, protect, fulfill: Guidance on community engagement for men who have sex with men and HIV-related research in rights constrained settings

2012 ◽  
Author(s):  
Prince Bahati ◽  
Cheikh Traore ◽  
Rhon Reynolds ◽  
Stefan Baral ◽  
Kent Klindera
Keyword(s):  
Community Engagement ◽  
Related Research ◽  
Sex With Men

scholarly journals Integrating Community Participation With Interpretative Phenomenological Analysis: Reflections on Engaging the Autism Community

2021 ◽  
Vol 20 ◽  
pp. 160940692110555
Author(s):  
Gabrielle A. Heselton ◽  
Gwen R. Rempel ◽  
David B. Nicholas
Keyword(s):  
Community Engagement ◽  
Research Design ◽  
Interpretative Phenomenological Analysis ◽  
Childhood Adversity ◽  
Autism Spectrum ◽  
Phenomenological Analysis ◽  
Participatory Methods ◽  
Community Members ◽  
Related Research ◽  
Autistic Community

Members of the autistic community have long advocated for more input into and participation with autism-related research. Currently, the power to determine the direction of autism-related research and knowledge production related to autism lies with non-autistic researchers, while the wishes and perspectives of the autistic community are largely ignored. There is a growing trend toward ethical autism-related research, however, in which the perspectives of all stakeholders, particularly those of autistic individuals, are sought and their expertise on autism is foregrounded. In a study exploring the experiences of childhood adversity and resilience among autistic adults, we strove to conduct our research in an inclusive and ethical way, by integrating participatory methods, such as community engagement to inform research design, and credibility checking with participants to confirm that the analysis resonated with their experiences. Five stakeholders, representing parents of children on the autism spectrum, professionals, and autistic community members were recruited to provide input into the research design and provide insight into autistic ways of communicating, interacting, and being. The recommendations generated through this community engagement were then integrated into an interpretative phenomenological analysis (IPA) framework and implemented with four adult autistic participants. Through reflection on the process of community engagement, development of research design, implementation of the study, and credibility checking, it is clear that incorporating participatory methods into IPA increases rigor and ensures that autistic perspectives are represented through research.

scholarly journals Operation PCOR: A Community Engagement Project Preparing Veterans as Full Partners in PTSD-Related Research

2021 ◽  
Vol 7 (1) ◽  
pp. 14
Author(s):  
Cheryl A. Krause-Parello ◽  
Linda Flynn ◽  
S. Juliana Moreno ◽  
Jennifer Dillon ◽  
David Augustus Hibler ◽  
...  
Keyword(s):  
Community Engagement ◽  
Related Research

scholarly journals Correlates of attendance at community engagement meetings held in advance of bio-behavioral research studies: A longitudinal, sociocentric social network study in rural Uganda

PLoS Medicine ◽  
2021 ◽  
Vol 18 (7) ◽  
pp. e1003705
Author(s):  
Bernard Kakuhikire ◽  
Emily N. Satinsky ◽  
Charles Baguma ◽  
Justin D. Rasmussen ◽  
Jessica M. Perkins ◽  
...  
Keyword(s):  
Social Network ◽  
Community Engagement ◽  
Community Survey ◽  
Related Research ◽  
Health Fair ◽  
Health Related Research ◽  
Health Related ◽  
Study Participants ◽  
Community Health Fair ◽  
Research Studies

Background Community engagement is central to the conduct of health-related research studies as a way to determine priorities, inform study design and implementation, increase recruitment and retention, build relationships, and ensure that research meets the goals of the community. Community sensitization meetings, a form of community engagement, are often held prior to the initiation of research studies to provide information about upcoming study activities and resolve concerns in consultation with potential participants. This study estimated demographic, health, economic, and social network correlates of attendance at community sensitization meetings held in advance of a whole-population, combined behavioral, and biomedical research study in rural Uganda. Methods and findings Research assistants collected survey data from 1,630 adults participating in an ongoing sociocentric social network cohort study conducted in a rural region of southwestern Uganda. These community survey data, collected between 2016 and 2018, were linked to attendance logs from community sensitization meetings held in 2018 and 2019 before the subsequent community survey and community health fair. Of all participants, 264 (16%) attended a community sensitization meeting before the community survey, 464 (28%) attended a meeting before the community health fair, 558 (34%) attended a meeting before either study activity (survey or health fair), and 170 (10%) attended a meeting before both study activities (survey and health fair). Using multivariable Poisson regression models, we estimated correlates of attendance at community sensitization meetings. Attendance was more likely among study participants who were women (adjusted relative risk [ARR]health fair = 1.71, 95% confidence interval [CI], 1.32 to 2.21, p < 0.001), older age (ARRsurvey = 1.02 per year, 95% CI, 1.01 to 1.02, p < 0.001; ARRhealth fair = 1.02 per year, 95% CI, 1.01 to 1.02, p < 0.001), married (ARRsurvey = 1.74, 95% CI, 1.29 to 2.35, p < 0.001; ARRhealth fair = 1.41, 95% CI, 1.13 to 1.76, p = 0.002), and members of more community groups (ARRsurvey = 1.26 per group, 95% CI, 1.10 to 1.44, p = 0.001; ARRhealth fair = 1.26 per group, 95% CI, 1.12 to 1.43, p < 0.001). Attendance was less likely among study participants who lived farther from meeting locations (ARRsurvey = 0.54 per kilometer, 95% CI, 0.30 to 0.97, p = 0.041; ARRhealth fair = 0.57 per kilometer, 95% CI, 0.38 to 0.86, p = 0.007). Leveraging the cohort’s sociocentric design, social network analyses suggested that information conveyed during community sensitization meetings could reach a broader group of potential study participants through attendees’ social network and household connections. Study limitations include lack of detailed data on reasons for attendance/nonattendance at community sensitization meetings; achieving a representative sample of community members was not an explicit aim of the study; and generalizability may not extend beyond this study setting. Conclusions In this longitudinal, sociocentric social network study conducted in rural Uganda, we observed that older age, female sex, being married, membership in more community groups, and geographical proximity to meeting locations were correlated with attendance at community sensitization meetings held in advance of bio-behavioral research activities. Information conveyed during meetings could have reached a broader portion of the population through attendees’ social network and household connections. To ensure broader input and potentially increase participation in health-related research studies, the dissemination of research-related information through community sensitization meetings may need to target members of underrepresented groups.

“All We Had Were the Streets”: Lessons Learned From a Recreation-Based Community Health Space for Young Black MSM and Trans Women Across the HIV Prevention and Care Continuum

2018 ◽  
Vol 30 (4) ◽  
pp. 309-321 ◽  
Author(s):  
Brian Adams ◽  
Sarah Krier ◽  
Jess Netto ◽  
Nayck Feliz ◽  
M. Reuel Friedman
Keyword(s):  
Community Engagement ◽  
Community Health ◽  
Service Provision ◽  
Qualitative Data ◽  
Lessons Learned ◽  
Black Msm ◽  
Transgender People ◽  
Implementation Period ◽  
Sex With Men ◽  
Young Black Msm

Young Black men who have sex with men (MSM) and transgender people experience disparities in HIV incidence and HIV outcomes. To effectively engage these communities in HIV-related programming, we developed a recreation-based community health space. We sought to examine the challenges and successes in implementing this program. Qualitative data were collected from federal progress reports and by a process evaluator who recorded interviews with staff, stakeholders, and participants. These data were coded for themes related to barriers and successes. We consolidated themes into four key domains: community engagement, service provision, stigma, and violence. Each of these domains was determined to significantly affect programmatic success during the implementation period. Young Black MSM and transgender people experience stigmas that pose challenges to effective engagement in HIV-related programming. These lessons learned offer strategies for community engagement and for addressing violence and stigma to maximize programmatic effectiveness.

Leveraging Community Engagement: The Role of Community-Based Organizations in Reducing New HIV Infections Among Black Men Who Have Sex with Men

2020 ◽  
Vol 7 (2) ◽  
pp. 193-201
Author(s):  
Paul A. Burns ◽  
Michelle S. Williams ◽  
Leandro A. Mena ◽  
Marino A. Bruce ◽  
Melverta Bender ◽  
...  
Keyword(s):  
Community Engagement ◽  
Black Men ◽  
Hiv Infections ◽  
Community Based ◽  
Community Based Organizations ◽  
Sex With Men

Bridging the HIV-syphilis testing gap: dual testing among men who have sex with men living in China

2018 ◽  
Vol 95 (4) ◽  
pp. 251-253 ◽  
Author(s):  
Jason J Ong ◽  
Meizhen Liao ◽  
Amy Lee ◽  
Hongyun Fu ◽  
Stephen W Pan ◽  
...  
Keyword(s):  
Community Engagement ◽  
Public Hospital ◽  
Online Survey ◽  
Descriptive Analysis ◽  
Health Centre ◽  
Community Based ◽  
Syphilis Testing ◽  
Self Testing ◽  
Sex With Men ◽  
Voluntary Counselling And Testing

ObjectivesThe WHO recommends dual testing for HIV and syphilis among key populations, including men who have sex with men (MSM). We assessed the proportion of men who had dual tested and reasons for not dual testing.MethodsIn 2017, an online survey of MSM was conducted in eight cities from two provinces in China. Data on sociodemographics and sexual behaviours were collected. Descriptive analysis was used to examine the experience of dual testing. Multivariable logistic regression identified characteristics associated with men who had dual tested.ResultsAmong 802 men who had ever tested for HIV, 297 dual tested (37%, 95% CI 34 to 40). Men dual tested in a variety of settings: public hospital (35%), voluntary counselling and testing sites (28%), self-testing at home (18%), community-based organisation (8%), community health centre (7%), other (3%) or private hospital (1%). Greater odds for dual testing was found in men who had disclosed their sexuality to a healthcare provider (adjusted OR (AOR) 1.81, 95% CI 1.27 to 2.59, p=0.001), and who had substantial (AOR 2.71, 95% CI 1.67 to 4.41, p<0.001) or moderate community engagement in sexual health (AOR 2.30, 95% CI 1.49 to 3.57, p<0.001), compared with those with no community engagement. The most common reasons for not dual testing were no knowledge that they could be dual tested (34%), did not ask the doctor to be dual tested (25%) and did not believe they were at risk for syphilis (19%).ConclusionsChinese MSM are dual testing through a variety of test sites, including home self-testing. However, the overall dual testing rate remains low despite recent efforts to integrate HIV and syphilis testing.

scholarly journals A Crowdsourcing Open Contest to Design Pre-Exposure Prophylaxis Promotion Messages: Protocol for an Exploratory Mixed Methods Study

10.2196/15590 ◽  
2020 ◽  
Vol 9 (1) ◽  
pp. e15590
Author(s):  
Jordan J White ◽  
Allison Mathews ◽  
Marcus P Henry ◽  
Meghan B Moran ◽  
Kathleen R Page ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Community Engagement ◽  
The United States ◽  
Medical Mistrust ◽  
Community Assets ◽  
Community Needs ◽  
Group 2 ◽  
Sex With Men ◽  
Prep Awareness ◽  
Exposure Prophylaxis

Background In the United States, black men who have sex with men (BMSM) are disproportionately affected by HIV. Pre-exposure prophylaxis (PrEP) can reduce HIV incidence. However, real-world implementation of PrEP outside of clinical trials has identified racial disparities in PrEP awareness, uptake, and adherence. In the context of a long history of medical mistrust and power imbalances between scientists and community members, strategies to increase uptake of PrEP among BMSM should consider ways to ensure messages address the needs and priorities of the community. Crowdsourcing contests shift traditional individual tasks to a large group and may enhance community engagement. Objective This paper describes the research protocol of a contest approach to soliciting PrEP promotion messages among BMSM in Baltimore. Methods Open-contest implementation and evaluation will proceed as follows: (1) organize a community steering group; (2) develop platforms to solicit crowd input; (3) engage the community to contribute ideas through a Web-based forum and in-person events; (4) evaluate contest entries using both community panel judge assessment and crowd voting; (5) utilize mixed methods to evaluate feasibility, acceptability, and community engagement; and (6) disseminate contest results. Results This study was funded by the National Institutes of Health (National Institute of Mental Health: R34MH116725) in May 2018 and was approved by the institutional review board in April 2018. The open contest started in February 2019, and data analyses for the mixed method evaluation are expected to complete in December 2019. Conclusions The contest will potentially bring new ideas in developing more impactful and locally defined PrEP promotion campaigns. We will determine whether an open-contest approach is acceptable among BMSM in Baltimore. If successful, this study can inform future projects using a similar approach on how to identify and implement programs and policies that are more responsive to community needs and that build up community assets. International Registered Report Identifier (IRRID) DERR1-10.2196/15590

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