Prolonging the withdrawal of life support in the ICU affects family satisfaction with care

2008 ◽  
2019 ◽  
Vol 17 (4) ◽  
Author(s):  
Josiele De Lima Neves ◽  
Eda Schwartz ◽  
Maria Elena Echevarría-Guanilo ◽  
Ana Carolina Guidorizzi Zanetti ◽  
Daren Heyland ◽  
...  

O presente estudo objetivou descrever o processo de adaptação transcultural do Family Satisfaction with Care in the Intensive Care Unit (FS-ICU 24) para o português do Brasil. Trata-se de um estudo metodológico de adaptação transcultural que percorreu as seguintes etapas: tradução do instrumento para o português do Brasil; obtenção do primeiro consenso das versões em português; avaliação da versão consenso pelo comitê de especialistas; back-translation (retro tradução); obtenção do consenso das versões em inglês e comparação com a versão original; equivalência semântica dos itens e; pré-teste. Os resultados apontaram para as equivalências semântica, idiomática e conceitual adequadas entre a versão final em português e a original em inglês, bem como para a compreensão e fácil aplicação do instrumento traduzido e adaptado para a cultura brasileira. Concluiu-se que a adaptação transcultural do FS-ICU (24) originou uma versão confiável, a qual precisará ser  testada na população alvo e aprovada quanto à sua validade e confiabilidade.


2010 ◽  
Vol 30 (6) ◽  
pp. 18-26 ◽  
Author(s):  
Susan M. Roberti ◽  
Joyce J. Fitzpatrick

The assessment tool used in this study can assist nurses to improve practice and increase family satisfaction.


2018 ◽  
Vol 25 (12) ◽  
pp. 1894-1904 ◽  
Author(s):  
Giulia Lamiani ◽  
Matteo Ciconali ◽  
Piergiorgio Argentero ◽  
Elena Vegni

This study explored the relationship between clinicians’ moral distress and family satisfaction with care in five intensive care units in Italy. A total of 122 clinicians (45 physicians and 77 nurses) and 59 family members completed the Italian Moral Distress Scale-Revised and the Family Satisfaction in the ICU questionnaire, respectively. Clinicians’ moral distress inversely correlated with family satisfaction related to the inclusion in the decision-making process. Specifically, physicians’ moral distress inversely correlated with satisfaction regarding the respect shown toward the patient. Nurses’ moral distress inversely correlated with satisfaction regarding breathlessness and agitation management, provision of emotional support, understanding of information, and inclusion in the decision-making process.


2020 ◽  
Author(s):  
Constance McGraw ◽  
Jennifer Pekarek ◽  
Diane Redmond ◽  
Rebecca Vogel ◽  
Allen Tanner ◽  
...  

Abstract Background The purpose of this study was to examine if satisfaction with care differs among older trauma patients with and without preexisting mental illness (PMI+/PMI-). Methods Data from two level I trauma centers were examined 11/2016-12/2017. Trauma patients ≥ 55 years were included and satisfaction of those who had a diagnosis of mental illness prior to the trauma admission (PMI+) to those without a diagnosis (PMI-) (n = 299; 62 PMI + and 237 PMI-) were compared. Enrolled patients completed the Family Satisfaction with Advanced Care Cancer Scale Patient Survey (FAMCARE-P13) prior to discharge. Associations between mental illness status and patient baseline characteristics, overall mean satisfaction, and mean satisfaction by question were compared. Generalized linear models adjusted for differences in patient satisfaction by mental illness status. Analyses were stratified by hospital to account for the interaction between hospital and mental illness status. Results Compared to PMI- patients, PMI + patients were more likely to be younger, female, have multiple comorbidities, and to report lower overall satisfaction with care. Among PMI + patients, the most common diagnoses were depression and anxiety. After adjustment, PMI + was associated with lower patient satisfaction at hospital 1; after examining individual questions lower satisfaction was associated with information provided on procedures and questions surrounding “Physical care.” Conversely, PMI + did not affect satisfaction at hospital 2 after adjustment. Conclusions At hospital 1, room for improvement was identified in providing information about prognosis and procedures, symptom management, and continuity of care. Reexamining practices for older PMI + trauma patients is warranted.


2008 ◽  
Vol 34 (12) ◽  
pp. 37-44 ◽  
Author(s):  
Genevieve N. Thompson ◽  
Verena H. Menec ◽  
Harvey M. Chochinov ◽  
Susan E. McClement

2013 ◽  
Author(s):  
Kristen G Schaefer ◽  
Rachelle E Bernacki

The trajectories of serious illness and dying have changed in the last century; in the past, patients lived shorter lives and often died quickly of infectious disease, whereas patients in the 21st century live longer and often with prolonged debility in the advanced stages of illness. As a result, patients with serious illness can suffer undertreated symptoms and often feel poorly prepared for the final stages of disease. With more options for advanced life support and other aggressive interventions at the end of life, patients and families face increasingly complex medical decisions in the terminal phase of illness, and the treatments they receive do not always align with their goals and values. Emerging evidence suggests that integrating palliative care into the treatment of advanced illness can improve outcomes, decrease costs, and improve both patient and family satisfaction. Consequently, patient access to high-quality specialty-level palliative care is becoming standard of care at most academic cancer centers and more available in the community. This chapter describes the practice and principles of specialty-level palliative care and outlines specific "generalist" palliative care competencies essential for all physicians caring for patients with serious illness, including prognostication, patient-centered communication, and the navigation of ethical dilemmas in the field of palliative care. Tables outline the philosophy of palliative care, domains of suffering, location of death of hospice patients, the palliative performance scale, median survival times for cancer syndromes, indicators associated with a poorer prognosis in congestive heart failure, the NURSE mnemonic for accepting and responding to emotion, palliative care communication competencies in the intensive care unit, and the SPIKES mnemonic for breaking bad news. Figures depict causes of death in 1900 versus 2010, palliative care through the trajectory of serious illness, theoretical trajectories of disease, life expectancies for women and men, mortality at 1 year post discharge, and a model for patient-centered communication. This review contains 6 highly rendered figures, 9 tables, and 169 references.


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