scholarly journals Competence in caregivers of adolescent and young adult childhood brain tumor survivors.

2014 ◽  
Vol 33 (10) ◽  
pp. 1103-1112 ◽  
Author(s):  
Janet A. Deatrick ◽  
Wendy Hobbie ◽  
Sue Ogle ◽  
Michael J. Fisher ◽  
Lamia Barakat ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Young Adult ◽  
Adolescent And Young Adult ◽  
Childhood Brain Tumor

scholarly journals Quality of Life Among Parents of Adolescent and Young Adult Brain Tumor Survivors

2017 ◽  
Vol 39 (8) ◽  
pp. 579-584 ◽  
Author(s):  
David K. Buchbinder ◽  
Michelle A. Fortier ◽  
Kathryn Osann ◽  
Justin Wilford ◽  
Violet Shen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Young Adult ◽  
Adult Brain ◽  
Adolescent And Young Adult

scholarly journals “She Was a Little Social Butterfly”: A Qualitative Analysis of Parent Perception of Social Functioning in Adolescent and Young Adult Brain Tumor Survivors

2017 ◽  
Vol 34 (4) ◽  
pp. 239-249 ◽  
Author(s):  
Justin Wilford ◽  
David Buchbinder ◽  
Michelle A. Fortier ◽  
Kathryn Osann ◽  
Violet Shen ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Young Adult ◽  
Social Competence ◽  
Social Functioning ◽  
Social Adjustment ◽  
Social Neuroscience ◽  
Adult Brain ◽  
Adolescent And Young Adult ◽  
Diagnosis And Treatment ◽  
The Social

Psychosocial sequelae of diagnosis and treatment for childhood brain tumor survivors are significant, yet little is known about their impact on adolescent and young adult (AYA) brain tumor survivors. Interviews were conducted with parents of AYA brain tumor survivors with a focus on social functioning. Semistructured interviews were conducted with English- and Spanish-speaking parents of AYA brain tumor survivors ≥10 years of age who were >2 years postdiagnosis, and analyzed using emergent themes theoretically integrated with a social neuroscience model of social competence. Twenty parents representing 19 survivors with a survivor mean age 15.7 ± 3.3 years and 10.1 ± 4.8 years postdiagnosis were interviewed. Several themes relevant to the social neuroscience social competence model emerged. First, parents’ perceptions of their children’s impaired social functioning corroborated the model, particularly with regard to poor social adjustment, social withdrawal, impaired social information processing, and developmentally inappropriate peer communication. Second, ongoing physical and emotional sequelae of central nervous system insults were seen by parents as adversely affecting social functioning among survivors. Third, a disrupted family environment and ongoing parent psychosocial distress were experienced as salient features of daily life. We document that the aforementioned framework is useful for understanding the social impact of diagnosis and treatment on AYA brain tumor survivorship. Moreover, the framework highlights areas of intervention that may enhance social functioning for AYA brain tumor survivors.

Long-term Functional Outcome in Young Adult Survivors of Childhood Brain Tumor

2020 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Catherine Demers ◽  
Isabelle Gélinas ◽  
Anne-Sophie Carret
Keyword(s):  
Brain Tumor ◽  
Young Adult ◽  
Functional Outcome ◽  
Adult Survivors ◽  
Childhood Brain Tumor ◽  
Young Adult Survivors

scholarly journals Patterns of family management for adolescent and young adult brain tumor survivors.

2018 ◽  
Vol 32 (3) ◽  
pp. 321-332 ◽  
Author(s):  
Janet A. Deatrick ◽  
Lamia P. Barakat ◽  
George J. Knafl ◽  
Wendy Hobbie ◽  
Sue Ogle ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Young Adult ◽  
Adult Brain ◽  
Adolescent And Young Adult ◽  
Family Management

Screening for fatigue in adolescent and young adult pediatric brain tumor survivors: accuracy of a single-item screening measure

2016 ◽  
Vol 24 (8) ◽  
pp. 3581-3587 ◽  
Author(s):  
Sarah R. Brand ◽  
Christine Chordas ◽  
Cori Liptak ◽  
Peter Manley ◽  
Christopher Recklitis
Keyword(s):  
Brain Tumor ◽  
Young Adult ◽  
Pediatric Brain Tumor ◽  
Adolescent And Young Adult ◽  
Single Item ◽  
Screening Measure ◽  
Pediatric Brain
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