Supplemental Material for Parent Decision-Making About Support for Siblings of Children With Cancer: Sociodemographic Influences

2020 ◽  
Keyword(s):  
Decision Making ◽  
Children With Cancer ◽  
Parent Decision Making

Parent decision-making about support for siblings of children with cancer: Sociodemographic influences.

2020 ◽  
Vol 8 (2) ◽  
pp. 115-125 ◽  
Author(s):  
Anjali R. Oberoi ◽  
Nicole D. Cardona ◽  
Kathryn A. Davis ◽  
Emily M. Pariseau ◽  
Deborah Berk ◽  
...  
Keyword(s):  
Decision Making ◽  
Children With Cancer ◽  
Parent Decision Making

Parent Decision-Making and School Choice

2019 ◽  
pp. 351-364 ◽  
Author(s):  
Huriya Jabbar ◽  
Sarah Winchell Lenhoff
Keyword(s):  
Decision Making ◽  
School Choice ◽  
Parent Decision Making

scholarly journals Interventions for promoting participation in shared decision-making for children with cancer

2016 ◽  
Author(s):  
Imelda Coyne ◽  
Dónal P O'Mathúna ◽  
Faith Gibson ◽  
Linda Shields ◽  
Edith Leclercq ◽  
...  
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Shared Decision ◽  
Children With Cancer

Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction

2007 ◽  
Vol 25 (11) ◽  
pp. 1357-1362 ◽  
Author(s):  
Jennifer W. Mack ◽  
E. Francis Cook ◽  
Joanne Wolfe ◽  
Holcombe E. Grier ◽  
Paul D. Cleary ◽  
...  
Keyword(s):  
Decision Making ◽  
Functional Outcome ◽  
Response Rate ◽  
Cross Sectional Survey ◽  
Children With Cancer ◽  
Cross Sectional ◽  
Factors Associated ◽  
Dana Farber Cancer Institute ◽  
Unrealistic Expectations

Purpose Patients often overestimate their chances of surviving cancer. Factors that contribute to accurate understanding of prognosis are not known. We assessed understanding of likelihood of cure and functional outcome among parents of children with cancer and sought to identify factors that place parents at risk for overly optimistic beliefs about prognosis. Patients and Methods We conducted a cross-sectional survey of 194 parents of children with cancer (response rate, 70%) who were treated at the Dana-Farber Cancer Institute and Children's Hospital in Boston, MA, and the children's physicians. Parent and physician expectations for likelihood of cure and functional outcome were compared. In 152 accurate or optimistic parents, we determined factors associated with accurate understanding of likelihood of cure compared with optimism. Results The majority of parents (61%) were more optimistic than physicians about the likelihood of cure. Parents' beliefs about other outcomes of cancer treatment were similar (quality-of-life impairment, P = .70) or more pessimistic (physical impairment, P = .01; intellectual impairment, P = .01) than physicians' beliefs. Parents and physicians were more likely to agree about chances of cure when physicians had confidence in knowledge of prognosis (odds ratio [OR] = 2.55, P = .004) and allowed parents to take their preferred decision-making role (OR = 1.89, P = .019). Conclusion Parents of children with cancer are overly optimistic about chances of cure but not about other outcomes of cancer therapy. Parents tend to be overly optimistic about cure when physicians have little confidence and when the decision-making process does not meet parents' preferences. These findings suggest that physicians are partly responsible for parents' unrealistic expectations about cure.

Parent decision-making when selecting schools: The case of Nepal

Prospects ◽  
2014 ◽  
Vol 44 (3) ◽  
pp. 411-428 ◽  
Author(s):  
Priyadarshani Joshi
Keyword(s):  
Decision Making ◽  
Parent Decision Making

Patient and Parent Decision-Making in the Setting of Chemotherapy-Induced Sensorineural Hearing Loss

Ear & Hearing ◽  
2020 ◽  
Vol 41 (6) ◽  
pp. 1684-1691
Author(s):  
Ginny L. Schulz ◽  
Susan Hayashi ◽  
Anne Spence ◽  
Judith Lieu ◽  
Allison King ◽  
...  
Keyword(s):  
Decision Making ◽  
Hearing Loss ◽  
Sensorineural Hearing Loss ◽  
Sensorineural Hearing ◽  
Parent Decision Making

Nutrition-Related Clinical Decision Making of Pediatric Oncology Nurses

2019 ◽  
Vol 36 (5) ◽  
pp. 352-360
Author(s):  
Amanda J. Lulloff ◽  
Judith A. Vessey ◽  
Lisa Bashore ◽  
Matt Gregas
Keyword(s):  
Decision Making ◽  
Nutritional Status ◽  
Pediatric Oncology ◽  
Clinical Decision Making ◽  
Nutritional Assessment ◽  
Clinical Decision ◽  
Oncology Nurses ◽  
Children With Cancer ◽  
Pediatric Hematology

Children with a cancer diagnosis have risk factors leading to unique nutritional challenges. Malnutrition in this population is correlated with worse patient outcomes. Nurses are responsible for providing holistic care to their patients; however, the quality of nutritional assessments by pediatric oncology nurses is unknown. The purpose of this study was to investigate staff nurses’ clinical decision making regarding nutritional assessment of children with cancer. A web-based survey composed of a demographic form, vignettes of patients with diverse nutritional status and the New General Self-Efficacy Scale, was distributed to members of the Association of Pediatric Hematology Oncology Nurses. Participants were also asked to rate their confidence in responses as well as select key nutritional cues. Nurses were significantly more likely to under-rate the nutritional status and select far fewer cues than the experts. Further research regarding nutritional assessment is warranted. Evidenced-based guidelines for nutritional assessment of children with cancer should be developed to ensure the highest quality of care is provided to this patient population.

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