Supplemental Material for Advancing the Evidence for Yoga as a Promising Quality of Life Intervention in Pediatric Populations With Chronic Illness: A Call to Action

2021 ◽  
Keyword(s):  
Quality Of Life ◽  
Chronic Illness ◽  
Call To Action ◽  
Pediatric Populations

scholarly journals Improving Care and Empowering Adults Living with SMA: A Call to Action in the New Treatment Era

2021 ◽  
pp. 1-9
Author(s):  
Maggie C. Walter ◽  
Claudia Chiriboga ◽  
Tina Duong ◽  
Nathalie Goemans ◽  
Anna Mayhew ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lived Experiences ◽  
Unmet Needs ◽  
Muscular Atrophy ◽  
Management Strategies ◽  
Effective Management ◽  
Call To Action ◽  
Pediatric Populations ◽  
New Treatment

While Spinal Muscular Atrophy (SMA) has historically been managed with supportive measures, the emergence of innovative medicines has given those living with SMA hope for improved quality of life and has revolutionized care. Despite these advances, the use of therapies and changes in disease management strategies have focused on pediatric populations, leaving adults living with SMA, and those transitioning into adulthood, relatively neglected. Through a multi-faceted approach that gathered unbiased perspectives from clinical experts, validated insights from individuals with lived experiences, and substantiated findings with evidence from the literature, we have exposed unmet needs that are hindering the field and, ultimately, impacting care and quality of life for adults living with SMA. Here, we set new aspirations and calls to action to inspire continued research in this field, stimulate dialogue across the SMA community and inform policies that deliver effective management and care throughout an adult’s journey living with SMA.

scholarly journals Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity

2020 ◽  
Vol 34 (4) ◽  
pp. 304-314 ◽  
Author(s):  
Lilian Bravo ◽  
Mary K. Killela ◽  
Beck L. Reyes ◽  
Karla Marie Bathan Santos ◽  
Vanessa Torres ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Illness ◽  
Self Efficacy ◽  
Self Management ◽  
Health Related Quality ◽  
Medical Complexity ◽  
Related Quality ◽  
Health Related

scholarly journals Associations of chronic illnesses and socio-demographic factors with health-related quality of life of older adults in Nigeria: A cross-sectional study

2020 ◽  
Vol 54 (3) ◽  
pp. 164-172
Author(s):  
Joel Faronbi ◽  
Aishat Ajadi ◽  
Robbert Gobbens
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Chronic Illness ◽  
Cross Sectional Study ◽  
Chronic Illnesses ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Background: The increase in life expectancy has brought about a higher prevalence of chronic illnesses among older people.Objectives: To identify common chronic illnesses among older adults, to examine the influence of such conditions on their Health-Related Quality of Life (HRQoL), and to determine factors predicting their HRQoL.Method: A population-based cross-sectional study was conducted involving 377 individuals aged 60 years and above who were selected using multi-stage sampling techniques in Olorunda Local Government, Osun State, Nigeria. Data were collected using an interviewer-administered questionnaire comprising socio-demographic characteristics, chronic illnesses, and the World Health Organization quality of life instrument (WHOQOL-BREF) containing physical health, psychological, social relationships, and environmental domains.Results: About half (51.5%) of the respondents reported at least one chronic illness which has lasted for 1–5 years (43.3%). The prevalence of hypertension was 36.1%, diabetes 13.9% and arthritis 13.4%. Respondents with chronic illness had significantly lower HRQoL overall and in the physical health, social relationships and the environmental domains (all p<0.05) compared to those without a chronic illness. Factors that predicted HRQoL include age, marital status, level of education, the presence of chronic illness and prognosis of the condition.Conclusion: This study concluded that chronic illness is prevalent in Nigerian older people and significantly influence their HRQoL. Age, marital status, and level of education were associated with HRQoL in this group.Keywords: Chronic illness, Health-Related Quality of Life, Older adults, Socio-demographic factorsFunding: Postdoctoral fellowship from Consortium for Advanced Research Training in Afric

scholarly journals Quality of Life and School Absenteeism in Children With Chronic Illness

2016 ◽  
Vol 32 (4) ◽  
pp. 258-266 ◽  
Author(s):  
Natacha D. Emerson ◽  
Brian Distelberg ◽  
Holly E. R. Morrell ◽  
Jackie Williams-Reade ◽  
Daniel Tapanes ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Illness ◽  
School Absenteeism
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