Supplemental Material for Caregiver Perspectives on Family Psychosocial Risks and Resiliencies in Pediatric Sickle Cell Disease: Informing the Adaptation of the Psychosocial Assessment Tool

2017 ◽  
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Assessment Tool ◽  
Psychosocial Assessment ◽  
Cell Disease ◽  
Psychosocial Risks ◽  
Pediatric Sickle Cell Disease

scholarly journals Examination of Risk and Resiliency in a Pediatric Sickle Cell Disease Population Using the Psychosocial Assessment Tool 2.0

2012 ◽  
Vol 37 (9) ◽  
pp. 1031-1040 ◽  
Author(s):  
C. W. Karlson ◽  
S. Leist-Haynes ◽  
M. Smith ◽  
M. A. Faith ◽  
T. D. Elkin ◽  
...  
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Assessment Tool ◽  
Psychosocial Assessment ◽  
Cell Disease ◽  
Pediatric Sickle Cell Disease

scholarly journals Psychosocial Screening in Sickle Cell Disease: Validation of the Psychosocial Assessment Tool

2020 ◽  
Vol 45 (4) ◽  
pp. 423-433 ◽  
Author(s):  
Steven K Reader ◽  
Colleen N Keeler ◽  
Fang Fang Chen ◽  
Nicole M Ruppe ◽  
Diana L Rash-Ellis ◽  
...  
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Assessment Tool ◽  
Reliability And Validity ◽  
Psychosocial Problems ◽  
Psychosocial Assessment ◽  
Stress Reactions ◽  
Functional Impairments ◽  
Cell Disease ◽  
Systematic Screening

Abstract Objective Families of youth with Sickle Cell Disease (SCD) can face psychosocial adversity including emotional distress, functional impairments, and sociodemographic risk factors. Systematic screening of psychosocial risk can identify families who may benefit from further assessment and evidence-based care. The Psychosocial Assessment Tool (PAT) is a brief caregiver-report screener based on the tri-level Pediatric Psychosocial Preventative Health Model (PPPHM). Methods Findings are presented from the baseline assessment of a longitudinal study validating a Sickle Cell version of the PAT 2.0. Primary caregivers of 136 youth with SCD receiving care through a multidisciplinary SCD clinic in a children’s hospital completed the PAT and validation measures. A subset of 25 caregivers completed the PAT a second time within 3–5 weeks. Results Internal consistency for the total score was strong (α = .87), and for the subscales was moderate to strong (α  =  .74–.94), with the exception of the Family Structure (α  =  .38), Caregiver Beliefs (α  =  .48), and Stress Reactions (α  =  .56) subscales. Test–retest reliability was also strong (r = .86, p < .001). Moderate to strong correlations with all except two criteria measures provided validation for the total and subscale scores. Validation measures varied significantly across the three levels of the PPPHM. Conclusions Results provide support for the reliability and validity of the PAT in SCD. Systematic screening with the PAT can help identify families of youth with SCD at risk for psychosocial problems and potentially help connect them to appropriate services.

scholarly journals Psychometric Properties of the Psychosocial Assessment Tool-General in Adolescents and Young Adults With Sickle Cell Disease

2015 ◽  
Vol 41 (4) ◽  
pp. 397-405 ◽  
Author(s):  
Lori E. Crosby ◽  
Naomi E. Joffe ◽  
Nina Reynolds ◽  
James L. Peugh ◽  
Ellen Manegold ◽  
...  
Keyword(s):  
Young Adults ◽  
Sickle Cell Disease ◽  
Psychometric Properties ◽  
Sickle Cell ◽  
Assessment Tool ◽  
Adolescents And Young Adults ◽  
Psychosocial Assessment ◽  
Cell Disease

Computerized cognitive training in pediatric sickle cell disease: A randomized controlled pilot study.

2020 ◽  
Vol 8 (4) ◽  
pp. 390-401 ◽  
Author(s):  
Taryn M. Allen ◽  
Lindsay M. Anderson ◽  
Samuel M. Brotkin ◽  
Jennifer A. Rothman ◽  
Melanie J. Bonner
Keyword(s):  
Pilot Study ◽  
Sickle Cell Disease ◽  
Cognitive Training ◽  
Sickle Cell ◽  
Cell Disease ◽  
Computerized Cognitive Training ◽  
Randomized Controlled ◽  
Pediatric Sickle Cell Disease

Assessing the atria in pediatric sickle cell disease: Beyond the dilation

2020 ◽  
Author(s):  
Robert W. Loar ◽  
Alex George ◽  
Nidhy P. Varghese ◽  
Asela M. Liu ◽  
John L. Colquitt ◽  
...  
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Cell Disease ◽  
Pediatric Sickle Cell Disease
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