Family care during cancer care.

Handbook of cancer control and behavioral science: A resource for researchers, practitioners, and policymakers. ◽

10.1037/14499-022 ◽

2009 ◽

pp. 391-408 ◽

Cited By ~ 2

Author(s):

Barbara A. Given ◽

Paula R. Sherwood ◽

Charles W. Given

Keyword(s):

Cancer Care ◽

Family Care

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A randomized intervention involving family to improve communication in breast cancer care

npj Breast Cancer ◽

10.1038/s41523-021-00217-9 ◽

2021 ◽

Vol 7 (1) ◽

Author(s):

Jennifer L. Wolff ◽

Jennifer Aufill ◽

Diane Echavarria ◽

Amanda L. Blackford ◽

Roisin M. Connolly ◽

...

Keyword(s):

Breast Cancer ◽

Cancer Care ◽

Family Care ◽

Communication Intervention ◽

Patient Portal ◽

Electronic Interactions ◽

Clinical Notes ◽

Care Partners ◽

Randomized Intervention ◽

Scalable Communication

AbstractWe examined the effects of a communication intervention to engage family care partners on patient portal (MyChart) use, illness understanding, satisfaction with cancer care, and symptoms of anxiety in a single-blind randomized trial of patients in treatment for breast cancer. Patient-family dyads were recruited and randomly assigned a self-administered checklist to clarify the care partner role, establish a shared visit agenda, and facilitate MyChart access (n = 63) or usual care (n = 55). Interviews administered at baseline, 3, 9 (primary endpoint), and 12 months assessed anxiety (GAD-2), mean FAMCARE satisfaction, and complete illness understanding (4 of 4 items correct). Time-stamped electronic interactions measured MyChart use. By 9 months, more intervention than control care partners registered for MyChart (77.8 % vs 1.8%; p < 0.001) and logged into the patient’s account (61.2% vs 0% of those registered; p < 0.001), but few sent messages to clinicians (6.1% vs 0%; p = 0.247). More intervention than control patients viewed clinical notes (60.3% vs 32.7%; p = 0.003). No pre-post group differences in patient or care partner symptoms of anxiety, satisfaction, or complete illness understanding were found. Intervention patients whose care partners logged into MyChart were more likely to have complete illness understanding at 9 months (changed 70.0% to 80.0% vs 69.7% to 54.6%; p = 0.03); symptoms of anxiety were numerically lower (16.7% to 6.7% vs 15.2% to 15.2%; p = 0.24) and satisfaction numerically higher (15.8–16.2 vs 18.0–17.4; p = 0.25). A brief, scalable communication intervention led to greater care partner MyChart use and increased illness understanding among patients with more engaged care partners (NCT03283553).

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Coaching Care Partners Who Support Loved Ones With MCI

Perspectives on Gerontology ◽

10.1044/gero19.2.50 ◽

2014 ◽

Vol 19 (2) ◽

pp. 50-56 ◽

Cited By ~ 1

Author(s):

Kerry Mills ◽

Jennifer Brush

Keyword(s):

Cognitive Functioning ◽

Educational Program ◽

Social Withdrawal ◽

Quality Care ◽

Critical Role ◽

Family Care ◽

Speech Language Pathologists ◽

Care Partners ◽

Provide Quality Care ◽

Solution Focused

Speech-language pathologists can play a critical role in providing education and intervention to prevent social withdrawal, prevent premature disability, and maximize cognitive functioning in persons with MCI. The purpose of this article is to describe positive, solution-focused educational program that speech-language pathologists can implement with family care partners to improve relationships and provide quality care for someone living with MCI.

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