scholarly journals Meaning in life: An important factor for the psychological well-being of chronically ill patients?

2013 ◽  
Vol 58 (4) ◽  
pp. 334-341 ◽  
Author(s):  
Jessie Dezutter ◽  
Sara Casalin ◽  
Amy Wachholtz ◽  
Koen Luyckx ◽  
Jessica Hekking ◽  
...  
Keyword(s):  
Meaning In Life ◽  
Chronically Ill ◽  
Well Being ◽  
Psychological Well Being ◽  
Chronically Ill Patients

scholarly journals AB0889-HPR PERCEIVED SATISFACTION WITH CHRONIC PAIN CARE IN GERMAN PATIENTS WITH FIBROMYALGIA (FM)

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1467.3-1468
Author(s):  
M. Offenbächer ◽  
L. Toussaint ◽  
J. Hirsch ◽  
M. Weigl ◽  
N. Kohls ◽  
...  
Keyword(s):  
High School ◽  
Chronic Pain ◽  
General Health ◽  
Meaning In Life ◽  
Chronically Ill ◽  
Well Being ◽  
Satisfaction With Care ◽  
Psychological Well Being ◽  
Perceived Satisfaction ◽  
Pain Care

Background:In chronic pain care a multidimensional perspective with attention to patients’ cognitions, emotions, and their ability to cope is needed (1). Previous studies are also pointing to the role of experiencing meaningfulness in life in the adjustment to disability.Therefore care should additionally focus on the existential domain of patients’ lives to live up to a holistic care approach (2). However, there are only a few studies on how FM patients are satisfied with practitioners’ attention to multiple aspects of life with a chronic pain condition.Objectives:To assess perceived satisfaction with chronic pain care and its associations with health variables in a cohort of patients with FM.Methods:We invited 18 FM self-help groups in Germany to participate anonymously in our survey and sent them in total 192 paper-and-pencil surveys. Sociodemographics, disease related variables (e.g. pain, general health) and psychological variables [e.g. depression, anxiety, hope, stress] were assessed with standardized instruments, including 5 items (answer format 1=very unsatisfied – 10=very satisfied) assessing subjective satisfaction with medical care in different domains with the following questions: How satisfied are you with the attention of your treatment team/physician at home for physiological aspects of your pain (Physio)/ the consequences of the pain on your physical functioning (Physical)/ on your psychological well-being (Mental)/ on your social life (Social)/ on your meaning in life (Meaning).Results:In total 162 FM patients participated (=84% response rate). Their mean age was 58 years (SD=10), 84% (N=135) were female. Highest level of education was: Elementary School 29%, Junior High School 35%, High School 15%, College 12%, and other 10%. Duration of chronic pain was 18.2 years (SD=12.0). The satisfaction with care scale showed good internal consistency and measured one factor. The means of the subscale were: Physio 5.7 (SD=2.5)/ Physical 5.5 (SD=2.5)/ Mental 5.5 (SD=2.6)/ Social 5.0 (SD=2.5)/ Meaning 5.3 (SD=2.6). Correlations of the subscales are depicted in Table 1. There were no associations between pain variables and satisfaction with care, but satisfaction with care was associated with mental health, but not physical health, outcomes.Table 1.Correlations of satisfaction of care with different health variables. Subscales physiological and physical aspects and HADS-anxiety were not significantly correlated. *<.05; **<.01; ns=not significant.PhysioPhysicalMentalSocialMeaningHADS-depression-.10 (ns)-.12 (ns)-.19*-.16*-.14 (ns)General Health .02 (ns) .14 (ns) .13 (ns) .18* .12 (ns)Stress-.15 (ns)-.14 (ns)-.17*-.17*-.13 (ns)Hope .18 (ns) .18 (ns) .26** .26* .22*Conclusion:In this cohort of German FM patients the average satisfaction with care overall, as well as the specific aspects of care, was only moderate. Interestingly we found associations between satisfaction with care in mental, social and meaning in life aspects with psychological well-being pointing to the fact that care for chronic pain patients should also include those aspects in addition to just addressing biomedical aspects.References:[1]Flor H and Turk D. Chronic pain: an integrated approach. Seattle, WA: IASP Press, 2011.[2]Dezutter J, Casalin S, Wacholtz A, et al. Meaning in life: An important factor for the psychological well-being of chronically ill patients? Rehabilitat Psychol 2013; 58:334–341.Disclosure of Interests:None declared

Behavioral engagement with mHealth for improved well-being among chronically ill patients: the role of human-related and app-related factors (Preprint)

2021 ◽  
Author(s):  
Freek Van Baelen ◽  
Melissa De Regge ◽  
Bart Larivière ◽  
Katrien Verleye ◽  
Sam Schelfout ◽  
...  
Keyword(s):  
Chronic Condition ◽  
Chronically Ill ◽  
Well Being ◽  
Behavioral Engagement ◽  
Related Factors ◽  
Design Factor ◽  
Mobile Health Applications ◽  
Chronically Ill Patients ◽  
The Relationship ◽  
Mhealth Apps

BACKGROUND Last decade has shown a considerable increase in the amount of mobile health applications (mHealth apps) in everyday life. These mHealth apps have the potential to significantly improve well-being for chronically ill patients. However, behavioral engagement with mHealth apps remains low. OBJECTIVE The aim of this study is to provide insight into the behavioral engagement of adults with chronic conditions with mHealth apps by investigating (1) how it is affected by human-related factors (here, physician motivation) and app-related factors (here, app integration) and (2) how it affects their well-being. Supplementary, this study considers the moderating effect of preference for traditional visits to the physician (habit) and experience in app use (app experience) by the patients. METHODS A scenario based experiment among patients with a chronic condition (n= 521) was carried out. A Bayesian SEM model with mediation and moderation analysis was conducted in MPlus. RESULTS Both physician motivation for mHealth app use and mHealth app integration have a positive effect on the behavioral engagement of chronically ill patients towards mHealth apps. Higher behavioral engagement positively influences the hedonic and eudaimonic well-being of chronically ill patients. App experience positively moderates the relationship between app integration and behavioral engagement. A patients’ habit with receiving traditional care does not moderate the relationship between physician motivation and behavioral engagement. CONCLUSIONS The human and design factor play a key role in behavioral engagement and well-being among patients with a chronic condition. During and after the development of a mHealth app, app integration and physician motivation should be a point of attention.

scholarly journals Relationship between Spiritual Well-being and Quality of Life among Chronically Ill Individuals

2015 ◽  
Vol 2 (4) ◽  
Author(s):  
Kanwal Shahbaz ◽  
Dr. Kiran Shahbaz
Keyword(s):  
Quality Of Life ◽  
Economic Status ◽  
Chronically Ill ◽  
Well Being ◽  
Life Questionnaire ◽  
Spiritual Wellbeing ◽  
Socio Economic Status ◽  
Spiritual Well Being ◽  
Chronically Ill Patients

The study was aimed to find the relationship between Spiritual Wellbeing and Quality of Life among chronically ill individuals. Likewise, relationship between demographic variables with Quality of Life and Spiritual Wellbeing were also reconnoitered. Non probability purposive sampling technique was used with chronically ill patients of 15yrs to 80yrs. For measuring spiritual wellbeing Urdu version of “Spiritual Wellness Inventory” (SWI-URDU) (Hanif, 2010) was used. Alternatively, for the measurement of Quality of life WHO Quality of Life Questionnaire (WHO-QOL-BREF) was used. A sample of 200 chronically ill patients were taken from four different hospitals of Rawalpindi and Islamabad. Reliabilities of both the instruments were computed as 0.90 for SWI and 0.74 for WHO-QOL-BREF. Findings show that quality of life and Spiritual wellbeing is positively related among chronically ill individuals. Males found to score high on spiritual wellbeing than females. Individuals with less education are more spiritually inclined as compared to individuals with high education. Quality of life was scored high by individuals with higher education as compared to less education. Married individuals were having better quality of life than unmarried, separated widow and divorced. Patients with middle socio-economic status were having better quality of life than higher and lower. Quality of life was high among individuals with better monthly income than those who have low and middle monthly incomes. Spiritual well being is higher in middle adolescents (15-17) than in late (18-20) adolescents. The current research can be implemented in designing the intervention plans for the betterment of chronically ill patients. It may also help us to develop an insight that each patient with same disease but in different age group and socio-economic status has different needs and plans of treatment and care.

scholarly journals Relations of existential characteristics and hardiness with psychosomatic cardiac symptoms in young people

2018 ◽  
Vol 17 (4) ◽  
pp. 33-41 ◽  
Author(s):  
P. E. Grigoriev ◽  
I. V. Vasilieva
Keyword(s):  
Meaning In Life ◽  
Pairwise Comparison ◽  
Well Being ◽  
Descriptive Statistics ◽  
Stress Coping ◽  
A Posteriori ◽  
Psychological Well Being ◽  
Cardiac Symptoms ◽  
Healthy Sample

Objective. Evaluation of the psychological well-being and hardiness in adolescents with cardiac symptoms.Materials and methods.The study involved 80 people aged 18–24 years, a relatively healthy sample. To assess the existential characteristics, the scale of psychological well-being of С. Ryff in the adaptation of N.N. Lepeshinsky. To assess the psychological quality of hardiness, the S. Maddi questionnaire was used in adaptation D.A. Leontiev, E.I. Rasskazova. To assess the psychosomatic component of cardiac symptoms the Giessen questionnaire of psychosomatic complaints was used. Descriptive statistics methods, the Mann – Whitney test for independent samples, a one-way analysis of variance with a posteriori pairwise comparison using the Newman-Keuls test were used.Results.For members of the healthy sample at the age of 18–24 years, the severity of psychosomatic cardiac complaints is relatively homogeneous by sex and age; the most significant differences in existential characteristics and hardiness in connection with the severity of psychosomatic cardiac symptoms fall on indicators of “commitment”, “control”, “environmental management”. Conclusion. The most significant and discriminating contribution to the prevention of psychosomatic cardiac complaints is such existential and stress-coping characteristics of personality as the ability to effectively use life situations to achieve one’s own goals, to fight for success and get results from their actions, to strive for maximum involvement in the activities of interest for the reflected, conscious meaning in life.

Goal adjustment capacities in uncontrollable life circumstances: Benefits for psychological well-being during COVID-19

2021 ◽  
Author(s):  
Jeremy M. Hamm ◽  
Jaron X. Y. Tan ◽  
Meaghan Barlow ◽  
Rachel Delaney ◽  
Katherine Anne Duggan
Keyword(s):  
Perceived Control ◽  
Meaning In Life ◽  
Growth Models ◽  
Self Regulation ◽  
Well Being ◽  
Psychological Well Being ◽  
Goal Adjustment ◽  
Goal Disengagement ◽  
Life Circumstances ◽  
Nationally Representative

Goal adjustment capacities (i.e., goal disengagement and goal reengagement) are core self-regulatory resources theorized to buffer psychological well-being during intractable life circumstances. However, research has yet to examine whether these capacities protect well-being for individuals who encounter uncontrollable losses in their ability to pursue important life goals due to the COVID-19 pandemic. Using a nationally-representative sample of American adults aged 18-80 (n = 292), the present longitudinal study examined the influence of goal disengagement and reengagement on levels and change in psychological well-being for individuals who differed in perceived control over their goals early in the pandemic. Results from multilevel growth models showed that goal reengagement, but not goal disengagement, capacities predicted higher levels of well-being (lower perceived stress, depressive symptoms; higher life satisfaction, meaning in life) for individuals who reported pandemic-induced declines in control over their goals. Findings inform theories of motivation and self-regulation and point to the adaptive value of goal reengagement capacities during uncontrollable life circumstances.

scholarly journals A Postcard From Italy: Challenges and Psychosocial Resources of Partners Living With and Without a Chronic Disease During COVID-19 Epidemic

2020 ◽  
Vol 11 ◽  
Author(s):  
Giada Rapelli ◽  
Giulia Lopez ◽  
Silvia Donato ◽  
Ariela Francesca Pagani ◽  
Miriam Parise ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Chronically Ill ◽  
Well Being ◽  
Chronic Health Condition ◽  
Protective Role ◽  
Health Condition ◽  
World Health ◽  
Italian Population ◽  
Cross Sectional ◽  
Psychological Well Being

The new Coronavirus (COVID-19) has been declared a global pandemic by the World Health Organization (WHO). The sudden outbreak of this new virus and the measure of lockdown adopted to contain the epidemic have profoundly changed the lifestyles of the Italian population, with an impact on people’s quality of life and on their social relationships. In particular, due to forced and prolonged cohabitation, couples may be subject to specific stressors during the epidemic. In addition, living with a chronic health condition may add specific challenges to the ones posed by the epidemic itself. The present cross-sectional study aimed to provide a picture of the challenges as well as the resources for both individual and relational well-being of Italian individuals in a couple relationship (N = 1921), with a specific attention to the comparison between individuals living with and without a chronic disease. Results showed that people with a chronic disease had lower psychological well-being and more fears and worries about the COVID-19. People with a chronic disease perceived fewer resources than healthy people. Moreover, the challenges are shown to be associated with less psychological well-being and high pessimism about the future. Instead individual, relational, and social resources play a protective role during the pandemic for both healthy and chronically ill people.

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