scholarly journals Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

2014 ◽  
Vol 32 (3) ◽  
pp. 328-337 ◽  
Author(s):  
Julie A. Strunk ◽  
Rita Pickler ◽  
Nancy L. McCain ◽  
Suzanne Ameringer ◽  
Barbara J. Myers
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Health Care Needs ◽  
Care Needs ◽  
Adolescents With Autism

Unmet health care needs and health care quality in youth with autism spectrum disorder with and without intellectual disability

Autism ◽  
2021 ◽  
pp. 136236132110147
Author(s):  
Michelle Menezes ◽  
Melissa F Robinson ◽  
Christina Harkins ◽  
Eleonora Sadikova ◽  
Micah O Mazurek
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Autism Spectrum Disorder ◽  
Intellectual Disability ◽  
Mental Health Care ◽  
Autism Spectrum ◽  
Care Quality ◽  
Spectrum Disorder ◽  
Health Care Needs ◽  
Care Needs

Research indicates that youth with autism spectrum disorder often experience unmet health care needs and receive poorer quality of care. Intellectual disability commonly co-occurs with autism spectrum disorder; however, the nature of unmet health care needs and health care quality in youth with autism spectrum disorder and intellectual disability have not been investigated. As such, this study sought to examine associations among co-occurring intellectual disability, unmet physical and mental health care needs, and health care quality in youth with autism spectrum disorder. Data from this study were acquired from the 2016–2018 National Survey of Children’s Health, a nationally distributed caregiver-report questionnaire. Results found that the frequency of unmet mental health care need was significantly higher among children with autism spectrum disorder with co-occurring intellectual disability than those without intellectual disability. Using a structural equation modeling approach, it was found that the total effect of co-occurring intellectual disability on composite health care quality was significant. Investigation of indirect effects indicated that unmet mental health care need mediated the relationship between co-occurring intellectual disability and health care quality. These findings suggest that youth with autism spectrum disorder and co-occurring intellectual disability may be more likely to experience unmet mental health care needs, and that their unmet mental health care needs may negatively impact their health care quality. Lay abstract The increase in the prevalence of autism spectrum disorder has placed greater demands on the health care system. Children and adolescents with autism spectrum disorder often experience challenges accessing high-quality physical and mental health care due to characteristic social-communication deficits and behavioral difficulties, as well as high rates of complex medical and psychiatric comorbidities. Intellectual disability commonly co-occurs with autism spectrum disorder and individuals affected by this co-occurrence may have additional impairments that compound challenges accessing health care. This study investigated the relations among co-occurring intellectual disability, unmet physical and mental health care needs, and health care quality in a large, nationally distributed sample of youth with autism spectrum disorder using structural equation modeling techniques. Co-occurring intellectual disability was significantly associated with unmet mental health care needs in children with autism. In addition, unmet mental health care needs mediated the relationship between co-occurring intellectual disability and health care quality; youth with autism spectrum disorder and co-occurring intellectual disability who had a past-year unmet mental health need had significantly poorer caregiver-reported health care quality. These findings suggest that youth with autism spectrum disorder and co-occurring intellectual disability may be more likely to experience unmet mental health care needs and receive poorer quality of care than the broader autism spectrum disorder population.

scholarly journals ERRATUM TO: CAREGIVERS’ EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY

2020 ◽  
Vol 6 (4) ◽  
pp. 146
Author(s):  
Lilis Lestari ◽  
Elisabeth S Herini ◽  
Indria Laksmi Gamayanti
Keyword(s):  
Autism Spectrum Disorder ◽  
Qualitative Study ◽  
Self Care ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Original Version ◽  
Care Needs ◽  
Adolescents With Autism ◽  
Reference Format

After publication of the article (Lestari et al., 2017), it has been brought to our attention that the wrong title was used on initial publication. The correct title of this article is “Caregivers’ experience in meeting self-care needs of adolescents with autism spectrum disorder: A qualitative study”. The original version of the article has been updated to reflect this.In addition, the reference format in this article has also been updated. The corrected article can be seen in the following link  https://doi.org/10.33546/bnj.123The publisher apologizes for the errors.

Individuals with Developmental Disabilities

2017 ◽  
Author(s):  
Katharine Stratigos ◽  
Nina Tioleco ◽  
Anna Silberman ◽  
Agnes Whitaker
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Autism Spectrum Disorder ◽  
Mental Illness ◽  
Developmental Disabilities ◽  
Social Services ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Federal State ◽  
Care Needs

Persons with developmental disabilities (DD), such as autism spectrum disorder and intellectual disability, are at substantially greater risk of having comorbid mental illness compared to the general population. Their mental health care needs, however, are vastly undertreated. Contributors to this situation include the challenges of evaluating mental illness in individuals with DD; stigma associated with and systematic barriers against people with DD; communication barriers; inadequate training of health care workers; insufficient availability of community mental health services; and the complexity of the available social services and legal systems at the federal, state, and community levels. This chapter uses a case to review the different factors that contribute to irritability and problem behavior in a person who has autism spectrum disorder with intellectual and language impairment. Also reviewed is the complicated system of services and statutes that may be of assistance when working with this population.

scholarly journals Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions

2019 ◽  
Vol 13 ◽  
pp. 117955651984281 ◽  
Author(s):  
Jolie Straus ◽  
Sarah Coburn ◽  
Stephanie Maskell ◽  
Jessica Pappagianopoulos ◽  
Kathryn Cantrell
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care Professionals ◽  
Neurodevelopmental Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Hospital Environment ◽  
Future Research ◽  
Care Needs ◽  
Published Evidence

Approximately 1 in 59 youth are currently diagnosed with autism spectrum disorder (ASD), a neurodevelopmental disorder. In comparison to typically developing peers, youth with ASD encounter hospitalization at higher rates due to their heightened health care needs. While visiting the hospital is a stressor for youth with neurotypical needs, the experience contains unique challenges for those with ASD. This systematic literature review highlights research that considers the psychosocial impact of the hospital environment on the coping and adjustment of youth with ASD. Specifically, the review focuses on recommendations and interventions that may be used by health care professionals while supporting this population as they encounter the health care system. Ninety-six articles were identified as meeting inclusion and exclusion criteria. The findings suggest that practicing clinicians should implement a wide variety of interventions for youth with ASD including diversion techniques, comfort positions, and picture schedules. Although there are published evidence-based interventions for supporting youth with ASD in the hospital, most clinicians lack ASD-specific training. This article concludes with recommendations for future research.

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