Evaluation of local networks in palliative care

An estimation of the number of children requiring pediatric palliative care in Italy

Italian Journal of Pediatrics ◽

10.1186/s13052-020-00952-y ◽

2021 ◽

Vol 47 (1) ◽

Author(s):

Franca Benini ◽

Mariadonata Bellentani ◽

Laura Reali ◽

Pierina Lazzarin ◽

Lucia De Zen ◽

...

Keyword(s):

Palliative Care ◽

Psychological Needs ◽

Pediatric Palliative Care ◽

Organizational Models ◽

Local Networks ◽

Policy Makers ◽

Number Of Children ◽

Care Plans ◽

Precise Estimation ◽

National Databases

Abstract Background Pediatric palliative care (PPC) addresses the physical and psychological needs of children suffering from life-limiting diseases. To define prevention and educational plans and to properly allocate resources, a precise estimation of the PPC burden is required. Objectives To estimate the current number of children requiring PPC in Italy, useful to assist policy-makers and healthcare bodies in the organization and allocation of PPC resources. Methods Literature data, The Global Atlas of Palliative Care at the End of Life and Italian national databases have been consulted. Results According to our estimation, at present, a total of 20,540–32,864 children in Italy require PPC (34–54 children/100,000 inhabitants) of whom 18 children/100,000 inhabitants require specialized PPC. Conclusions The present work is a fundamental tool to be used by the institutions, the local networks of PPC and the health programmers when formulating organizational models and care plans consistent with the actual need for PPC.

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Function of Local Networks in Palliative Care: A Dutch View

Journal of Palliative Medicine ◽

10.1089/jpm.2005.8.808 ◽

2005 ◽

Vol 8 (4) ◽

pp. 808-816 ◽

Cited By ~ 31

Author(s):

C.V.M. Vahedi Nikbakht-Van De Sande ◽

C.C.D. Van Der Rijt ◽

A. Ph. Visser ◽

M.A. Ten Voorde ◽

J.F.A. Pruyn

Keyword(s):

Palliative Care ◽

Local Networks

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Much Ado About Fried Chicken: Abetting Aspiration or Respecting Autonomy?

American Journal of Speech-Language Pathology ◽

10.1044/2019_ajslp-18-0207 ◽

2019 ◽

Vol 28 (3) ◽

pp. 1356-1362

Author(s):

Laurence Tan Lean Chin ◽

Yu Jun Lim ◽

Wan Ling Choo

Keyword(s):

Palliative Care ◽

End Of Life ◽

Multidisciplinary Team ◽

Biopsychosocial Model ◽

Family Members ◽

Clinical Decisions ◽

Goals Of Care ◽

Complex Needs ◽

Aspiration Risk ◽

Patient Centric

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.

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