Cultural syndromes and age moderate the emotional impact of illness intrusiveness in rheumatoid arthritis.

2009 ◽  
Vol 54 (1) ◽  
pp. 33-44 ◽  
Author(s):  
Gerald M. Devins ◽  
Anita Gupta ◽  
Jill Cameron ◽  
Kirsten Woodend ◽  
Kenneth Mah ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Emotional Impact ◽  
Illness Intrusiveness ◽  
Cultural Syndromes

scholarly journals PARE0003 MY RA STORY - PERSONAL ACCOUNTS OF LIVING WITH RHEUMATOID ARTHRITIS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1287.3-1288
Author(s):  
B. Lynch
Keyword(s):  
Rheumatoid Arthritis ◽  
Social Media ◽  
Media Coverage ◽  
Well Being ◽  
Education Programme ◽  
Emotional Impact ◽  
Patient Organisation ◽  
Newly Diagnosed ◽  
Personal Accounts ◽  
Surgery Education

Background:Over 2,000 people are diagnosed with rheumatoid arthritis (RA) in Ireland each year; three in four are of working age. In total, RA affects some 45,000 people in the country; 70 per cent of whom are women.For someone newly diagnosed with RA, coming to terms with the news can seem overwhelming.Such a dramatic shift in life circumstances can impact one’s physical and mental well-being. While there is no shortage of information available about the condition, it can be overwhelming trying to filter this, assess what is trustworthy and reliable.Objectives:•To provide information and hope to people newly diagnosed with RA, and to give a voice to those living with the condition;•To increase awareness and understanding of RA – encourage engagement with HCPs, contributing to early diagnosis and better outcomes;•To increase awareness of work of Arthritis Ireland as a patient organisation.Methods:Arthritis Ireland approached best-selling author and RA patient, Sinead Moriarty, to front an RA awareness campaign, called My RA Story.The purpose of the campaign was to increase awareness and understanding of rheumatoid arthritis, of what it is like to live with this chronic condition with its invisible pain and life-changing impact. In so doing, Arthritis Ireland wanted to give a platform to people to tell their own story, so that they could be heard. We then wanted to publish these experiences in book form.In April 2019, we launched a video on social media featuring Sinead Moriarty speaking about her experience of living with RA. The video generated lots of engagement across social media and also helped garner national and regional media coverage in print and broadcast.The call for RA stories received a fantastic response from the public and the reading panel had a tough job in selecting the contributions which would feature in the published volume. Once the successful contributions were chosen, Arthritis Ireland proceeded to design a book, which could be sold in the book trade and online.Results:In September 2019, Arthritis Ireland published My RA Story: Personal accounts of living with rheumatoid arthritis. Launched in the National Library of Ireland by Sinead Moriarty, the 46 contributions touched upon themes of pain, fatigue, emotional impact, disability, surgery, education, career, family, goal-setting, self-management, connecting with others, hope, etc.The contributors came from people who were living with RA for over 40 years, as well as from those who were more recently diagnosed.The book is a hugely valuable contribution to health literature. Arthritis Ireland now plans to make the book available for sale internationally, through Amazon and other retail channels, as well as promoting it more extensively in rheumatology clinics.In October, one of the contributors was interviewed on national television about her RA story, as part of a feature on World Arthritis Day.Conclusion:This campaign gave people living with RA a platform to write about and share about their condition. Fronted by an RA champion with significant name recognition and an enormous audience in her own right, best-selling author, Sinéad Moriarty, the book, My RA Story. Crucially, the book is a valuable resource for people who are newly diagnosed with the disease and uncertain of what the future holds.Acknowledgments:This project was supported by an educational grant from MSD.Disclosure of Interests:Brian Lynch Grant/research support from: Arthritis Ireland received a grant from MSD to develop this patient education programme. Brian Lynch has not benefited personally in any way.

scholarly journals Gene selection and dynamic neutrosophic cognitive map with bat algorithm (DNCM-BA) for diagnose of rheumatoid arthritis (RAs)

2018 ◽  
Vol 7 (2.21) ◽  
pp. 242
Author(s):  
B Chithra ◽  
R Nedunchezhian
Keyword(s):  
Rheumatoid Arthritis ◽  
Gene Expression ◽  
Complex Disease ◽  
Gene Selection ◽  
Information Gain ◽  
Bat Algorithm ◽  
Cognitive Map ◽  
Emotional Impact ◽  
Body Parts ◽  
Fuzzy C Means

Rheumatoid Arthritis (RA) is an autoimmune inflammatory rheumatic disease that has emotional impact on various body parts and tissue, principally the synovial joints. RA is a complex disease similar to many other autoimmune diseases, in which environmental aspects, genetic variants, as well as arbitrary events cooperate to activate pathological pathways. Choosing the appropriate gene for sample classification is very hard in numerous gene expression analyses in RA, in which authors attempt to find out the least probable set of genes, even now which could attain better predictive performance. On the other hand, the accuracy of classification is not up to the mark. As a result, for identifying RA disease, this research presents a gene selection as well as classification technique. Initially, with the aim of decreasing the time complexity, this disease dataset is preprocessed. Next, so as to decrease the amount of gene, the gene data is chosen from the preprocessed data by means of filter based gene selection techniques: Chi-square (CHI), Information Gain (IG), Consistency Based Subset Evaluation (CS) and Correlation Based Gene Selection (CGS). Thirdly, for the purpose of the classification of RA disease, a Dynamic Neutrosophic Cognitive Map with Bat Algorithm (DNCM-BA) is presented, that is well-suited with the medical routine and it is proposed for supporting gene expression beforehand and accurate diagnosis of RA patients.  As a result, RA disease is not permitted from moving to progressive phases and the difficulty of emerging insistent as well as erosive arthritis for RA patients will get reduced. Finally, the outcome confirms that the DNCM-BA technique provides better performance while matched up with FCM–Particle Swarm Optimization (FCM-PSO), Fuzzy C Means (FCMs), Dynamic Firefly Algorithm Fuzzy C Means (DFAFCM) and Dynamic Fuzzy C Mean (DFCM) clustering algorithms in regard to precision, accurateness, recall and F-measure.  

Differences in Illness Intrusiveness Across Rheumatoid Arthritis, End-Stage Renal Disease, and Multiple Sclerosis

1993 ◽  
Vol 181 (6) ◽  
pp. 377-381 ◽  
Author(s):  
GERALD M. DEVINS ◽  
STEVEN M. EDWORTHY ◽  
T PETER SELAND ◽  
GARY M. KLEIN ◽  
LEENDERT C. PAUL ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Multiple Sclerosis ◽  
Renal Disease ◽  
End Stage Renal Disease ◽  
Illness Intrusiveness ◽  
Stage Renal Disease ◽  
End Stage

Association of vitamin D receptor genotypes with early onset rheumatoid arthritis

2001 ◽  
Vol 28 (1) ◽  
pp. 89-93 ◽  
Author(s):  
J. R. Garcia-Lozano ◽  
M. F. Gonzalez-Escribano ◽  
A. Valenzuela ◽  
A. Garcia ◽  
A. Nunez-Roldan
Keyword(s):  
Rheumatoid Arthritis ◽  
Vitamin D ◽  
Vitamin D Receptor ◽  
Early Onset
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